Guest guest Posted February 27, 2010 Report Share Posted February 27, 2010 Jane, I am not sure that you are aware....and I thought the same thing till I was granted benefits...from the date they call you disabled.....which is 6 months after the last day you worked....then add 24 months....so if it takes 3 years to get your claim approved voila you already have medicare benefits which will back pay your medical. They really dont explaiu that and had gotten engaged because I thought my cobra insurance would run out.....I applied for the first time the end of February 2007 and before I had heard anything about my claim  my fiance said uh, there is a whole lot of money in your account after he deposited a check for me......my backpay was deposited in less then 8 weeks after I applied. I applied on line....my date of onset of disability was august 05 (i waited to apply for SSD because i was in the process of a divorce and it would have been considered marital property)  I didnt realize that my minor children were entitlted to benefits until I spoke with a woman on the internet.....I wasnt told that at my 10 minute office appointment.... Obviously, your situation has been more difficult then mine related to the benefits. I am shocked that the GA doc could fire you....I would think that you would be covered by FMLA...so that you would have been entitled to std or ltd.... There was a member of another listserv telling members that they will have to go to all of these social security docs etc....I never had to see one of their docs....the fact of it is people that have cases where its not definitive...most of them give up or when they are finally granted benefits with a more recent date of onset they stop appealing..... As far as people dying before getting benefits.....SSA just added 32 diagnosis that with any of these diagnosis one will get immediate called compassionate care its listed under new impairments.....they always did this for ALS and acute renal failure (they had immediate medicare as well) with these new diagnosis because of the severity these new illness's get immediate benefits. As far as SSI I have limited knowledge as I have never qualified for it.....I only have knowledge in dealing with patients applying for it......  My ex fiance's brother was a gaurd in colorado and was stabbed or something like that and ended up with hep c....and I became friend with a woman who was a police officer that had hep c...did the year of treatments and has completely recovered from the hep c but now has been diagnosed with MS....i know the treatment sucks.... Deb RN  Debra ________________________________ From: Jane <borlan9191962@...> neck pain Sent: Sat, February 27, 2010 8:32:48 PM Subject: Re: Re: . Deb  Deb,   According to SS since my " lover " and I are not married so his income does not count against my getting SSI. It does though for foodstamps and a few other state programs.He is on disability himself,so no, even if we were to marry I would still not have healthcare.  My last job was with the GA. Dept. of Corrections. As a condition of employment I had to be physically fit to retain the job. They were not in violation of the law.  My understanding is not incorrect. I have been through this process with a former husband, my current " lover " and my mother, all of which I handled most of the correspondence between them and SS due to their poor health. I am more than familiar with how SS works. The form you spoke of has been completed as has a range of motion report done by a doctor that SS sent me too. Yes I agree the narrative from my doctor is not enough but it with all the other evidence is more than enough. I have read the SS's list of impairments and by their own admission I qualify for SSD with 3 firm impairments (muscoskeletal) not including several other impairments that are on the brink of qualifying.  I have been through 10 months of a 12 month combination therapy for Hep C. It had to be stopped early because of a dangerous drop in white and red cells as well as elevated amonia, bilurubin, etc. According to the last blood work my liver was not any worse but no better than it was 3 years ago when I completed the treatment.  I have known people with AIDS, terminal cancers, etc. who had lawyers and died before getting approved for SSD. Just because you meet their guidelines does not mean you will automatically be approved. They prolong this process in hopes that you will either die or have to take some form of work to afford food and other necessities.  I will eventually get SSD but it will take a while longer to get it. After it is approved it will still be 24 months before I am able to get Medicare. Makes sense, why should a medically disabled person need immediate medical care anyway? In the process I will lose much of what I have amassed through my lifetime. I have already had to sell my jewelry and many of my collectibles and I am sure I will have to sell more before it is over. This is causing a strain in my relationship with my " lover " (the best man I have ever known), my family and my friends. I firmly stand by my earlier comment that this country sucks. I have worked since I was 16 years old and paid into SS out of every paycheck yet now that I need help it is not there. I had to rant a little too!  Jane H. From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM  SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN  Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb  Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Thanks Debra for the wishes. I need them. I first applied in April of 08, was denied in April of 09 and immediately filed an appeal using an attorney. The first attorney was a screw up and I switched attorneys the first of October. My attorney seems to think there won't be a problem with the decision based on the medical evidence but you just never know. My hearing before the ALJ is a video one. Not sure if that's good or bad. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Thanks Debra for the wishes. I need them. I first applied in April of 08, was denied in April of 09 and immediately filed an appeal using an attorney. The first attorney was a screw up and I switched attorneys the first of October. My attorney seems to think there won't be a problem with the decision based on the medical evidence but you just never know. My hearing before the ALJ is a video one. Not sure if that's good or bad. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 ine, I believe that I have some tips for a hearing in one of my files...I will see if i can find them. From what I have been reading the past couple of hours, your chances are excellent, at the ALJ level.  The judges are not medically trained and I think they err on the side of the claimant. So many people give up prior to that level. Why did the first rejection take a year? Everything I just read stated its usually denied within 4 months.....well if you are approved and your onset of disability was april of 08 you wont have to wait very long if you are approved to get medicare. If SSA sends you to one of their physicians, does SSA pay for it or does the patient pay for it? Does anyone know the answer to this? Deb RN  Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Sun, February 28, 2010 7:52:37 AM Subject: Re: Re: . Deb  Thanks Debra for the wishes. I need them. I first applied in April of 08, was denied in April of 09 and immediately filed an appeal using an attorney. The first attorney was a screw up and I switched attorneys the first of October. My attorney seems to think there won't be a problem with the decision based on the medical evidence but you just never know. My hearing before the ALJ is a video one. Not sure if that's good or bad. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 ine, I believe that I have some tips for a hearing in one of my files...I will see if i can find them. From what I have been reading the past couple of hours, your chances are excellent, at the ALJ level.  The judges are not medically trained and I think they err on the side of the claimant. So many people give up prior to that level. Why did the first rejection take a year? Everything I just read stated its usually denied within 4 months.....well if you are approved and your onset of disability was april of 08 you wont have to wait very long if you are approved to get medicare. If SSA sends you to one of their physicians, does SSA pay for it or does the patient pay for it? Does anyone know the answer to this? Deb RN  Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Sun, February 28, 2010 7:52:37 AM Subject: Re: Re: . Deb  Thanks Debra for the wishes. I need them. I first applied in April of 08, was denied in April of 09 and immediately filed an appeal using an attorney. The first attorney was a screw up and I switched attorneys the first of October. My attorney seems to think there won't be a problem with the decision based on the medical evidence but you just never know. My hearing before the ALJ is a video one. Not sure if that's good or bad. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Social Security pays for it. They also pay mileage to & from the appt.. From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 ine, I don't remember if you said you had insurance or not...but when you are approved you may want to think about a spinal cord stimulator. I have one and it broke the cycle of pain that I had, in fact i no longer turn it on very often. I refer to mine as a g-dsend. Did I understand you correctly, that you arent taking any pain medicine other then lyrica? Deb RN  Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Sun, February 28, 2010 12:28:18 PM Subject: Re: Re: . Deb  What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 ine, I don't remember if you said you had insurance or not...but when you are approved you may want to think about a spinal cord stimulator. I have one and it broke the cycle of pain that I had, in fact i no longer turn it on very often. I refer to mine as a g-dsend. Did I understand you correctly, that you arent taking any pain medicine other then lyrica? Deb RN  Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Sun, February 28, 2010 12:28:18 PM Subject: Re: Re: . Deb  What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 No, no insurance. I've never heard of a spinal cord stimulator but I'll look it up. I take: Lyrica to deaden the nerve pain, Ultram and Vicodin for pain, Flexeril for muscle pain, and Carbamazepin for Trigeminal Neuralgia. Plus high blood pressure meds and Prilosec for GERD. I've considered a lovely bottle of Traverse City Cherry wine but I've had one experience with mixing Lyrica and alcohol and I really don't want a repeat...but it does sound so good and it would help to stop the pain... last time I was unconscious and non-responsive. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Go to Orthopod.com  type in spinal cord stimulator and it will show you the info . From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 I cant figure out why lyrica is a controlled drug....anyone know y?...you have trigeminal neuralgia as well.....I had a very brief incident with that years ago....My heart goes out to you.....does mixing alcohol and lyrica always have that ending? Lets avoid that one then..... Deb RN  Debra ________________________________ From: Smokie1952 <smokie1952@...> neck pain Sent: Sun, February 28, 2010 5:57:47 PM Subject: Re: Re: . Deb  Go to Orthopod.com  type in spinal cord stimulator and it will show you the info . From: Debra <i_ownaberner> Subject: Re: [PainInTheNeck- Back] Re: . Deb PainInTheNeck- Back@groups .com Date: Friday, February 26, 2010, 7:35 PM SSI is strictly for indigent, if you were not given SSI it would be because you or your spouse make too much money, and for that reason you would not qualify for medicaid,. You do not need to be disabled to be on SSI, but if you do not have enough work credits, and are disabled you can be approved, if that makes sense. Although, the approval really has nothing to do with disability it has to due with indigence, if that makes any sense. SSD is for disabiltiy.. ...the problem is that SSD doesnt recognize migraines as a disabling condition and therefore... ..no matter how many docs diagnose migraine doesnt really matter....it is not considered disabling... for further info see the blue book and the red book. I dont want to delfate your hope in gaining/winning a claim but, as SSA is set up now, its not going to happen. Deb RN Debra ____________ _________ _________ __ From: grasshopperx_ 10 <woody1014@myfairpo i nt.net> PainInTheNeck- Back@groups .com Sent: Fri, February 26, 2010 4:48:56 PM Subject: [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Deb. With the spinal stimulator are you still on pain meds? I Am scheduled for one the end of march Sent from my Verizon Wireless BlackBerry Re: Re: . Deb  What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > >_verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Laurie I would no longer need pain meds as  I have zero back, leg  pain....however I have RA and crohns as well, so I will always be on a opiate to control the side effects of the crohns.  Will you still need narcotics, maybe not daily,you may be able to wean off long acting drugs and just take prn medicine if you are having a bad day....talk to your doc before hand and find out his plan as a a 50 percent reduction in pain doesnt always equate with a 50 percent reduction in meds..... Deb RN  Debra ________________________________ From: " ljorichardson0912@... " <ljorichardson0912@...> neck pain Sent: Sun, February 28, 2010 11:20:52 PM Subject: Re: Re: . Deb  Deb. With the spinal stimulator are you still on pain meds? I Am scheduled for one the end of march Sent from my Verizon Wireless BlackBerry Re: [PainInTheNeck- Back] Re: . Deb  What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > >_verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 May I add that yes. Absolutely the SSI doctor is there to deny you.. Make sure to put on your worst face.. You need to really think about the question " what is an average day like " as well... This will be used to show how much activity is left in day.. T Tom In a message dated 2/28/2010 11:28:50 A.M. Mountain Standard Time, rosedragon@... writes: What the MRI said in September ... " Moderate to severe multilevel degenerative cervical spondylotic changes, most significant at C5-C-6 and C-6-C-7, where there was central canal stenosis and significant bilateral neural foraminal stenosis. Superimposed disc protrusion was not excluded, particularly at C-5-C-6 " . That's just cervical... then there's the mess in the lumbar region... basically the same. My right arm and hand are in pain 24/7 with numbness, tingling and burning pain. I'm on Lyrica which just takes the edge off. Some days I think about just cutting the whole arm off. It's basically useless at this point. Of course, I'm right hand dominant. I type with my left hand and I can't hold a pen, fork, knife, etc. Peachy. Oh yeah... and I had a mild cerebellar stroke Nov 08. Still have balance and eye issues from that. Anyway... if SSA sends you to one of their physicians for an eval..it's their dime. Keep in mind that physician is not there to help you...they are there to disprove your claim. ine [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > [Non-text portions of this message have been removed] > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > ------------ --------- --------- ------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 Lyrica may be controlled because of the side effects? I don't know. I did not intend to drink much but I was at a Christmas party and my daughter's friends were mixing drinks... trying different combos and you know.. it was here try this...take a sip...here try this...take another sip and before you know it I had too many sips and was out cold. My blood alcohol level was .13 The ER was surprised because they figured it would come back much higher because of my condition upon arrival. What an eye opener. Yes, I have Trigeminal Neuralgia but it's being controlled with Carbamazepine, thank goodness. Worse pain I have ever felt in my life and that's saying something because I'm in pain 24/7 in my right arm and hand.. and back... cripes. Just shoot me. [PainInTheNeck- Back] Re: . Deb Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > ...How does someone go 2, 3, or 4 years with out income living on their own...... > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > Can you go to an ER. for help?? > > > It is an unfortunate fact of life that Social Security will deny you if > > > able.. Without a doctor who is willing to say you are disabled you are > > in > > > a > > > bad place.. > > > Maybe the thing you have to do is go from ER to ER until you find a > > > sympathetic doctor, who is willing to help... > > > One thing that will be really hard but you have to do is present a mild > > > mannered approach that gathers sympathy... > > > Gosh, I hope you get help.. > > > : ( > > > T > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > I want to apologize for the angry version of myself that posted a few > > days > > > ago. It's not how I like to present myself to the world. > > > > > > It feels sometimes that I am going through the grieving process whenever > > I > > > have a severe migraine: > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > out of my mind I won't get worse.... > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > it! > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > this life-constricting pain! > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > last > > > more than a month at a time, and I guess that's not long enough for me > > to > > > accept my lot in life. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If you though those were serious...I would hate to tell you what I am on....enough to kill a horse, a man, and several small children,,,,and I do just fine.....I think ine is probably hanging on by her fingernails.....ine it certainly sounds lke your pain in undercontrolled,,,sounds like a long acting drug oxycontin or ms contin would do you a world of good......talk to your doc....ultram is pretty expensive too...why use vicodin and ultram...the whole purpose of ultram is non narcotic....it doesnt make sense.... Deb RN Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Mon, March 1, 2010 4:37:03 PM Subject: Re: Re: . Deb  If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If you though those were serious...I would hate to tell you what I am on....enough to kill a horse, a man, and several small children,,,,and I do just fine.....I think ine is probably hanging on by her fingernails.....ine it certainly sounds lke your pain in undercontrolled,,,sounds like a long acting drug oxycontin or ms contin would do you a world of good......talk to your doc....ultram is pretty expensive too...why use vicodin and ultram...the whole purpose of ultram is non narcotic....it doesnt make sense.... Deb RN Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Mon, March 1, 2010 4:37:03 PM Subject: Re: Re: . Deb  If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If you though those were serious...I would hate to tell you what I am on....enough to kill a horse, a man, and several small children,,,,and I do just fine.....I think ine is probably hanging on by her fingernails.....ine it certainly sounds lke your pain in undercontrolled,,,sounds like a long acting drug oxycontin or ms contin would do you a world of good......talk to your doc....ultram is pretty expensive too...why use vicodin and ultram...the whole purpose of ultram is non narcotic....it doesnt make sense.... Deb RN Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Mon, March 1, 2010 4:37:03 PM Subject: Re: Re: . Deb  If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 If you though those were serious...I would hate to tell you what I am on....enough to kill a horse, a man, and several small children,,,,and I do just fine.....I think ine is probably hanging on by her fingernails.....ine it certainly sounds lke your pain in undercontrolled,,,sounds like a long acting drug oxycontin or ms contin would do you a world of good......talk to your doc....ultram is pretty expensive too...why use vicodin and ultram...the whole purpose of ultram is non narcotic....it doesnt make sense.... Deb RN Debra ________________________________ From: rosedragon <rosedragon@...> neck pain Sent: Mon, March 1, 2010 4:37:03 PM Subject: Re: Re: . Deb  If I don't take them I won't be able to tolerate life. [PainInTheNeck- Back] Re: . Deb > > Can you get on or apply for MEDICAID? Are you on that???? Get on it. ITs not that hard. It goes by income. Almost everyone i know in my state is on that. Once you get on that, it pays for doctor visits. Then you can try different doctors. it even covers chiropractic type doctors.Free medicines etc. > I was on it before. I applied for medicaid based on disablility. I had to fill out a five page form, list my medical history, what the injury was etc. I qualified as disabled. But that is state not federal like ssi.But ususally it goes on income. > > > > > > ...How does someone go 2, 3, or 4 years with outÃ, income living on their own...... > > > > Couch surfing or living outside, depending on food banks and sometimes food stamps, were the methods I have used for years at a time. Being able to make and keep friends helps more than anything, but it puts intense strain on relationships. > > > > SSI denied me with the reason that chronic migraines and occipital neuralgia don't limit me sufficiently, and that I can work in retail sales. This is a laughable reason that should never have been suggested, but I don't know how to fight that without a lawyer. As the lawyer I talked to said that I need extensive RECENT documentation from doctors regarding my disability in order for the lawyer to take my case, I didn't appeal in time. > > > > I'm brainstorming as to how I can get regular doctor visits before and during the social security process, but I don't even have $5 to pay a sliding scale clinic, and the 'care' I've gotten for migraines at such clinics has been atrocious. > > > > > > > > > > > > > > > > > > Darn... I feel bad for you.. Really... > > > > Can you go to an ER. for help?? > > > > It is an unfortunate fact of life that Social Security will deny you if > > > > able.. Without a doctor who is willing to say you are disabled you are > > > in > > > > a > > > > bad place.. > > > > Maybe the thing you have to do is go from ER to ER until you find a > > > > sympathetic doctor, who is willing to help... > > > > One thing that will be really hard but you have to do is present a mild > > > > mannered approach that gathers sympathy... > > > > Gosh, I hope you get help.. > > > > : ( > > > > T > > > > > > > > In a message dated 2/23/2010 11:49:26 A.M. Mountain Standard Time, > > > > _verbascum23@ verbascum_ (mailto:verbascum23 @...) writes: > > > > > > > > I want to apologize for the angry version of myself that posted a few > > > days > > > > ago. It's not how I like to present myself to the world. > > > > > > > > It feels sometimes that I am going through the grieving process whenever > > > I > > > > have a severe migraine: > > > > > > > > a. It's not really getting severe, right? If I close my eyes and shut it > > > > out of my mind I won't get worse.... > > > > > > > > b. OH NO! I'm angry that I'm in so much pain and I have no way to reduce > > > > it! > > > > > > > > c. Please just let me be, migraine! I would give anything to be rid of > > > > this life-constricting pain! > > > > > > > > d. I can't continue any further like this, please kill me now. > > > > > > > > e. Well, I don't really ever accept this. The severe migraines never > > > last > > > > more than a month at a time, and I guess that's not long enough for me > > > to > > > > accept my lot in life. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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