Re: ok...so..what about my HAIR???????!!!!!*&^%$!

[Guest guest]

Jessie

So glad to hear the news that you are off treatment and feeling better

already. Glad your eyes are getting better that is one thing my husband is

worried about now is his eyes. I will be so glad when he gets to the place

you are and can eat things again and just feel better then he has the past 17

months. Once more month to go and he should be off the Combo. Good health

to you and congratulations having finished the Combo and I know it has been a

long haul for you.

Winne

[Guest guest]

Jessie

So glad to hear the news that you are off treatment and feeling better

already. Glad your eyes are getting better that is one thing my husband is

worried about now is his eyes. I will be so glad when he gets to the place

you are and can eat things again and just feel better then he has the past 17

months. Once more month to go and he should be off the Combo. Good health

to you and congratulations having finished the Combo and I know it has been a

long haul for you.

Winne

[Guest guest]

Mzgee.

I'm using Nioxin and feel like its helping, hair does not seem like its

getting any thinner, but has stayed about where it seemed when I started

using the Nioxin. I also knew I was losing hair and wish I would have

started sooner, I have heard that the hair grows back when tx is stopped so

you will have hair again, mine is pretty thin now too am glad I had a

pretty good head of hair to begin with, now there is a reasone why I can't

do a thing with my hair. THINNInG

Take Care

Suzy

From: Mzgee1@...

Reply-Hepatitis Cegroups

Hepatitis Cegroups

Subject: ok...so..what about my HAIR???????!!!!!* & ^%$!

Date: Mon, 15 Jan 2001 15:00:02 EST

....H E L P.........ok so now I look bad too! Bad enough i FEEL bad! I

just got back from the mall and got my first bottles of Nioxin. Somebody

tell me this WILL work!!!!! It seems like I had been losing hair..but it

never made a difference cause I have (HAD!) so much...all of a sudden...it's

THIN THIN THIN!!!!! and especially on one side! I figure that's because

it's

the side I sleep on. So bad enough it's thinning..but it's thinning

UNEVENLY!!!! and the top of my head is still okay...I'm beginning to look

like Pebbles from the Flinstones!!!!! This is depressing! I can take the

yuk stomach, the puking, the pain...but i have my limits!!!!!!

Anybody using Nioxin?? Does it help?? Did your hair return to pre-TX state??

I'm only half-way thru TX. Thanks guys...love, mzgee

[Guest guest]

I started using Nixion a month before I started tx. I was on tx 1 year

been off for about 3 or 4 weeks. My hair got very thin and dry could not

do a thing with it. Got it cut very short I justed hated it. Being off

tx just 3 or 4 weeks I can tell the difference my hair is starting to

shine and comb better and I am us my regular shampoo. It feels so good.

Just hang in their.

LET GO LET GOD

[Guest guest]

----------

>From: Mzgee1@...

Did your hair return to pre-TX state??

Yes, my hair came back. I cut it short and used lots of mousse while on

treatment. Never used the Nioxin though.

gail

[Guest guest]

----------

>From: Mzgee1@...

Did your hair return to pre-TX state??

Yes, my hair came back. I cut it short and used lots of mousse while on

treatment. Never used the Nioxin though.

gail

[Guest guest]

Thanks Suzy! Hopefully, it won't thin any further ).

I'm glad to hear you feel it has helped. that's encouraging. Thanks, gee

[Guest guest]

Thanks Suzy! Hopefully, it won't thin any further ).

I'm glad to hear you feel it has helped. that's encouraging. Thanks, gee

[Guest guest]

Thanks Jessie!!!!! ) I like the sounds of that! I thank God I had alot of

hair to start..cause I'd probably be lookin' at wigs now! Take it easy, gee

[Guest guest]

Thanks Jessie!!!!! ) I like the sounds of that! I thank God I had alot of

hair to start..cause I'd probably be lookin' at wigs now! Take it easy, gee

[Guest guest]

Oh Wonderful!!!!!!! I use lots of mousse too!! Yea so it looks like hair is

there but if you hit it too hard, it caves!! LOL! gee

[Guest guest]

Oh Wonderful!!!!!!! I use lots of mousse too!! Yea so it looks like hair is

there but if you hit it too hard, it caves!! LOL! gee

[Guest guest]

Hey all.....I have been a member of this group for over a year now, but I

dont contribute all that much...so here goes! I am beginning to start my 3rd

round of treatment (yes, THIRD)...I refuse to give up. Anyway...re the hair

loss..I can tell you that the last 2 times mine really thinned about month

3-4, and then changed texture. But in both cases grew back to its

pre-treatment state within just a matter of months. I thought that may make

some of you feel better about it..i know it was the biggest adjustment for

me, despite all the other side effects. If I can help with any other

questions feel free to email me. I am a critical care nurse, ad sort of

understand the medical side of this illness more than most patients. Take

care all..and know tht you can win! I am planning on

it...........................................peggy

[Guest guest]

Hey all.....I have been a member of this group for over a year now, but I

dont contribute all that much...so here goes! I am beginning to start my 3rd

round of treatment (yes, THIRD)...I refuse to give up. Anyway...re the hair

loss..I can tell you that the last 2 times mine really thinned about month

3-4, and then changed texture. But in both cases grew back to its

pre-treatment state within just a matter of months. I thought that may make

some of you feel better about it..i know it was the biggest adjustment for

me, despite all the other side effects. If I can help with any other

questions feel free to email me. I am a critical care nurse, ad sort of

understand the medical side of this illness more than most patients. Take

care all..and know tht you can win! I am planning on

it...........................................peggy

[Guest guest]

LOL...There are times I dont feel so gutsy, believe me. Actually, I got

tired of fighting the buerocracy of trying to get disability, and went back

to work after about 14 months off. As far as the side effects, my best

advice is to find what works for YOU. For example, I found that giving the

injections in my thighs hurt at the injection time worse than my belly, but

giving them in my belly made the side effects kick in quicker. And I found

its all a matter of timing...try and find out what YOUR timing is, and adjust

your life around it if you can. For me, once the fevers were over, I didn't

feel so bad, so I learned to time the tylenol or advil accordingly. And I

also found, the more I could force liquids down, the less harsh the side

effects were. It also helped me the most I think, to know how long those

side effects were usually going to last..then I became a clock-watcher.

Sometimes it drove me a little nuts, but it made it a little more surviveable.

Now regarding the low white count question. Again, it is individualized

to your own personal system, but here is what I found as my white count

dropped.....1). I caught every little " bug " that was around me. If there was

a kiddo with a snotty nose, I had it the next day. If there was a " mild "

gastrointestinal bug around, for me it became awful. So I always tried to

mentally prepare myself for that as well. 2). As my count dropped, I used to

get this dry skin flaky area on my face. 3) I also found that my gums became

sorer around the same time. 4) Little cuts and abrasions didnt heal as fast

as usual on me. I guess in summary, as these things put together a picture

for me, I knew what to try and avoid. Yes, the side effects sort of

controlled my life, but then I always looked at it as " I did have a life to

control " .

Now as far as going thru it for the third time....here is the

conversation my GI doc and I had last week when the liver biopsy issue came

up again (yes, I had a second one this week). He said.... " We can always

choose to wait and do nothing, since you are a non-responder " My response was

this... " If you had a virus that replicated ON the only known treatment, would

YOU choose to do nothing and wait and see how fast it could replicate OFF of

that treatment? " His answer? " I guess not " My resonse? " That's because you

are on the wrong end of the treatment this time " . He said " I understand, so

let's get you in the next clinical trial " I respect him, trust him

implicitly, have worked with him, and have developed a great relationship

with him. But sometimes you have to put things in a different perspective.

So....if you friends need any morale boosters...come see me...usually if

I dig deep enough I can find some. I believe that we all can do this..every

single one of us. So find a smile somewhere down deep..and just believe!

~~ peggy~~

[Guest guest]

LOL...There are times I dont feel so gutsy, believe me. Actually, I got

tired of fighting the buerocracy of trying to get disability, and went back

to work after about 14 months off. As far as the side effects, my best

advice is to find what works for YOU. For example, I found that giving the

injections in my thighs hurt at the injection time worse than my belly, but

giving them in my belly made the side effects kick in quicker. And I found

its all a matter of timing...try and find out what YOUR timing is, and adjust

your life around it if you can. For me, once the fevers were over, I didn't

feel so bad, so I learned to time the tylenol or advil accordingly. And I

also found, the more I could force liquids down, the less harsh the side

effects were. It also helped me the most I think, to know how long those

side effects were usually going to last..then I became a clock-watcher.

Sometimes it drove me a little nuts, but it made it a little more surviveable.

Now regarding the low white count question. Again, it is individualized

to your own personal system, but here is what I found as my white count

dropped.....1). I caught every little " bug " that was around me. If there was

a kiddo with a snotty nose, I had it the next day. If there was a " mild "

gastrointestinal bug around, for me it became awful. So I always tried to

mentally prepare myself for that as well. 2). As my count dropped, I used to

get this dry skin flaky area on my face. 3) I also found that my gums became

sorer around the same time. 4) Little cuts and abrasions didnt heal as fast

as usual on me. I guess in summary, as these things put together a picture

for me, I knew what to try and avoid. Yes, the side effects sort of

controlled my life, but then I always looked at it as " I did have a life to

control " .

Now as far as going thru it for the third time....here is the

conversation my GI doc and I had last week when the liver biopsy issue came

up again (yes, I had a second one this week). He said.... " We can always

choose to wait and do nothing, since you are a non-responder " My response was

this... " If you had a virus that replicated ON the only known treatment, would

YOU choose to do nothing and wait and see how fast it could replicate OFF of

that treatment? " His answer? " I guess not " My resonse? " That's because you

are on the wrong end of the treatment this time " . He said " I understand, so

let's get you in the next clinical trial " I respect him, trust him

implicitly, have worked with him, and have developed a great relationship

with him. But sometimes you have to put things in a different perspective.

So....if you friends need any morale boosters...come see me...usually if

I dig deep enough I can find some. I believe that we all can do this..every

single one of us. So find a smile somewhere down deep..and just believe!

~~ peggy~~

[Guest guest]

Peggy,

Gutsy lady, are you still working? and how do you do it, I'm in my 11 th

month and son't think I will do another round but who knows when the time

comes? I of course am hoping to beat this thing, nice to hear about the

hair, what kind of side effects does the body get when the wbc's are at 2?

any or is just your immune system depressed and you are more prone to

getting sick? Thanks

Suzy

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Thanks Peggy. Yea, it's hard when the hair starts to go. don't like looking

in the mirror much. Wearing more make-up these days...but it really doesn't

do it! This started to really show in 3rd. month too. Also, I know I'm

isolating more as time goes on. Also sides have increased as Tx goes on,

especially pain. Lately i've had a real hard time even getting it to an okay

place. Probably part of it has to do with living in the NE. Lots of snow

and cold this winter. I'm looking forward to Spring! (and hair growing back)

take care, gee

[Guest guest]

Thanks Peggy. Yea, it's hard when the hair starts to go. don't like looking

in the mirror much. Wearing more make-up these days...but it really doesn't

do it! This started to really show in 3rd. month too. Also, I know I'm

isolating more as time goes on. Also sides have increased as Tx goes on,

especially pain. Lately i've had a real hard time even getting it to an okay

place. Probably part of it has to do with living in the NE. Lots of snow

and cold this winter. I'm looking forward to Spring! (and hair growing back)

take care, gee

[Guest guest]

Peggy,

Thanks for the info, I guess I can understand your rationale when explained

like that, at least your liver is getting a break while on treatment, or di

your coun5t never go down, even while on treatment? so many variations of

the dreaded disease too. Just felt really awful when my wbcs got that low,

perhaps I had just picked up a bug but then my rbcs were down as well as

hct, hgb so maybe just because of all that no energy , and then depression

took a deeper hold on my psyche, ugh!!!

better now though, thank the lord, so did you have a hard time trying to get

disability? sounds like it, thats great that you are still able to work

though, you work full time? Well i'm smiling and know that someday we will

all be better off and maybe even cured from the txs on the horizon, thanks

and hope you all have a great day

or as good as we can hope for with all the side effects we put up with : )

Suzy

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Peggy,

Thanks for the info, I guess I can understand your rationale when explained

like that, at least your liver is getting a break while on treatment, or di

your coun5t never go down, even while on treatment? so many variations of

the dreaded disease too. Just felt really awful when my wbcs got that low,

perhaps I had just picked up a bug but then my rbcs were down as well as

hct, hgb so maybe just because of all that no energy , and then depression

took a deeper hold on my psyche, ugh!!!

better now though, thank the lord, so did you have a hard time trying to get

disability? sounds like it, thats great that you are still able to work

though, you work full time? Well i'm smiling and know that someday we will

all be better off and maybe even cured from the txs on the horizon, thanks

and hope you all have a great day

or as good as we can hope for with all the side effects we put up with : )

Suzy

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

In a message dated 2/11/01 5:07:10 PM !!!First Boot!!!, Mzgee1@... writes:

> YeS it does help, thankyou. Today my neice came to color my hair and she

> saw

> new hair growth...YAY!!!!!! I'm hoping it doesn't grow back gray...that

> would be a real blessing!!! ) love, gee

>

Dear Gee, If it makes you feel any better. Most of my gray didn't come back.

Of course, not all of my hair came back either.......LOL< Anne

[Guest guest]

In a message dated 2/11/01 5:07:10 PM !!!First Boot!!!, Mzgee1@... writes:

> YeS it does help, thankyou. Today my neice came to color my hair and she

> saw

> new hair growth...YAY!!!!!! I'm hoping it doesn't grow back gray...that

> would be a real blessing!!! ) love, gee

>

Dear Gee, If it makes you feel any better. Most of my gray didn't come back.

Of course, not all of my hair came back either.......LOL< Anne