Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Can the person who runs this board please get me unsubscribed? I just spent almost an hour trying to get to the site to unsubscribe - it's the hardest thing I've ever done and cannot get " there " . Or if anybody knows how to get " there " . sheesh I have correct listing - it's on almost each email, but takes you to " one list " of which there are like over 1500. thanx bunches Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Can the person who runs this board please get me unsubscribed? I just spent almost an hour trying to get to the site to unsubscribe - it's the hardest thing I've ever done and cannot get " there " . Or if anybody knows how to get " there " . sheesh I have correct listing - it's on almost each email, but takes you to " one list " of which there are like over 1500. thanx bunches Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Now I'm really getting upset and I'm not supposed to do that being sick. I HAVE this address. I mentioned that when I asked for help, why can't you help me, instead of sending the same address which you cannot " get " to?? When you get to the community it says you are not a member, you have to subscribe again, which I don't want, you can't get unsubscribe. It's NUTS. I am not computer illiterate - I can't get to the site. Please get me off!!! you have my ok to do so!!! Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Now I'm really getting upset and I'm not supposed to do that being sick. I HAVE this address. I mentioned that when I asked for help, why can't you help me, instead of sending the same address which you cannot " get " to?? When you get to the community it says you are not a member, you have to subscribe again, which I don't want, you can't get unsubscribe. It's NUTS. I am not computer illiterate - I can't get to the site. Please get me off!!! you have my ok to do so!!! Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 Please don't get mad at me. I'd like to see if I can help. To unsubscribe, you don't need to go to any website address, you only need to send an email to the unsubscribe email address that they have listed at the bottom of most of the notes. I know how frustrated you must be, so forgive me if I'm giving you info that you've already tried. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2000 Report Share Posted January 16, 2000 Please don't get mad at me. I'd like to see if I can help. To unsubscribe, you don't need to go to any website address, you only need to send an email to the unsubscribe email address that they have listed at the bottom of most of the notes. I know how frustrated you must be, so forgive me if I'm giving you info that you've already tried. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 >From: " byteme " <byteme@...> >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Extra Ribaviran >Date: Sat, 15 Jan 2000 22:19:18 -0400 > >I have some extra Ribaviran that my wife can not use. If anyone is in >need, please let me know. I know some are in trial studies that, in the >past, a person's insurance will not pay for this medication, but, some >trials have people add this after a period of interferon. Thats why I >kept it properly stored, and was able to help a few people in the past. >Marty >I have vials of interferon and I'm in San Diego if someone can use them. It >was a long hard road and after a year I still have HCV at least now I can >go on with my life and say I gave my best shot!I was on the combo therpy >and now going to meetings which is helping a lot. This is great we have >someone to talk to. Pamela ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 >From: SRW1954@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Extra Ribaviran >Date: Mon, 17 Jan 2000 23:28:59 EST > >I have a little bit extra (3 or 4 injections worth) left over of Interferon >in the " pen " format and live in the SF Bay Area (Oakland). Email me at >srw1954@... if you're in need and interested. >--Sara Sara did it work for you? I have not found anything so far but I feel much better without the treatment. pamela at thomas@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 >From: SRW1954@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Extra Ribaviran >Date: Mon, 17 Jan 2000 23:28:59 EST > >I have a little bit extra (3 or 4 injections worth) left over of Interferon >in the " pen " format and live in the SF Bay Area (Oakland). Email me at >srw1954@... if you're in need and interested. >--Sara Sara did it work for you? I have not found anything so far but I feel much better without the treatment. pamela at thomas@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 I have a little bit extra (3 or 4 injections worth) left over of Interferon in the " pen " format and live in the SF Bay Area (Oakland). Email me at srw1954@... if you're in need and interested. --Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 I have a little bit extra (3 or 4 injections worth) left over of Interferon in the " pen " format and live in the SF Bay Area (Oakland). Email me at srw1954@... if you're in need and interested. --Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Dear Pamela, I also live in San Diego, but am currently in San . When I get back in town, we'll have to get together. Perhaps I can go to your support group meetings with you. Love, Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Dear Pamela, I also live in San Diego, but am currently in San . When I get back in town, we'll have to get together. Perhaps I can go to your support group meetings with you. Love, Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Hi Pamela, I'm not yet finished with my combo treatment. Since I'm a genotype 2b my doc says I'll only have to go 24 weeks, not 48. I'm in week #14 now. This is all depending on what my 12-week viral load blood test results show. I should find out later this week or early next week. If I'm " undetectable " or " non-detectable " then it's working and I'll keep going for the full 24 weeks. If it's really low, like 1,000-5,000, I think my doc said that we'd " talk about " whether to continue or not. I'm not sure what level it would have to be for him to say that it's not working and so there's no point in going on. The reason I have some " left over " Interferon is because the pens have about 21 units in each pen, but I only do 18 (3 units x 6 injections every two weeks). That leaves 3 " left over " units in each pen, and I have 6 or 7 pens saved in the fridge so far. I guess that would be enough for 6 or 7 injections, not the 3 or 4 I mentioned in my last note. Some people do 4.5 units in one of their 3 injections each week to use that extra Interferon, but my sides are already kind of rough and I'd rather follow the recommended protocol and not push my limits any more than I already have. I'm on the 1200 Ribaviran, which is the max, even though for my weight I'm borderline with opting to take the next lower dose of that. I don't think most doctors would recommend taking the extra Interferon. Take care, Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Hi Pamela, I'm not yet finished with my combo treatment. Since I'm a genotype 2b my doc says I'll only have to go 24 weeks, not 48. I'm in week #14 now. This is all depending on what my 12-week viral load blood test results show. I should find out later this week or early next week. If I'm " undetectable " or " non-detectable " then it's working and I'll keep going for the full 24 weeks. If it's really low, like 1,000-5,000, I think my doc said that we'd " talk about " whether to continue or not. I'm not sure what level it would have to be for him to say that it's not working and so there's no point in going on. The reason I have some " left over " Interferon is because the pens have about 21 units in each pen, but I only do 18 (3 units x 6 injections every two weeks). That leaves 3 " left over " units in each pen, and I have 6 or 7 pens saved in the fridge so far. I guess that would be enough for 6 or 7 injections, not the 3 or 4 I mentioned in my last note. Some people do 4.5 units in one of their 3 injections each week to use that extra Interferon, but my sides are already kind of rough and I'd rather follow the recommended protocol and not push my limits any more than I already have. I'm on the 1200 Ribaviran, which is the max, even though for my weight I'm borderline with opting to take the next lower dose of that. I don't think most doctors would recommend taking the extra Interferon. Take care, Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 >From: goez@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Extra Ribaviran >Date: Tue, 18 Jan 2000 08:01:45 EST > >Dear Pamela, > I also live in San Diego, but am currently in San . When I get back >in >town, we'll have to get together. Perhaps I can go to your support group >meetings with you. >Love, >Bren Hey Bren, that sounds great. The meetings are the 4th wednesday of every month in chula vista. That really would be nice to have someone else to go with.See you when you get back. Pamela thomas@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 >From: goez@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Extra Ribaviran >Date: Tue, 18 Jan 2000 08:01:45 EST > >Dear Pamela, > I also live in San Diego, but am currently in San . When I get back >in >town, we'll have to get together. Perhaps I can go to your support group >meetings with you. >Love, >Bren Hey Bren, that sounds great. The meetings are the 4th wednesday of every month in chula vista. That really would be nice to have someone else to go with.See you when you get back. Pamela thomas@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 >From: goez@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Extra Ribaviran >Date: Tue, 18 Jan 2000 08:01:45 EST > >Dear Pamela, > I also live in San Diego, but am currently in San . When I get back >in >town, we'll have to get together. Perhaps I can go to your support group >meetings with you. >Love, >Bren Hey Bren, that sounds great. The meetings are the 4th wednesday of every month in chula vista. That really would be nice to have someone else to go with.See you when you get back. Pamela thomas@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 >From: goez@... >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Re: Extra Ribaviran >Date: Tue, 18 Jan 2000 08:01:45 EST > >Dear Pamela, > I also live in San Diego, but am currently in San . When I get back >in >town, we'll have to get together. Perhaps I can go to your support group >meetings with you. >Love, >Bren Hey Bren, that sounds great. The meetings are the 4th wednesday of every month in chula vista. That really would be nice to have someone else to go with.See you when you get back. Pamela thomas@... ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 SRW1954@... wrote: > From: SRW1954@... > > Hi Pamela, > I'm not yet finished with my combo treatment. Since I'm a genotype 2b my doc > says I'll only have to go 24 weeks, not 48. I'm in week #14 now. This is > all depending on what my 12-week viral load blood test results show. I > should find out later this week or early next week. If I'm " undetectable " or > " non-detectable " then it's working and I'll keep going for the full 24 weeks. > If it's really low, like 1,000-5,000, I think my doc said that we'd " talk > about " whether to continue or not. > Sara > henry replies : hmmmm if you dont go undetectable in the first 12 weeks keep trying ,,your chances are a bit less that you will go undetectable with a sustained response,, but ,, if you quit at 12 weeks becouse you are not undetcable then your chances of getting a undetactable sustained responce are none ... some times it takes some people a bit longer than 12 weeks for there imune system to kick in enuf to go un detectable , your best shot at it is your first one .talk your dr into staying on the combo ,, for some ppl the ifn or the combo is a realy rough ride , but , the dragon rarly shows mercy . what ever it takes to kill the dragon henry in bueatyfull down town ellisville fla . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 SRW1954@... wrote: > From: SRW1954@... > > Hi Pamela, > I'm not yet finished with my combo treatment. Since I'm a genotype 2b my doc > says I'll only have to go 24 weeks, not 48. I'm in week #14 now. This is > all depending on what my 12-week viral load blood test results show. I > should find out later this week or early next week. If I'm " undetectable " or > " non-detectable " then it's working and I'll keep going for the full 24 weeks. > If it's really low, like 1,000-5,000, I think my doc said that we'd " talk > about " whether to continue or not. > Sara > henry replies : hmmmm if you dont go undetectable in the first 12 weeks keep trying ,,your chances are a bit less that you will go undetectable with a sustained response,, but ,, if you quit at 12 weeks becouse you are not undetcable then your chances of getting a undetactable sustained responce are none ... some times it takes some people a bit longer than 12 weeks for there imune system to kick in enuf to go un detectable , your best shot at it is your first one .talk your dr into staying on the combo ,, for some ppl the ifn or the combo is a realy rough ride , but , the dragon rarly shows mercy . what ever it takes to kill the dragon henry in bueatyfull down town ellisville fla . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 SRW1954@... wrote: > From: SRW1954@... > > Hi Pamela, > I'm not yet finished with my combo treatment. Since I'm a genotype 2b my doc > says I'll only have to go 24 weeks, not 48. I'm in week #14 now. This is > all depending on what my 12-week viral load blood test results show. I > should find out later this week or early next week. If I'm " undetectable " or > " non-detectable " then it's working and I'll keep going for the full 24 weeks. > If it's really low, like 1,000-5,000, I think my doc said that we'd " talk > about " whether to continue or not. > Sara > henry replies : hmmmm if you dont go undetectable in the first 12 weeks keep trying ,,your chances are a bit less that you will go undetectable with a sustained response,, but ,, if you quit at 12 weeks becouse you are not undetcable then your chances of getting a undetactable sustained responce are none ... some times it takes some people a bit longer than 12 weeks for there imune system to kick in enuf to go un detectable , your best shot at it is your first one .talk your dr into staying on the combo ,, for some ppl the ifn or the combo is a realy rough ride , but , the dragon rarly shows mercy . what ever it takes to kill the dragon henry in bueatyfull down town ellisville fla . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 SRW1954@... wrote: > From: SRW1954@... > > Hi Pamela, > I'm not yet finished with my combo treatment. Since I'm a genotype 2b my doc > says I'll only have to go 24 weeks, not 48. I'm in week #14 now. This is > all depending on what my 12-week viral load blood test results show. I > should find out later this week or early next week. If I'm " undetectable " or > " non-detectable " then it's working and I'll keep going for the full 24 weeks. > If it's really low, like 1,000-5,000, I think my doc said that we'd " talk > about " whether to continue or not. > Sara > henry replies : hmmmm if you dont go undetectable in the first 12 weeks keep trying ,,your chances are a bit less that you will go undetectable with a sustained response,, but ,, if you quit at 12 weeks becouse you are not undetcable then your chances of getting a undetactable sustained responce are none ... some times it takes some people a bit longer than 12 weeks for there imune system to kick in enuf to go un detectable , your best shot at it is your first one .talk your dr into staying on the combo ,, for some ppl the ifn or the combo is a realy rough ride , but , the dragon rarly shows mercy . what ever it takes to kill the dragon henry in bueatyfull down town ellisville fla . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 My GI Dr never told me what genotype I have. How do you find out? I was not at all impressed with my GI doc anyway and for further treatment I will look for a new doc. Can anybody reccommend a good Hep Dr in Illinois? I am in Central IL. Thanks, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 My GI Dr never told me what genotype I have. How do you find out? I was not at all impressed with my GI doc anyway and for further treatment I will look for a new doc. Can anybody reccommend a good Hep Dr in Illinois? I am in Central IL. Thanks, Amy Quote Link to comment Share on other sites More sharing options...
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