Re: Hello--I'm new

[Guest guest]

Welcome Tammie,

Wish you didn't have to be here, but since you are, you couldn't have come to

a better place. Feel free to vent at any time. The great thing about this

group is you get to vent to people who understand what you are going through.

We are already wearing our T-shirts. This, hopefully, will help you not to

vent to people who don't have a clue. And don't want to.

Good luck and good health

Anne

[Guest guest]

Welcome to our group, Tammie!

Post away and ask all the questions you want. Without this group of

wonderful people I think I would have lost my mind.

Yeah, doctors sorta ignored hep c until it became a major epidemic. Now

there are still some doctors that think the same, but most are becoming

more aware.

I'm off to work so can't write more....just wanted to welcome you to the

group and let you know that anything you want to talk about is fine with

us....you are safe here to share your fears, angers and frustrations

over this dragon.

Tatezi

tammster62@... wrote:

> I just thought that I would say hello and that I am lurking around in

> here LOL. Some of the stuff that I have read on here has been way

> over my head and I didn't understand at all!! I hope that ya'll don't

> mind some very basic questions. Let me know the rules about posting

> on here if there are any.

> I found out for sure that I have HCV 2 years ago, but about 10 years

> ago, I got a report back after I gave blood that said I had about a

> 30% chance of having it. I just recently went to a doctor that seemed

> to think anything about it. It was completely ignored by several drs

> that I went to. Now they are talking about a liver biopsy and a year

> long treatment! I didn't even know that there was a treatment. This

> is something that I know nothing about, but the treatments sure do

> sound bad.

> So, like I say, I am lurking and my come out with some basic

> questions if that is ok. Thanks

> <><TammieD><>

[Guest guest]

Tammie:

Welcome to the group!

My husband has Hep C. Was diagnosed in September and had a liver biopsy

in October. All things considered, the doctor did not think he

absolutely had to have treatment right away. He sees the doc again in

August.

I would encourage you to find out what information you can on the

internet. But a ......strong...... word of warning....... don't let it

scare you!!! Believe me, I speak from experience! This is a chronic

disease, something we have to learn to live with, but please don't think

the worst!

I also believe that there is more hope on the horizon, so to speak,

meaning that as time goes on, better treatment and ways of handling this

will be developed.

Here's a link to one website that was interesting:

http://nationalhepatitis-c.org/

Take care!

Elin

[Guest guest]

It really hasn't scared me at all. I just found a dr that even acts

like there is anything to it. I went two years ago to a GI and all he

did was a blood test, ask me if I did drugs (and acted like he didn't

believe me when I said no) and told me to come back next year for

another blood test. I was on medicaid at the time. Now I have private

insurance and they are falling all over themselves trying to do tests

and start treatment. It is another dr so it may be that he is more

concerned, not that I have insurance. I try very hard not to be

cynical.

Anyway, the only reason that I am at this dr is because I am trying

to have a breast reduction and I was sent to him first. I didn't

realize that the hepatitis could cause complications. I have had an

ultrasound of my liver and blood tests done. I don't go back until

July 5 for the results, so I assume that everything is ok until then.

Really it is just now sinking in that this is a terrible disease. I

have blown it off for about 10 years now. I am having to adjust to

this.

The dr is talking about putting me on interferon and ribavirin in

about 6 months. Are these medications as terrible as they sound? The

idea of taking them when I am having no problems right now goes

against the grain. I suppose that I should take it before problems do

occur. I am just a little confused about it all.

Well, I have rambled long enough in this post. I hope to get some

good info from everyone here. Thanks for listening.

<><TammieD><>

>

> I would encourage you to find out what information you can on the

> internet. But a ......strong...... word of warning....... don't

let it

> scare you!!!

[Guest guest]

t

DEAR TammieD I would like to help you what ever your looking for that is

how I started. Any qustion that you think is silly dont!! I COULD OF

WROTE THE BOOK ON SILLY.(HA HA ) That is the only way we learn.They told

me when I went to the hospital for simple gallblader operation.that my

platetes were way bellow normal well 15 days later yes 15 days they

removed my gallblader and told

me I had HEP-C with liver with damage.

The first thing I said was what hell was this hep -c? IT is so true that

we dont worry about this stuff until it hits home

you never think this could to me but it did So after I had my self

pitty.I chose to be positive. and start the reb combo I will tell you it

is rough I WIL NOT SUGAR COAT

THIS I LIKE TO SHOOT FROM THE HIP WITH THIS MONSTER THAT HURT SO MANY

GOOD PEOPLE .but rember you can stop this with positive thinking .I

tested the water by telling my co workers and my friends.that way you

know who are

real friends.I refuse to hidding my head

in the sand like the poor people with aids did.sorry that I got on a

roll but i like to be up front with new people I talk to I just want

you to know that ANYTHING I MEEN ANYTHING YOU WANT TO ASK ME I WILL

ANSWER !!! We are in this boat together .

I hope to hear from you.

GOOD LUCK!!!!

WAYNE M .

I

[Guest guest]

Hi Tammie,

I'm glad you decided to say hello and let us know

you are out there! There are NO DUMB QUESTIONS!!!!

Ask anything you like, someone here is bound to have

some sort of an answer for you, or at least an

opinion, lol. Rules? Maybe there are, but I don't

really recall. All I could say along that line is

please no attacking and criticizing people, but that

doesn't seem to be a problem with this group (unlike

some others I know of!) We may not always agree, but

we can respect each others opinions. As far as I'm

concerned, the more view points the better! As for

treatment, it effects everyone differently. You will

hear more often about bad side effects, mainly because

the people who are having a hard time need more

support, and sometimes just need to talk about it with

others who have been through it too. The people who

sail through it with little or no side effects just

aren't as vocal usually. Don't let the idea of

treatment scare you. But first find out if you even

need it! A biopsy will tell you that. There are a few

people with such a mild form of the disease that they

really don't need treatment unless they are having a

lot of symptoms from the HCV. Some people never have

any liver damage at all. Others... well, there is no

way to know where you stand without the biopsy. Lab

tests really don't tell all that you need to know.

Also, start now to get and keep copies of all your lab

results. This can save you a lot of headaches down

the road. Good luck, and don't be afraid to ask

ANYTHING. We were all where you are now at one time.

Claudine

__________________________________________________

[Guest guest]

In a message dated 6/12/2001 4:01:47 PM Eastern Daylight Time,

tammster62@... writes:

> The dr is talking about putting me on interferon and ribavirin in

> about 6 months. Are these medications as terrible as they sound? The

> idea of taking them when I am having no problems right now goes

> against the grain. I suppose that I should take it before problems do

> occur. I am just a little confused about it all.

> Well, I have rambled long enough in this post. I hope to get some

> good info from everyone here. Thanks for listening.

>

Dear Tammie,

I would would make a decision after you have had a liver biopsy and a pcs

test done. Bear in mind, that the longer you wait to treat the disease the

longer the virus has to work on your body. However, there have been a few

people who's immune system has kicked the little suckers out. Don't do

anything rash, and do your homework.

I know how you feel about the doc that asked you if you did drugs. My

husband is retired Navy. When we were living in Clinton, N.C., I went to

Womack Army HOspital. I already knew that I had HCV. I'd been diagnosed in

1993. I asked for treatment. I got no liver biopsy, no pcs, and no G.I.

doc. All I got was a smart mouthed Army captain who wondered aloud why the

military was buying needles for junkies and dumped my injections in my lap.

Good thing I knew how to do a subcutaneous injection. WE MOVED>>>>>>>>>

Back to the Navy, thank you very much.........where I have gotten wonderful

care. It's not their fault that I'm a non-responder. OF course, it's not

mine either. I got HCV from a paranoid lap patient who jabbed me with a

needle. That was in 1985. Back then, there was no test for HepC. But

please believe me when I tell you that I've been tested for HIV so many times

that I was getting needle paranoia. SHIABO!!!!!!!!! Hang in there, Anne

[Guest guest]

In a message dated 6/12/2001 4:01:47 PM Eastern Daylight Time,

tammster62@... writes:

> The dr is talking about putting me on interferon and ribavirin in

> about 6 months. Are these medications as terrible as they sound? The

> idea of taking them when I am having no problems right now goes

> against the grain. I suppose that I should take it before problems do

> occur. I am just a little confused about it all.

> Well, I have rambled long enough in this post. I hope to get some

> good info from everyone here. Thanks for listening.

>

Dear Tammie,

I would would make a decision after you have had a liver biopsy and a pcs

test done. Bear in mind, that the longer you wait to treat the disease the

longer the virus has to work on your body. However, there have been a few

people who's immune system has kicked the little suckers out. Don't do

anything rash, and do your homework.

I know how you feel about the doc that asked you if you did drugs. My

husband is retired Navy. When we were living in Clinton, N.C., I went to

Womack Army HOspital. I already knew that I had HCV. I'd been diagnosed in

1993. I asked for treatment. I got no liver biopsy, no pcs, and no G.I.

doc. All I got was a smart mouthed Army captain who wondered aloud why the

military was buying needles for junkies and dumped my injections in my lap.

Good thing I knew how to do a subcutaneous injection. WE MOVED>>>>>>>>>

Back to the Navy, thank you very much.........where I have gotten wonderful

care. It's not their fault that I'm a non-responder. OF course, it's not

mine either. I got HCV from a paranoid lap patient who jabbed me with a

needle. That was in 1985. Back then, there was no test for HepC. But

please believe me when I tell you that I've been tested for HIV so many times

that I was getting needle paranoia. SHIABO!!!!!!!!! Hang in there, Anne

[Guest guest]

In a message dated 6/12/2001 4:48:26 PM Eastern Daylight Time,

tazzee28@... writes:

> that ANYTHING I MEEN ANYTHING YOU WANT TO ASK ME I WILL

>

Well said, Wayne. Ditto. Anne

[Guest guest]

In a message dated 6/12/2001 4:48:26 PM Eastern Daylight Time,

tazzee28@... writes:

> that ANYTHING I MEEN ANYTHING YOU WANT TO ASK ME I WILL

>

Well said, Wayne. Ditto. Anne

[Guest guest]

Tatezi,

I noticed you mentioned to stay away from Tylenol.

I was told Tylenol is okay within daily limits, but to avoid Advil.

Advil works best for me, but I take Tylenol instead.

What do you think?

Your friend,

Gene

[Guest guest]

Tatezi,

I noticed you mentioned to stay away from Tylenol.

I was told Tylenol is okay within daily limits, but to avoid Advil.

Advil works best for me, but I take Tylenol instead.

What do you think?

Your friend,

Gene

[Guest guest]

Welcome to the group you will find a lot of nice

helpful people here who will become your friends and

lifeline.

Sorry all I have not been posting much I have been

kind of out of it. But I do read the posts and I want

to congratulate everyone on their succeses and to tell

all the others Keep on Truckin " our time will

come...........Smile, Take Care.......Connie

__________________________________________________

[Guest guest]

Welcome to the group you will find a lot of nice

helpful people here who will become your friends and

lifeline.

Sorry all I have not been posting much I have been

kind of out of it. But I do read the posts and I want

to congratulate everyone on their succeses and to tell

all the others Keep on Truckin " our time will

come...........Smile, Take Care.......Connie

__________________________________________________

[Guest guest]

Don't worry about the treatment until you need to. Some people breeze

right through treatment while others get lots of side effects. My worst

side effects have been a period of extreme crankiness and a blown

thyroid...and a lot of bruises on my tummy where I do my shots.

But do get all your tests done...especially the liver biopsy. The only

way you will know if you have liver damage is the biopsy. And be sure to

find out your genotype because some genotypes respond very well to

treatment...it's the one's that have a lower success rate but we have

lots of genotype 1's on the list that have responded to treatment.

I'm a 1b and haven't gone into remission after 10 months of tx, but my

viral load has dropped considerably. But you learn to live with this

dragon. You stop doing things that are hard on the liver (ofcouse

drinking is a definite no no....and tylenol). Remember that everything

you put in your body has to be processed by the liver.

And you can go traditional treatment, nontraditional (oriental, herbs,

etc.) or a combination of the two....you'll find folks doing any of the

above on this list. I'm on combo tx but also do traditional chinese

medicine.

But come to us with any questions. I remember when I started going

through the extreme crankiness I thought I was losing my mind....until I

asked someone on the list and found out it was a side to tx. Someone is

always here for you.

Hang in there and don't worry until you have all the facts. Research but

don't let anything frighten you because each person is different and

responds differently.

Tatezi

tammster62@... wrote:

> It really hasn't scared me at all. I just found a dr that even acts

> like there is anything to it. I went two years ago to a GI and all he

> did was a blood test, ask me if I did drugs (and acted like he didn't

> believe me when I said no) and told me to come back next year for

> another blood test. I was on medicaid at the time. Now I have private

> insurance and they are falling all over themselves trying to do tests

> and start treatment. It is another dr so it may be that he is more

> concerned, not that I have insurance. I try very hard not to be

> cynical.

> Anyway, the only reason that I am at this dr is because I am trying

> to have a breast reduction and I was sent to him first. I didn't

> realize that the hepatitis could cause complications. I have had an

> ultrasound of my liver and blood tests done. I don't go back until

> July 5 for the results, so I assume that everything is ok until then.

> Really it is just now sinking in that this is a terrible disease. I

> have blown it off for about 10 years now. I am having to adjust to

> this.

> The dr is talking about putting me on interferon and ribavirin in

> about 6 months. Are these medications as terrible as they sound? The

> idea of taking them when I am having no problems right now goes

> against the grain. I suppose that I should take it before problems do

> occur. I am just a little confused about it all.

> Well, I have rambled long enough in this post. I hope to get some

> good info from everyone here. Thanks for listening.

> <><TammieD><>

>

>

>

>

>

> >

> > I would encourage you to find out what information you can on the

> > internet. But a ......strong...... word of warning....... don't

> let it

> > scare you!!!

>

>

>

[Guest guest]

I know they always recommend tylenol. But it's been known for years that

actamenocin...however it's spelled....that when drinking or the morning

after one shouldn't take tylenol because of its negative effect on the

liver. There as been a lot of press lately about the effect of

actamenocin (I need to learn how to spell that word but it's what is in

tylenol).

I live in a haze of brain fog and can't cite sources ... but I'm sure

someone here on the list can pass on some of the articles.

Tatezi

GWhel@... wrote:

> Tatezi,

>

> I noticed you mentioned to stay away from Tylenol.

>

> I was told Tylenol is okay within daily limits, but to avoid Advil.

>

> Advil works best for me, but I take Tylenol instead.

>

> What do you think?

>

> Your friend,

> Gene

>

>

[Guest guest]

I know they always recommend tylenol. But it's been known for years that

actamenocin...however it's spelled....that when drinking or the morning

after one shouldn't take tylenol because of its negative effect on the

liver. There as been a lot of press lately about the effect of

actamenocin (I need to learn how to spell that word but it's what is in

tylenol).

I live in a haze of brain fog and can't cite sources ... but I'm sure

someone here on the list can pass on some of the articles.

Tatezi

GWhel@... wrote:

> Tatezi,

>

> I noticed you mentioned to stay away from Tylenol.

>

> I was told Tylenol is okay within daily limits, but to avoid Advil.

>

> Advil works best for me, but I take Tylenol instead.

>

> What do you think?

>

> Your friend,

> Gene

>

>

[Guest guest]

Tammie,

WELCOME and Lurk all you want! basic questions are good how else are we to

learn?

there is a wealth of info here and some of the articles are way above the

head but just weed out the information you can and you will learn a lot

and people here are very nic eand patient. I know cuz I have been here for

over a yeaar now and love it, lots of support available.

take care, treatment was no fun and I caught myself sayin i would'nt do it

again if i had the chance but I' m not so sure. Have 3 more months to go for

the pcr so will know better then

Suzy

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Tammie,

WELCOME and Lurk all you want! basic questions are good how else are we to

learn?

there is a wealth of info here and some of the articles are way above the

head but just weed out the information you can and you will learn a lot

and people here are very nic eand patient. I know cuz I have been here for

over a yeaar now and love it, lots of support available.

take care, treatment was no fun and I caught myself sayin i would'nt do it

again if i had the chance but I' m not so sure. Have 3 more months to go for

the pcr so will know better then

Suzy

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Wayne! Nice to meet you.

<<I refuse to hidding my head

in the sand like the poor people with aids did.sorry that I got on a

roll but i like to be up front with new people >>

I hear that. Because the gays and druggies were the first to get hit with

hiv, the public didn't care. They weren't gay. They were druggies. They

figured they just let them die out.

Not until famous actors started getting hiv, and it started hitting the

hetersexuals did people start to notice the epidemic.

I hope we don't make the same mistaks with hep c. Thats' why I downplay the

drug part on my end, not deny it but don't volunteer it. I want people to

know, to get tested.

If I can help in anyway, just ask

alley

[Guest guest]

Wayne! Nice to meet you.

<<I refuse to hidding my head

in the sand like the poor people with aids did.sorry that I got on a

roll but i like to be up front with new people >>

I hear that. Because the gays and druggies were the first to get hit with

hiv, the public didn't care. They weren't gay. They were druggies. They

figured they just let them die out.

Not until famous actors started getting hiv, and it started hitting the

hetersexuals did people start to notice the epidemic.

I hope we don't make the same mistaks with hep c. Thats' why I downplay the

drug part on my end, not deny it but don't volunteer it. I want people to

know, to get tested.

If I can help in anyway, just ask

alley

[Guest guest]

DEAR ALLEY /PAT Thank you for taking

the time too e-mail me back.Its good to here from people that understand

our setback .I look at this like one more block out of our HBandHC

WALL!! as I had said this wall has to come down .it will come down

sooner or latter (but it Will come down) just think if they found a

cure for for HBorHC we would be able to focus on what cure for the HB or

HC they did find.it may sound a little far feched but if we stand

together it will happen. but divided we will fall. OH NO !!

IAM USING QUOTES . but you know where iam comeing from.(by the way

thanks for helping with the bricks my back was getting sore. ha ha

WAYNE M

[Guest guest]

DEAR ALLEY /PAT Thank you for taking

the time too e-mail me back.Its good to here from people that understand

our setback .I look at this like one more block out of our HBandHC

WALL!! as I had said this wall has to come down .it will come down

sooner or latter (but it Will come down) just think if they found a

cure for for HBorHC we would be able to focus on what cure for the HB or

HC they did find.it may sound a little far feched but if we stand

together it will happen. but divided we will fall. OH NO !!

IAM USING QUOTES . but you know where iam comeing from.(by the way

thanks for helping with the bricks my back was getting sore. ha ha

WAYNE M

[Guest guest]

Hi , I have an 11 year old. Change is difficult for our kids. A suggestion about the new school: Take him to see the school building and let him know this will be his new school. Next trip get out and walk around the grounds of the school, look in the windows to see if you can see classrooms. Take a picture of the school and put it on a bulletin board in his room and label it new school. You will be surprised how this can help him make the transition. I did that when my son had to change locations for ESY. I always take him to see the new location and tell him he will be attending there. My son is going to middle school in Sept. I told him he is a teenager now (showed him howtall he had grown and was almost as tall as I am) and he will leave his school and go to another school. We went

by and looked at the building. Will make a few more trips before he starts in Sept. It is a brand new school and they will have an open house. I will also take him to the open house so he can see inside the school. I will take a picture and put it on his bulletin board so he can see it everyday and become familiar with it. Good luck. Chelly

[Guest guest]

When my son started middle school last September

they made a separate day before school started for him to get a tour, practice

his locker and meet his staff. It helped a lot.

Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Hawkins

Sent: Thursday, June 29, 2006

10:46 PM

Autism and Aspergers Treatment

Subject: re:

Hello--I'm new

Hi ,

I have an 11 year old. Change is difficult for our kids. A

suggestion about the new school: Take him to see the school building and

let him know this will be his new school. Next trip get out and walk around the

grounds of the school, look in the windows to see if you can see classrooms.

Take a picture of the school and put it on a bulletin board in his room and

label it new school. You will be surprised how this can help him

make the transition.

I did that when my son had to change locations for ESY. I always

take him to see the new location and tell him he will be attending there.

My son is going to middle school in Sept. I told him he is a

teenager now (showed him howtall he had grown and was almost as tall as I

am) and he will leave his school and go to another school. We went by

and looked at the building. Will make a few more trips before he starts

in Sept. It is a brand new school and they will have an open house.

I will also take him to the open house so he can see inside the school. I will

take a picture and put it on his bulletin board so he can see it everyday and

become familiar with it.

Good luck.

Chelly