Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 Collette: I have to agree with Kat. I searched for a different dr. after having only an orthopedist since childhood, who did 2 surgeries and prescribed an antique brace that never worked for me. When I found my physiatrist, he said he wished he'd gotten to me before I had the surgeries, that maybe they wouldn't have been necessary. I am glad your neuro knows CMT and would sure like to know what his take on that is. Recovery from surgery is difficult. You have your disease under management and sound happy. My neuro and physiatrist shake their heads when I tell them I fall sometimes - they're worried something more serious might happen to me. The orthopedist may keep you standing for a while, but you are right, at what cost? And CMT is progressive anyway, slowly. Let us know what happens, OK? Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 WOW! I feel really a lot better with just the three of you answering me back in such short time. You are proof of what my therapist tells me that I should do. He says that what I do is try to please everyone but me. You all took the path of pleasing me. I am happy with my cart I get around just fine. I even LOL when I speed around those in the mall. My own form of fun I guess. But even if I was to be up and mobile again, the vision in my head is one that includes increased pain, slow methodical movements, one where I can't enjoy the surroundings, but I am moving on my own two feet. So which is better? Wind through my hair! I just can't see the benefit of surgery, at least not now. and I guess I was a little bit afraid to say it, cause I was the only one who was on my side. Now that I know it doesn't sound crazy to not mind to be in the cart. I am fine with things. boy I love you guys....Thanks so much of bunches of loves.... Colette Zyrkowski -----Original Message----- From: mel2mars@... [mailto:mel2mars@...] Sent: Friday, November 16, 2001 12:15 PM Subject: [] Collette and surgery Collette: I have to agree with Kat. I searched for a different dr. after having only an orthopedist since childhood, who did 2 surgeries and prescribed an antique brace that never worked for me. When I found my physiatrist, he said he wished he'd gotten to me before I had the surgeries, that maybe they wouldn't have been necessary. I am glad your neuro knows CMT and would sure like to know what his take on that is. Recovery from surgery is difficult. You have your disease under management and sound happy. My neuro and physiatrist shake their heads when I tell them I fall sometimes - they're worried something more serious might happen to me. The orthopedist may keep you standing for a while, but you are right, at what cost? And CMT is progressive anyway, slowly. Let us know what happens, OK? Melody Foundation: http://www..org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Colette, I haven't been very active on the CMT boards lately but I couldn't help but respond to your post. When I first read your initial post on your history with knee problems and surgery, my gut feeling was why continue to go through that torture? There comes a point where we make choices about how we can LIVE a full productive life on our own terms, not muddle through on someone else's terms. If a mobility aid like a cart or wheelchair frees you up to live life to it's fullest, then I have one thing to say - You go girl! Better to wheel through life with a huge smile on your face than struggle in pain to stay on your feet. Your body knows best - listen to it and listen to your heart. Ruth Warren Raleigh, NC > WOW! > > I feel really a lot better with just the three of you answering me back in > such short time. You are proof of what my therapist tells me that I should > do. He says that what I do is try to please everyone but me. You all took > the path of pleasing me. I am happy with my cart I get around just fine. I > even LOL when I speed around those in the mall. My own form of fun I > guess. But even if I was to be up and mobile again, the vision in my head > is one that includes increased pain, slow methodical movements, one where I > can't enjoy the surroundings, but I am moving on my own two feet. So which > is better? Wind through my hair! I just can't see the benefit of surgery, > at least not now. and I guess I was a little bit afraid to say it, cause I > was the only one who was on my side. Now that I know it doesn't sound crazy > to not mind to be in the cart. I am fine with things. > > boy I love you guys....Thanks so much of bunches of loves.... > > Colette Zyrkowski > > > > -----Original Message----- > From: mel2mars@m... [mailto:mel2mars@m...] > Sent: Friday, November 16, 2001 12:15 PM > @y... > Subject: [] Collette and surgery > > > Collette: > I have to agree with Kat. I searched for a different dr. after > having only an orthopedist since childhood, who did 2 surgeries and > prescribed an antique brace that never worked for me. When I found > my physiatrist, he said he wished he'd gotten to me before I had the > surgeries, that maybe they wouldn't have been necessary. > > I am glad your neuro knows CMT and would sure like to know what his > take on that is. Recovery from surgery is difficult. You have your > disease under management and sound happy. My neuro and physiatrist > shake their heads when I tell them I fall sometimes - they're worried > something more serious might happen to me. The orthopedist may keep > you standing for a while, but you are right, at what cost? And CMT > is progressive anyway, slowly. > > Let us know what happens, OK? > Melody > > > > Foundation: http://www..org > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Hi Collette! I'm new to the CMT Board, I tried to send a message yesterday but I was not sure what happened, anyway I share Ruths feelings on surgery If you are happy with your cart you go girl! Dan (My Husband) has had many feet and ankle surgeries. The Doctors would like to do one more but one of our doctors mentioned CMT bones don't always mend as well as " normal " (sorry I couldn't think of a better term) bones. We decided that surgery was not in Dan's best interest. Dan does not have a cart yet but we are looking into it. Cost is a factor for us. Keep the wind running through your hair!! Terri Quote Link to comment Share on other sites More sharing options...
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