Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 This is a really good website for any and all who are thinking about or going through the disability circus. http://www.disabilitysecrets.com/ social security grr I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritated and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritated and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Your right its NOT from being overweight! You know what they are doing? Those doctors? they are trying to shuffle the blame onto you, because they dont know how to fix you! Its just like the line " Get more exercise! " I'm so sick of that too. I have a bad occciput, bad atlas, neuralgia in my face and I am exactly the right weight! People and doctors Do not understand you cant work. I understand tho, cause neither can I! Well I am not overweight, but i smoke, so i always here that one. Quit smoking. Puff puff. But maybe if i could Move around, I wouldnt smoke so much! I have a good chiropracter. Why do i think he is good? he CARES. He's good because he is upfront and honest. He is down to earth and will tell me right out. Now get this... He says EXERCISING WILL NOT HELP YOU! Imagine that? Imagine a doctor that tells the truth Like that! Oh once i went to a chiro who used this gun thingy. My chiro told me it was a crock of sh-t. he told me to tell the guy not to bother using it again on me! But I have NO Regular medical doc, that helps much at all. I go in crawling practically to the medical doctor because of a neck, and all he wants to do is check WOMEN things!!!My boyfriend looked at him and said. " No!!! its her neck, you are aiming way to low! I thought that was pretty fast of dave to come out with that! cindy > > Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritated and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. > > I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? > > I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. > > It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! > > Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > > > > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Your right its NOT from being overweight! You know what they are doing? Those doctors? they are trying to shuffle the blame onto you, because they dont know how to fix you! Its just like the line " Get more exercise! " I'm so sick of that too. I have a bad occciput, bad atlas, neuralgia in my face and I am exactly the right weight! People and doctors Do not understand you cant work. I understand tho, cause neither can I! Well I am not overweight, but i smoke, so i always here that one. Quit smoking. Puff puff. But maybe if i could Move around, I wouldnt smoke so much! I have a good chiropracter. Why do i think he is good? he CARES. He's good because he is upfront and honest. He is down to earth and will tell me right out. Now get this... He says EXERCISING WILL NOT HELP YOU! Imagine that? Imagine a doctor that tells the truth Like that! Oh once i went to a chiro who used this gun thingy. My chiro told me it was a crock of sh-t. he told me to tell the guy not to bother using it again on me! But I have NO Regular medical doc, that helps much at all. I go in crawling practically to the medical doctor because of a neck, and all he wants to do is check WOMEN things!!!My boyfriend looked at him and said. " No!!! its her neck, you are aiming way to low! I thought that was pretty fast of dave to come out with that! cindy > > Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritated and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. > > I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? > > I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. > > It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! > > Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > > > > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 hi grasshopper, i totally agree, i have been 125 lbs and 225 lbs, and it did not make a difference with my knee, lumbar, neck, or head pain. i am in washington but my pain dr is in vancouver so that is probably too far for you to go. i have heard from others seattle is hard to even get in to see a doctor let alone find a good one. even down here it has taken me 5 years to put together a good team for me. i am too stubborn to let the system win, they make it impossibly hard so people will give up and quit. i also was homeless part of this time. i understand it is so very hard to fight the pain and the system and survive at the same time but what other choice is there. big gentle hugs and i wish i could be of more help, wyld From: grasshopperx_10 <woody1014@...> Subject: Re: social security grr neck pain Date: Sunday, February 21, 2010, 8:27 AM  Your right its NOT from being overweight! You know what they are doing? Those doctors? they are trying to shuffle the blame onto you, because they dont know how to fix you! Its just like the line " Get more exercise! " I'm so sick of that too. I have a bad occciput, bad atlas, neuralgia in my face and I am exactly the right weight! People and doctors Do not understand you cant work. I understand tho, cause neither can I! Well I am not overweight, but i smoke, so i always here that one. Quit smoking. Puff puff. But maybe if i could Move around, I wouldnt smoke so much! I have a good chiropracter. Why do i think he is good? he CARES. He's good because he is upfront and honest. He is down to earth and will tell me right out. Now get this... He says EXERCISING WILL NOT HELP YOU! Imagine that? Imagine a doctor that tells the truth Like that! Oh once i went to a chiro who used this gun thingy. My chiro told me it was a crock of sh-t. he told me to tell the guy not to bother using it again on me! But I have NO Regular medical doc, that helps much at all. I go in crawling practically to the medical doctor because of a neck, and all he wants to do is check WOMEN things!!!My boyfriend looked at him and said. " No!!! its her neck, you are aiming way to low! I thought that was pretty fast of dave to come out with that! cindy > > Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritate d and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. > > I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? > > I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. > > It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! > > Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > > > > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 hi grasshopper, i totally agree, i have been 125 lbs and 225 lbs, and it did not make a difference with my knee, lumbar, neck, or head pain. i am in washington but my pain dr is in vancouver so that is probably too far for you to go. i have heard from others seattle is hard to even get in to see a doctor let alone find a good one. even down here it has taken me 5 years to put together a good team for me. i am too stubborn to let the system win, they make it impossibly hard so people will give up and quit. i also was homeless part of this time. i understand it is so very hard to fight the pain and the system and survive at the same time but what other choice is there. big gentle hugs and i wish i could be of more help, wyld From: grasshopperx_10 <woody1014@...> Subject: Re: social security grr neck pain Date: Sunday, February 21, 2010, 8:27 AM  Your right its NOT from being overweight! You know what they are doing? Those doctors? they are trying to shuffle the blame onto you, because they dont know how to fix you! Its just like the line " Get more exercise! " I'm so sick of that too. I have a bad occciput, bad atlas, neuralgia in my face and I am exactly the right weight! People and doctors Do not understand you cant work. I understand tho, cause neither can I! Well I am not overweight, but i smoke, so i always here that one. Quit smoking. Puff puff. But maybe if i could Move around, I wouldnt smoke so much! I have a good chiropracter. Why do i think he is good? he CARES. He's good because he is upfront and honest. He is down to earth and will tell me right out. Now get this... He says EXERCISING WILL NOT HELP YOU! Imagine that? Imagine a doctor that tells the truth Like that! Oh once i went to a chiro who used this gun thingy. My chiro told me it was a crock of sh-t. he told me to tell the guy not to bother using it again on me! But I have NO Regular medical doc, that helps much at all. I go in crawling practically to the medical doctor because of a neck, and all he wants to do is check WOMEN things!!!My boyfriend looked at him and said. " No!!! its her neck, you are aiming way to low! I thought that was pretty fast of dave to come out with that! cindy > > Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritate d and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. > > I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? > > I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. > > It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! > > Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > > > > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Wyld? I am in Maine, and this state is a poor state. So all the good doctors dont come here. Its true! Even if a good doctor does come, they move on and leave to better paying places. We have a doctor shortage here. Your right, sometimes it takes a team of docs to help a bad case! How are your fingers feeling? Are you feeling any better now, that the surgery has calmed down some? I hope so. cindy > > hi grasshopper, i totally agree, i have been 125 lbs and 225 lbs, and it did not make a difference with my knee, lumbar, neck, or head pain. i am in washington but my pain dr is in vancouver so that is probably too far for you to go. i have heard from others seattle is hard to even get in to see a doctor let alone find a good one. even down here it has taken me 5 years to put together a good team for me. i am too stubborn to let the system win, they make it impossibly hard so people will give up and quit. i also was homeless part of this time. i understand it is so very hard to fight the pain and the system and survive at the same time but what other choice is there. big gentle hugs and i wish i could be of more help, wyld > > > > > From: grasshopperx_10 <woody1014@...> > Subject: Re: social security grr > neck pain > Date: Sunday, February 21, 2010, 8:27 AM > > >  > > > > > Your right its NOT from being overweight! You know what they are doing? Those doctors? they are trying to shuffle the blame onto you, because they dont know how to fix you! Its just like the line " Get more exercise! " I'm so sick of that too. I have a bad occciput, bad atlas, neuralgia in my face and I am exactly the right weight! People and doctors Do not understand you cant work. I understand tho, cause neither can I! Well I am not overweight, but i smoke, so i always here that one. Quit smoking. Puff puff. But maybe if i could Move around, I wouldnt smoke so much! > I have a good chiropracter. Why do i think he is good? he CARES. He's good because he is upfront and honest. He is down to earth and will tell me right out. Now get this... He says EXERCISING WILL NOT HELP YOU! Imagine that? Imagine a doctor that tells the truth Like that! Oh once i went to a chiro who used this gun thingy. My chiro told me it was a crock of sh-t. he told me to tell the guy not to bother using it again on me! > But I have NO Regular medical doc, that helps much at all. I go in crawling practically to the medical doctor because of a neck, and all he wants to do is check WOMEN things!!!My boyfriend looked at him and said. " No!!! its her neck, you are aiming way to low! I thought that was pretty fast of dave to come out with that! cindy > > > > Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritate d and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. > > > > I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? > > > > I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. > > > > It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! > > > > Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > > > > > > > > > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Wyld? I am in Maine, and this state is a poor state. So all the good doctors dont come here. Its true! Even if a good doctor does come, they move on and leave to better paying places. We have a doctor shortage here. Your right, sometimes it takes a team of docs to help a bad case! How are your fingers feeling? Are you feeling any better now, that the surgery has calmed down some? I hope so. cindy > > hi grasshopper, i totally agree, i have been 125 lbs and 225 lbs, and it did not make a difference with my knee, lumbar, neck, or head pain. i am in washington but my pain dr is in vancouver so that is probably too far for you to go. i have heard from others seattle is hard to even get in to see a doctor let alone find a good one. even down here it has taken me 5 years to put together a good team for me. i am too stubborn to let the system win, they make it impossibly hard so people will give up and quit. i also was homeless part of this time. i understand it is so very hard to fight the pain and the system and survive at the same time but what other choice is there. big gentle hugs and i wish i could be of more help, wyld > > > > > From: grasshopperx_10 <woody1014@...> > Subject: Re: social security grr > neck pain > Date: Sunday, February 21, 2010, 8:27 AM > > >  > > > > > Your right its NOT from being overweight! You know what they are doing? Those doctors? they are trying to shuffle the blame onto you, because they dont know how to fix you! Its just like the line " Get more exercise! " I'm so sick of that too. I have a bad occciput, bad atlas, neuralgia in my face and I am exactly the right weight! People and doctors Do not understand you cant work. I understand tho, cause neither can I! Well I am not overweight, but i smoke, so i always here that one. Quit smoking. Puff puff. But maybe if i could Move around, I wouldnt smoke so much! > I have a good chiropracter. Why do i think he is good? he CARES. He's good because he is upfront and honest. He is down to earth and will tell me right out. Now get this... He says EXERCISING WILL NOT HELP YOU! Imagine that? Imagine a doctor that tells the truth Like that! Oh once i went to a chiro who used this gun thingy. My chiro told me it was a crock of sh-t. he told me to tell the guy not to bother using it again on me! > But I have NO Regular medical doc, that helps much at all. I go in crawling practically to the medical doctor because of a neck, and all he wants to do is check WOMEN things!!!My boyfriend looked at him and said. " No!!! its her neck, you are aiming way to low! I thought that was pretty fast of dave to come out with that! cindy > > > > Occipital neuralgia, which my last neurologist diagnosed me with, was explained to me as being a condition in which the occipital nerve (in the neck) is stimulated/irritate d and causes migraines. The neurologist claimed that it is because I'm overweight, though I dispute that since I had daily migraines a decade ago when I wasn't overweight. More likely, imo, is that the neuralgia was caused by neck trauma, which I've had occur several times between 10-20 years ago. > > > > I feel a rant coming on. It seems that doctors are biased against fat people, and I was told yoga and massage were the answers to occipital neuralgia. Problem is, I wasn't overweight when the condition started, and it was only after 15 rounds of various migraine abortive and preventative drugs that I put on 80 extra pounds. How am I supposed to exercise daily when I have headaches severe enough to keep me in a dark closet for weeks at a time? > > > > I made $800 last year and $800 the year before. I've spent much of the last decade homeless. Social security, in denying my SSI claim and telling me that I can work retail, is far beyond insensitive, I think they're actively trying to harm or kill me. My appeal window expired because I was convinced that it wasn't worth it - the lawyer I spoke to said that I need lots more documentation of my disability than I have, but I really can't bear waiting 3 months to go to another doctor at a free clinic, just to be told AGAIN that they'll write me a prescription for NAPROXEN. Or that it's " all in your head " , and charged $300 for the visit when the state social services agency was supposed to be billed. > > > > It feels like the whole system is designed to enact a war against me and other poor people with chronic pain conditions. I'm ANGRY and in so much pain! > > > > Does anyone in this group have a GOOD doctor in the Seattle area that they'd be willing to recommend to me? And why do you think your doctor is good? > > > > > > > > > > > > > Stores is the worse place in the world for that.!!!! I cant go into a store yet. We have discussed that on my other groups and we have come to the conclusion it Is the fluorescent lights!Your right. Can you tell me more about occiputal neuralgia? is it the occiputal nerve creating the migrains? Do you have troubles with your vision? I do. Supposedly coming from upper neck, and occiput. cindy > > > > > > > > I recently received a letter from social security informing me that I've been denied. They write that migraines and occipital neuralgia pose significant limitations, but that I should be able to work retail sales. > > > > > > > > I believe that this is not only a bad decision (given the lighting conditions of retail stores), but also ill-informed and insensitive to the nature of my disability. Unfortunately, I've been coping with depression and allowed the appeal time frame to expire. > > > > > > > > It feels, with statements such as the one they sent me, that the social security administration must have employees laughing maniacally and twirling their waxed mustaches as they type. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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