Re: Off to see a DR. ??

[Guest guest]

Susie let me know when your appointment is so I can send you love, hugs and pray

for an understanding doctor. If you look on the links page of you will

find some excellent sights to refer your doctor to as well as articles on pain.

www.painonline.com appears to be down at the moment but hopefully this is

temporary.

If I can help any further with info etc please just email me.

I do hope everything goes well for you.

Love and hugs

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: Susie Lemin

Sent: Saturday, December 22, 2001 2:15 PM

Subject: [] Off to see a DR. ??

Hey all,

I called and made an appointment with the Dr. that I

have been going to see. I told his receptionist that

I wanted him to do some reading up on CMT and that I

wanted to talk to him about it. I need something for

the pain.

So hears hoping this good Christian D.O. will listen

and understand our situation until the next month or

so. I will keep you posted, especially you Sue. I

know you are going through hell with doctors right

now. Maybe you can find an understanding doctor that

will listen to you. Hopefully mine wont think the

same.

We don't have any insurance at the moment and I am

afraid if I am officially diagnosed before we get some

that I wont be able to get Any later. The insurance

that I signed up for through my job, cost $116.00 a

week and I usually make only about $200.00 or so,

depending on my case load. Thus I had to drop it just

to keep beans and 'taters on the table. Walmart and

Home Health aids don't make a whole lot unless they

work themselves to exhaustion.

Susie

Ps, Even spell check doesn't have CMT in its memory!

Peace To ALL and Happy Holidays!!

__________________________________________________

[Guest guest]

Sue, Jim and those that asked about ankle surgery,

I went to see Dr. D.O. this morning. Believe

it or not he is one of the VERY few that sees patients

on Saturdays.

I he apologized to me twice, one for not noting that

there was CMT in my family and that he missdiagnosed

me as have Raynaud's Phenomenon. He pulled out his

book and read up a little on it while I dangled on the

couch. Looked at my ankles, legs, hands and fingers.

My legs are fine, no muscle loss, **the ankle surgery

15 years ago most likely helped there**. He stated

that in the mild forms that the symptoms don't really

show up until later years as in my case and Jims.

My hands are the problem now. He looked at my left

hand and wanted to know how he had missed seeing it a

couple of weeks ago when I went in for hand pain. My

thumb has a visible hitch in it. The first joint

actually clicks when I bend it and most of the time I

have to actually look at it to bend it. The tendon is

standing out just below the heel of the thumb in the

lower web.

Let me explain about this doctor. One, he is an

Osteopath that deals with bones and joints.

ONE, he is a Christian at all times.

Two he is one of the most unorthodox doctors I have

ever met in my life. He dispenses some medication from

his office, as the price to his patients are a lot

more expensive if they have to go to a Pharmacy. My

cost today was $66.00 for 2 bottles of Darvocet and 2

bottles of Motrin, and his office visit. He does not

have narcotics! But will write a prescription IF he

agrees that you really need it for any medication that

he doesn't have.

Three, he wears shorts and a Hawaiian shirt,and has

most of his equipment in one small room with an

receptionist in another " Larger than a closet " office.

He does not carry malpractice insurance and you sign a

paper stating that you know this fact. That keeps his

over head very low.

Four, He will not officially diagnose me until we get

our insurance straightened out but will help me deal

with the pain and aggravation. AND pray for all of us

here in this group. I gave him the www's for what I

have and he is going to look at them tomorrow after

church.

FIVE, His last statement to me as I was leaving was

" NEVER GIVE UP HOPE!!! "

He gave me a brochure on IONIC CORAL CALCIUM that he

wants me to try. On the front it says " LIVE LONG,

LIVE HEALTHY, PAIN FREE! " If I find this Calcium I

will try it. If any of you want to read it I will

transcribe it and post it as a file.

Any questions or comments about the above? I will give

my best effort to answer. I think his last statement

did me more good than the thought of a pain free night

of sleep

Well folks, as Porky says " Tttthat's all Fffolks "

Susie

-

__________________________________________________

[Guest guest]

Susie this guy is wonderful. Okay he doesn't know a lot but he is prepared to

investigate which is brilliant and the fact that he is honest enough to admit to

his mistakes and apologise.

Living in the UK I find it difficult to understand your medical costs as we pay

for ours through our taxes but it sounds as if this guy is helping you

financially as well.

You rest now and have a wonderful Christmas - you deserve it.

Love and hugs

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: Susie Lemin

Sent: Saturday, December 22, 2001 6:41 PM

Subject: Re: [] Off to see a DR. ??

Sue, Jim and those that asked about ankle surgery,

I went to see Dr. D.O. this morning. Believe

it or not he is one of the VERY few that sees patients

on Saturdays.

I he apologized to me twice, one for not noting that

there was CMT in my family and that he missdiagnosed

me as have Raynaud's Phenomenon. He pulled out his

book and read up a little on it while I dangled on the

couch. Looked at my ankles, legs, hands and fingers.

My legs are fine, no muscle loss, **the ankle surgery

15 years ago most likely helped there**. He stated

that in the mild forms that the symptoms don't really

show up until later years as in my case and Jims.

My hands are the problem now. He looked at my left

hand and wanted to know how he had missed seeing it a

couple of weeks ago when I went in for hand pain. My

thumb has a visible hitch in it. The first joint

actually clicks when I bend it and most of the time I

have to actually look at it to bend it. The tendon is

standing out just below the heel of the thumb in the

lower web.

Let me explain about this doctor. One, he is an

Osteopath that deals with bones and joints.

ONE, he is a Christian at all times.

Two he is one of the most unorthodox doctors I have

ever met in my life. He dispenses some medication from

his office, as the price to his patients are a lot

more expensive if they have to go to a Pharmacy. My

cost today was $66.00 for 2 bottles of Darvocet and 2

bottles of Motrin, and his office visit. He does not

have narcotics! But will write a prescription IF he

agrees that you really need it for any medication that

he doesn't have.

Three, he wears shorts and a Hawaiian shirt,and has

most of his equipment in one small room with an

receptionist in another " Larger than a closet " office.

He does not carry malpractice insurance and you sign a

paper stating that you know this fact. That keeps his

over head very low.

Four, He will not officially diagnose me until we get

our insurance straightened out but will help me deal

with the pain and aggravation. AND pray for all of us

here in this group. I gave him the www's for what I

have and he is going to look at them tomorrow after

church.

FIVE, His last statement to me as I was leaving was

" NEVER GIVE UP HOPE!!! "

He gave me a brochure on IONIC CORAL CALCIUM that he

wants me to try. On the front it says " LIVE LONG,

LIVE HEALTHY, PAIN FREE! " If I find this Calcium I

will try it. If any of you want to read it I will

transcribe it and post it as a file.

Any questions or comments about the above? I will give

my best effort to answer. I think his last statement

did me more good than the thought of a pain free night

of sleep

Well folks, as Porky says " Tttthat's all Fffolks "

Susie

-

__________________________________________________