Guest guest Posted December 19, 2001 Report Share Posted December 19, 2001 Judy and all, I WAS diagnosed with CMT in 1962. I was 10. Why I got a diagnosis at that time, who knows? But the Dr. could tell by the way I walked, which was surgically corrected. The Dr. was an orthopedist, and no, I certainly do not have 'classic' CMT, as many of you know. I am grateful I was diagnosed and had early and ongoing care, although in my late teens/twenties, turned my back on the entire medical world. Judy, I know MDA does great work, and I am happy for you and everyone else who has good treatment from them. Unfortunately, that was not my experience and I found a plethora of wonderful private physicians to help me and get the care I needed, NOT what MDA wanted me to have. I am so sorry so many of you have had such negative experiences with diagnosis and or treatment. Quote Link to comment Share on other sites More sharing options...
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