Re: Hello I think I may have CMT

[Guest guest]

Tom

You can't just catch CMT and as a person who lives and is dying with this

disease I find your remarks very offensive. Just go away you silly little man

and get a life and let the people who matter on this site have a chance of doing

the best they can.

You are pathetic!!!!!!!!!!!!!!!!!!!!!!!!!!

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: tommyzeospice

Sent: Wednesday, December 19, 2001 11:58 PM

Subject: [] Hello I think I may have CMT

Hi I just joined this group because my doctor diagnosed me with CMT. I

think I got it around the summer of last year after a blood

transfusion. See the thing is that I live in Canada and the blood

supply is controlled by the governemnt and they bungled it up and I

got CMT by mistake. So I wanted to meet other people who had it and

maybe find the best way to cope with it. It's hard because no one I

know has it or has even heard of it. My doctor wasn't even familiar

with it until he looked it up in a medical encyclopedia. I'm hoping

that I can get a prescription of medical marijuana to help deal with

it. Well I just wanted to say hi and introduce myself.

[Guest guest]

PS

In fact you're more than pathetic you're really disgusting and I feel really

sorry for you - you sad little, little man!

Try your games somewhere else!!!!!!

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: Sue Horder-Mason

Sent: Thursday, December 20, 2001 12:18 AM

Subject: Re: [] Hello I think I may have CMT

Tom

You can't just catch CMT and as a person who lives and is dying with this

disease I find your remarks very offensive. Just go away you silly little man

and get a life and let the people who matter on this site have a chance of doing

the best they can.

You are pathetic!!!!!!!!!!!!!!!!!!!!!!!!!!

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: tommyzeospice

Sent: Wednesday, December 19, 2001 11:58 PM

Subject: [] Hello I think I may have CMT

Hi I just joined this group because my doctor diagnosed me with CMT. I

think I got it around the summer of last year after a blood

transfusion. See the thing is that I live in Canada and the blood

supply is controlled by the governemnt and they bungled it up and I

got CMT by mistake. So I wanted to meet other people who had it and

maybe find the best way to cope with it. It's hard because no one I

know has it or has even heard of it. My doctor wasn't even familiar

with it until he looked it up in a medical encyclopedia. I'm hoping

that I can get a prescription of medical marijuana to help deal with

it. Well I just wanted to say hi and introduce myself.

[Guest guest]

Sue,

Don't you think you are a little hasty in blasting

this man? If he was just diagnosed with CMT. He needs

to be with a group and maybe learn a few things about

it and how to live with it.

What better place to be to learn a few things here, as

I have been doing for the last few days. Don't be so

quick on the draw. His doctor may not know enough

about CMT to explain to him that it is not a

contagious disease, the gene may have been " hiding "

until now. Even the fact sheet that I just recieved

says that, CMT may not show up until later years.

I watched my father suffer with this and cryed when my

son would trip, fall and cry with frusturation because

he couldn't do anything " right " . It was at this time

that he started sneaking around with some of his

friends and smoking pot. Jimmy says it helps, but not

enough.

I have a lot of questions to ask still but I may not

for a while, for fear of being blasted by someone who

has suffered a long long time.

God Bless you and yours and my prayers are with all of

you!

Susie McFarland Lemin

--- Sue Horder-Mason

<sue@...> wrote:

> Tom

> You can't just catch CMT and as a person who lives

> and is dying with this disease I find your remarks

> very offensive. Just go away you silly little man

> and get a life and let the people who matter on this

> site have a chance of doing the best they can.

> You are pathetic!!!!!!!!!!!!!!!!!!!!!!!!!!

>

> The important thing is never to stop questioning.

> Website www.horder-mason.freeserve.co.uk

> Freelance Writer and CMTer

>

> " I Thank God for my handicaps, for through them, I

> have found myself, my work, and my God. " - Helen

> Keller

>

> ----- Original Message -----

> From: tommyzeospice

>

> Sent: Wednesday, December 19, 2001 11:58 PM

> Subject: [] Hello I think I may have CMT

>

>

> Hi I just joined this group because my doctor

> diagnosed me with CMT. I

> think I got it around the summer of last year

> after a blood

> transfusion. See the thing is that I live in

> Canada and the blood

> supply is controlled by the governemnt and they

> bungled it up and I

> got CMT by mistake. So I wanted to meet other

> people who had it and

> maybe find the best way to cope with it. It's hard

> because no one I

> know has it or has even heard of it. My doctor

> wasn't even familiar

> with it until he looked it up in a medical

> encyclopedia. I'm hoping

> that I can get a prescription of medical marijuana

> to help deal with

> it. Well I just wanted to say hi and introduce

> myself.

>

>

>