Re: Hep C diagnosed 97, failed treatment 98, stage 4 cirrhosis

[Guest guest]

,

I failed treatment also. Genotype 1a/b did 8 months of interferon/rebetrol. I

was mad to and sad and at times still get that way. I get tired also. I have to

take a diet pill to keep myself going with all I have to do each day. I have 2

little boys, 2 and 5.

I went a month ago to my doctor she told me nothing really to do since the

treatment did not work. told me I could go 10 years more since I have no

scarring on my liver, my liver enzymes are still up but I am trying to just

continue to stay clean and sober and live this life on lives terms and not focus

on this.

I have 2 little boys that need me and that keeps me going. I will not tell you

there have not been days I wanted to get the nearest shot gun and end this whole

crap. What is that going to solve? Only let the dragon win faster hell no!!!

My biggest problem is all the foods I am told I am not able to eat are the ones

I want. lol another addiction I guess. Seems like anything that yummmy or fun or

exciting you can not have in this life lol. At least we are to have those things

in moderation only. Does not work with me lol I am an addict lol. I like

everything too much that is why I have Hep C in the first place.

Anyways I know how the treatment makes you feel and then you here people on here

by the grace of God they are completely better. Hard pill to swallow. Onething I

do know is

GOD HAS IT ALL FIGURED OUT. I never will and I am going to stop trying and live

for today. Hugs these cute little boys with fat cheeks. Hey I am even trying to

finish a degree and I will be danged if I am going to let this crap stop me. It

is much harder to consentrate than when I was 19 finishing my LVN but you just

have to fight. Get mad if you must but get mad at the disease. I am also pissed

at the big drug companies that really want to keep there precious interferon the

front runner when it is not working for us all. I want to see new treatments for

people like you and I. and 3.5 million others that have this disease.

Anyway, good luck to you and keep your head up. and Scream here if you need,

lots of people here understand and sometimes just knowing that helps some.

Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

,

I failed treatment also. Genotype 1a/b did 8 months of interferon/rebetrol. I

was mad to and sad and at times still get that way. I get tired also. I have to

take a diet pill to keep myself going with all I have to do each day. I have 2

little boys, 2 and 5.

I went a month ago to my doctor she told me nothing really to do since the

treatment did not work. told me I could go 10 years more since I have no

scarring on my liver, my liver enzymes are still up but I am trying to just

continue to stay clean and sober and live this life on lives terms and not focus

on this.

I have 2 little boys that need me and that keeps me going. I will not tell you

there have not been days I wanted to get the nearest shot gun and end this whole

crap. What is that going to solve? Only let the dragon win faster hell no!!!

My biggest problem is all the foods I am told I am not able to eat are the ones

I want. lol another addiction I guess. Seems like anything that yummmy or fun or

exciting you can not have in this life lol. At least we are to have those things

in moderation only. Does not work with me lol I am an addict lol. I like

everything too much that is why I have Hep C in the first place.

Anyways I know how the treatment makes you feel and then you here people on here

by the grace of God they are completely better. Hard pill to swallow. Onething I

do know is

GOD HAS IT ALL FIGURED OUT. I never will and I am going to stop trying and live

for today. Hugs these cute little boys with fat cheeks. Hey I am even trying to

finish a degree and I will be danged if I am going to let this crap stop me. It

is much harder to consentrate than when I was 19 finishing my LVN but you just

have to fight. Get mad if you must but get mad at the disease. I am also pissed

at the big drug companies that really want to keep there precious interferon the

front runner when it is not working for us all. I want to see new treatments for

people like you and I. and 3.5 million others that have this disease.

Anyway, good luck to you and keep your head up. and Scream here if you need,

lots of people here understand and sometimes just knowing that helps some.

Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

,

I failed treatment also. Genotype 1a/b did 8 months of interferon/rebetrol. I

was mad to and sad and at times still get that way. I get tired also. I have to

take a diet pill to keep myself going with all I have to do each day. I have 2

little boys, 2 and 5.

I went a month ago to my doctor she told me nothing really to do since the

treatment did not work. told me I could go 10 years more since I have no

scarring on my liver, my liver enzymes are still up but I am trying to just

continue to stay clean and sober and live this life on lives terms and not focus

on this.

I have 2 little boys that need me and that keeps me going. I will not tell you

there have not been days I wanted to get the nearest shot gun and end this whole

crap. What is that going to solve? Only let the dragon win faster hell no!!!

My biggest problem is all the foods I am told I am not able to eat are the ones

I want. lol another addiction I guess. Seems like anything that yummmy or fun or

exciting you can not have in this life lol. At least we are to have those things

in moderation only. Does not work with me lol I am an addict lol. I like

everything too much that is why I have Hep C in the first place.

Anyways I know how the treatment makes you feel and then you here people on here

by the grace of God they are completely better. Hard pill to swallow. Onething I

do know is

GOD HAS IT ALL FIGURED OUT. I never will and I am going to stop trying and live

for today. Hugs these cute little boys with fat cheeks. Hey I am even trying to

finish a degree and I will be danged if I am going to let this crap stop me. It

is much harder to consentrate than when I was 19 finishing my LVN but you just

have to fight. Get mad if you must but get mad at the disease. I am also pissed

at the big drug companies that really want to keep there precious interferon the

front runner when it is not working for us all. I want to see new treatments for

people like you and I. and 3.5 million others that have this disease.

Anyway, good luck to you and keep your head up. and Scream here if you need,

lots of people here understand and sometimes just knowing that helps some.

Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

 my name is Ms Betty,I also have HepC,1A,I have had it for over 20 years,i

don't know about cirrohsis of the liver.My dr. will not give me a liver

biopsy.He says I will probaly die from my kidneys,than my liver.Because i have

end-stage renal diease.I " m on dialysis,I ve had about 9 or 10 surgery pertaining

to my kidneys,am diabetic,chronic pain.But you know who keeps me in peace,my

relationship with Jesus.I'm looking for him to heal my kidneys,liver,and

everything else,that is out of wrack in my flesh.He delivered me from crack,

drinking,smoking cigarettes,and smoking maragunia{WEED ].  god made our

bodies,and he can heal them to.  i will put you on our prayer list.  but don't

give up.LOL

 

Acts 2;38, Then said unto them,Repent, and be baptized every one of you in

the name of Jesus Christ for the remission of sins, and ye shall recieve the

gift of the Holy Ghost.

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

 

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

 my name is Ms Betty,I also have HepC,1A,I have had it for over 20 years,i

don't know about cirrohsis of the liver.My dr. will not give me a liver

biopsy.He says I will probaly die from my kidneys,than my liver.Because i have

end-stage renal diease.I " m on dialysis,I ve had about 9 or 10 surgery pertaining

to my kidneys,am diabetic,chronic pain.But you know who keeps me in peace,my

relationship with Jesus.I'm looking for him to heal my kidneys,liver,and

everything else,that is out of wrack in my flesh.He delivered me from crack,

drinking,smoking cigarettes,and smoking maragunia{WEED ].  god made our

bodies,and he can heal them to.  i will put you on our prayer list.  but don't

give up.LOL

 

Acts 2;38, Then said unto them,Repent, and be baptized every one of you in

the name of Jesus Christ for the remission of sins, and ye shall recieve the

gift of the Holy Ghost.

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

 

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

wisconsin

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

 

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

wisconsin

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

 

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

Ms Betty and all, I have also had this a very long time. I have seen the

treatment work for many and not work for many. What does work is what Ms Betty

is talking about. All my troubles are worldly but I live in the Holy Spirit. I

have been delivered from all worldly things through Christ.

It was me that went out of my way to get this disease (dis ease) but while I

have had this for 35 yrs I have been delivered from the worry over it. The

treatment did not work for me either but the Treatment from Christ Jesus has.

I am praying for you . Remember you are not alone. There are many of us

thinking of you each day.

In Christ, Lloyd

________________________________

From: betty cammon <jesus4200020002000@...>

Hepatitis C

Sent: Sun, January 17, 2010 5:37:35 PM

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

my name is Ms Betty,I also have HepC,1A,I have had it for over 20 years,i don't

know about cirrohsis of the liver.My dr. will not give me a liver biopsy.He says

I will probaly die from my kidneys,than my liver.Because i have end-stage renal

diease.I " m on dialysis,I ve had about 9 or 10 surgery pertaining to my

kidneys,am diabetic,chronic pain.But you know who keeps me in peace,my

relationship with Jesus.I'm looking for him to heal my kidneys,liver, and

everything else,that is out of wrack in my flesh.He delivered me from crack,

drinking,smoking cigarettes,and smoking maragunia{WEED ]. god made our

bodies,and he can heal them to. i will put you on our prayer list. but don't

give up.LOL

Acts 2;38, Then said unto them,Repent, and be baptized every one of you in

the name of Jesus Christ for the remission of sins, and ye shall recieve the

gift of the Holy Ghost.

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

Ms Betty and all, I have also had this a very long time. I have seen the

treatment work for many and not work for many. What does work is what Ms Betty

is talking about. All my troubles are worldly but I live in the Holy Spirit. I

have been delivered from all worldly things through Christ.

It was me that went out of my way to get this disease (dis ease) but while I

have had this for 35 yrs I have been delivered from the worry over it. The

treatment did not work for me either but the Treatment from Christ Jesus has.

I am praying for you . Remember you are not alone. There are many of us

thinking of you each day.

In Christ, Lloyd

________________________________

From: betty cammon <jesus4200020002000@...>

Hepatitis C

Sent: Sun, January 17, 2010 5:37:35 PM

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

my name is Ms Betty,I also have HepC,1A,I have had it for over 20 years,i don't

know about cirrohsis of the liver.My dr. will not give me a liver biopsy.He says

I will probaly die from my kidneys,than my liver.Because i have end-stage renal

diease.I " m on dialysis,I ve had about 9 or 10 surgery pertaining to my

kidneys,am diabetic,chronic pain.But you know who keeps me in peace,my

relationship with Jesus.I'm looking for him to heal my kidneys,liver, and

everything else,that is out of wrack in my flesh.He delivered me from crack,

drinking,smoking cigarettes,and smoking maragunia{WEED ]. god made our

bodies,and he can heal them to. i will put you on our prayer list. but don't

give up.LOL

Acts 2;38, Then said unto them,Repent, and be baptized every one of you in

the name of Jesus Christ for the remission of sins, and ye shall recieve the

gift of the Holy Ghost.

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

,

 

In God we trust.  Listen to your mind and what God tells you.  I'm in cancer

now but instead of lamating, I am going to Costa Rica in two weeks to help

children and sick animals through a missionary there.  I couldl be killed

there.  Who know's what God has in store for us?  We are here to help

others.  Your condition is quite a test in your faith in God but He will always

be there for you.  I try to answer all emails here as we are all in the same

boat in various degrees. 

 

Blessed is His name

 

Patti

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

,

 

In God we trust.  Listen to your mind and what God tells you.  I'm in cancer

now but instead of lamating, I am going to Costa Rica in two weeks to help

children and sick animals through a missionary there.  I couldl be killed

there.  Who know's what God has in store for us?  We are here to help

others.  Your condition is quite a test in your faith in God but He will always

be there for you.  I try to answer all emails here as we are all in the same

boat in various degrees. 

 

Blessed is His name

 

Patti

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

WOW...VERY WELL PUT> (dis ease)

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

WOW...VERY WELL PUT> (dis ease)

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

I love you Patti L

________________________________

From: patti <fishinggal2008@...>

Hepatitis C

Sent: Mon, January 18, 2010 9:23:23 AM

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

,

In God we trust. Listen to your mind and what God tells you. I'm in cancer now

but instead of lamating, I am going to Costa Rica in two weeks to help children

and sick animals through a missionary there. I couldl be killed there. Who

know's what God has in store for us? We are here to help others. Your

condition is quite a test in your faith in God but He will always be there for

you. I try to answer all emails here as we are all in the same boat in various

degrees.

Blessed is His name

Patti

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

I love you Patti L

________________________________

From: patti <fishinggal2008@...>

Hepatitis C

Sent: Mon, January 18, 2010 9:23:23 AM

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

,

In God we trust. Listen to your mind and what God tells you. I'm in cancer now

but instead of lamating, I am going to Costa Rica in two weeks to help children

and sick animals through a missionary there. I couldl be killed there. Who

know's what God has in store for us? We are here to help others. Your

condition is quite a test in your faith in God but He will always be there for

you. I try to answer all emails here as we are all in the same boat in various

degrees.

Blessed is His name

Patti

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

i love you patti and Lloyd

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

i love you patti and Lloyd

From: Anne <shelleyekg@ . com>

Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

Hepatitis Csupportgr oupgroups (DOT) com

Date: Saturday, January 16, 2010, 9:33 PM

Group I am so upset and beside mnyself.

ANYONE out there with this problem.

Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

NO DRINKING.

Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

I am crying. Support in my life....hubby drinks, he is nice but when he drinks I

dont know what I will get....BIG STRESSOR...25 years in feb

dont want to be alone....I cant care for myself....

[Guest guest]

Deb did you ever wear Heaven Scent? I bet you did! " A little bit naughty but

heavenly " . LOL. We like the same things. We are the same

generation....1955...sounds ancient but I cant be 54 I feel 34..except for my

health, my mind is young and I want to go dance and have bundles of energy.

>

> From: Anne <shelleyekg (DOT) com>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Saturday, January 16, 2010, 9:33 PM

>

>  

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

[Guest guest]

LOL,IVE FELT THE SAME WAY,LOL

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Wednesday, January 20, 2010, 2:57 PM

 

Deb did you ever wear Heaven Scent? I bet you did! " A little bit naughty but

heavenly " . LOL. We like the same things. We are the same generation.. ..1955...

sounds ancient but I cant be 54 I feel 34..except for my health, my mind is

young and I want to go dance and have bundles of energy.

>

> From: Anne <shelleyekg@ . com>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Saturday, January 16, 2010, 9:33 PM

>

>  

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

[Guest guest]

Oh my goodness Jackie I had no idea it was so expensive I knew it was alot but

not that much. I was in a trial so it was paid for. Jackie when are you

starting treatment? NOT NOW!??? Jackie as we speak FDA is approving an

antiviral it will be available 2011 that is ONE year.

It is given in combo with interferon and Riba//it offers a 70% success rate!!!!

Only 50% for me cuz of cirrhosis. If you can wait OMG wait one year. Talk to

your doctor. In about 7 years there will be pill form. I dong know how old you

are or if you had a biopsy. etc. But I hope you can at least wait for the new

triple drug treatment.

>

>

> From: Anne <shelleyekg@...>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis C

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

>  

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Oh my goodness Jackie I had no idea it was so expensive I knew it was alot but

not that much. I was in a trial so it was paid for. Jackie when are you

starting treatment? NOT NOW!??? Jackie as we speak FDA is approving an

antiviral it will be available 2011 that is ONE year.

It is given in combo with interferon and Riba//it offers a 70% success rate!!!!

Only 50% for me cuz of cirrhosis. If you can wait OMG wait one year. Talk to

your doctor. In about 7 years there will be pill form. I dong know how old you

are or if you had a biopsy. etc. But I hope you can at least wait for the new

triple drug treatment.

>

>

> From: Anne <shelleyekg@...>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis C

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

>  

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Deb Heaven Scent is a fragrance that was popular when I was like 13 or so. I

dont think they make it any more....pre Charlie cologne.

I am being taken out of work and put on SSD...just have to figure out the health

ins portion. Without that I am screwed. HUGS SHelley

> >

> > From: Anne <shelleyekg@ . com>

> > Subject: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Saturday, January 16, 2010, 9:33 PM

> >

> >  

> >

> > Group I am so upset and beside mnyself.

> > ANYONE out there with this problem.

> > Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> > NO DRINKING.

> > Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> > Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> > I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> > I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> > dont want to be alone....I cant care for myself....

> >

> >

[Guest guest]

HI

 

She's right.  New treatment next yr.  I had the one they've been giving for

years with no response.  In fact it almost sent me into leukimia.  My platelet

count is too low for me to take the new drug already so Dr said go to Costa Rica

and enjoy the time I have left.  Am leaving next Wednesday for 3 months, then

who knows?  Anyway new treatment is around 70% effective.  Ask your dr about

waiting for it as what they give now will weaken your whole immune system and

takes 10 months.  If you got disability, you are  entitled to Medicare. 

Depending on income even the 20% overage can be paid for by a secondary ins

which costs nothing.  In other words, you pay zilch!  Hide whatever your money

you have in a safety dep box or with a friend you trust, wait a few months then

try for it.  It sounds crooked but look at the politicians!

 

Already been down this road

 

Patti

 

Have a blessed day.

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:56 PM

 

Oh my goodness Jackie I had no idea it was so expensive I knew it was alot but

not that much. I was in a trial so it was paid for. Jackie when are you starting

treatment? NOT NOW!??? Jackie as we speak FDA is approving an antiviral it will

be available 2011 that is ONE year.

It is given in combo with interferon and Riba//it offers a 70% success rate!!!!

Only 50% for me cuz of cirrhosis. If you can wait OMG wait one year. Talk to

your doctor. In about 7 years there will be pill form. I dong know how old you

are or if you had a biopsy. etc. But I hope you can at least wait for the new

triple drug treatment.

>

>

> From: Anne <shelleyekg@ ...>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

>  

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

HI

 

She's right.  New treatment next yr.  I had the one they've been giving for

years with no response.  In fact it almost sent me into leukimia.  My platelet

count is too low for me to take the new drug already so Dr said go to Costa Rica

and enjoy the time I have left.  Am leaving next Wednesday for 3 months, then

who knows?  Anyway new treatment is around 70% effective.  Ask your dr about

waiting for it as what they give now will weaken your whole immune system and

takes 10 months.  If you got disability, you are  entitled to Medicare. 

Depending on income even the 20% overage can be paid for by a secondary ins

which costs nothing.  In other words, you pay zilch!  Hide whatever your money

you have in a safety dep box or with a friend you trust, wait a few months then

try for it.  It sounds crooked but look at the politicians!

 

Already been down this road

 

Patti

 

Have a blessed day.

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:56 PM

 

Oh my goodness Jackie I had no idea it was so expensive I knew it was alot but

not that much. I was in a trial so it was paid for. Jackie when are you starting

treatment? NOT NOW!??? Jackie as we speak FDA is approving an antiviral it will

be available 2011 that is ONE year.

It is given in combo with interferon and Riba//it offers a 70% success rate!!!!

Only 50% for me cuz of cirrhosis. If you can wait OMG wait one year. Talk to

your doctor. In about 7 years there will be pill form. I dong know how old you

are or if you had a biopsy. etc. But I hope you can at least wait for the new

triple drug treatment.

>

>

> From: Anne <shelleyekg@ ...>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

>  

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I am so glad to know that there is a new treatment going to be available.2011.

I had no idea it would be so soon. I am in limbo since I didn't respond to

treatment last year. I'm just so fatigued and of course can't get SSD or SSI so

they keep denying me. I live in an area with no support or medical specialists

so I have to go a pretty long way.

On a lighter note, since I am on an up scale regarding health at this time I am

taking a trip to Denver in a few weeks to visit my brother and best friend. So

that's cool since I've never been out of Ohio to far. While I am feeling okay I

think I should do it.

God Bless to all

King-Norman

Mother to Lyndsey, Lucas, Noah, Ethan

and My Angels in Heaven ,

, and Savannah

http://ohio24fan.webs.com/

" A Bible that is falling apart usually belongs

to a family that isn't "

Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> Hepatitis C

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

> Â

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>