Re: Hep C diagnosed 97, failed treatment 98, stage 4 cirrhosis

[Guest guest]

I am so glad to know that there is a new treatment going to be available.2011.

I had no idea it would be so soon. I am in limbo since I didn't respond to

treatment last year. I'm just so fatigued and of course can't get SSD or SSI so

they keep denying me. I live in an area with no support or medical specialists

so I have to go a pretty long way.

On a lighter note, since I am on an up scale regarding health at this time I am

taking a trip to Denver in a few weeks to visit my brother and best friend. So

that's cool since I've never been out of Ohio to far. While I am feeling okay I

think I should do it.

God Bless to all

King-Norman

Mother to Lyndsey, Lucas, Noah, Ethan

and My Angels in Heaven ,

, and Savannah

http://ohio24fan.webs.com/

" A Bible that is falling apart usually belongs

to a family that isn't "

Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> Hepatitis C

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

> Â

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

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[Guest guest]

are they saying that this new treatment will be taken along with thee old

treatment,hmmm...i dont see how you will feel good at all going threw 3

different drugs at once...

From: King <ohio24fan@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 7:00 PM

 

I am so glad to know that there is a new treatment going to be available.2011. I

had no idea it would be so soon. I am in limbo since I didn't respond to

treatment last year. I'm just so fatigued and of course can't get SSD or SSI so

they keep denying me. I live in an area with no support or medical specialists

so I have to go a pretty long way.

On a lighter note, since I am on an up scale regarding health at this time I am

taking a trip to Denver in a few weeks to visit my brother and best friend. So

that's cool since I've never been out of Ohio to far. While I am feeling okay I

think I should do it.

God Bless to all

King-Norman

Mother to Lyndsey, Lucas, Noah, Ethan

and My Angels in Heaven ,

, and Savannah

http://ohio24fan. webs.com/

" A Bible that is falling apart usually belongs

to a family that isn't "

Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

> Â

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

shell,was that perfume by avon,i know i did use it yrs ago but dont remember who

made it. i suppose i can just run the name on here,dah,lol. ya i know wat your

saying,i dont feel 54 watever that feels like. and i LOVE to dance,althou since

my daughter is reaching her mid twenties,i feel like she did and is trying to

push me into old age zone,not sure why one wouyld do that but thats how i feel.

she would laugh at me when i would dance but the truth is ive always been a good

dancer so what does she know,lol. i just got home from a 2 hr cleaning job that

i hace,i cryed the whole time i was there,oooh the joys of having hepC!!! I FEEL

SORRY FOR MY HUSBAND,HES GOTTA PUT UP WITH THIS BULL****

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:59 PM

 

Deb Heaven Scent is a fragrance that was popular when I was like 13 or so. I

dont think they make it any more....pre Charlie cologne.

I am being taken out of work and put on SSD...just have to figure out the health

ins portion. Without that I am screwed. HUGS SHelley

> >

> > From: Anne <shelleyekg@ . com>

> > Subject: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Saturday, January 16, 2010, 9:33 PM

> >

> >  

> >

> > Group I am so upset and beside mnyself.

> > ANYONE out there with this problem.

> > Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> > NO DRINKING.

> > Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> > Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> > I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> > I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> > dont want to be alone....I cant care for myself....

> >

> >

[Guest guest]

High, !

SSD/SSI can be difficult to get, as you are seeing. You really need a lawyer to

represent you. I used a local firm that knows SS Law, and was approved on my

first try. If there's no local attorney who can help, call these guys. They have

a good reputation and have represented many of us heppers:

http://www.binderandbinder.com/

Also, please remember when applying, that it is very important to stress both

the physical problems associated with HCV, as well as all the mental problems. A

great lady with SSI told me that the mental aspect is just as important, if not

more so.

[Guest guest]

shelley,i cant seem to get this to you in your private mail in fb so sending it

threw in here! knowledge for us all! i think...i hope

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:59 PM

 

Deb Heaven Scent is a fragrance that was popular when I was like 13 or so. I

dont think they make it any more....pre Charlie cologne.

I am being taken out of work and put on SSD...just have to figure out the health

ins portion. Without that I am screwed. HUGS SHelley

> >

> > From: Anne <shelleyekg@ . com>

> > Subject: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Saturday, January 16, 2010, 9:33 PM

> >

> >  

> >

> > Group I am so upset and beside mnyself.

> > ANYONE out there with this problem.

> > Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> > NO DRINKING.

> > Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> > Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> > I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> > I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> > dont want to be alone....I cant care for myself....

> >

> >

[Guest guest]

ooop's,lol...i guess i need a cup  >  (((((COFFEE))))) 

 

*~Compared to people who avoid coffee, those who drink at least two cups a day

are 80 percent less likely to develop cirrhosis of the liver (even if they drink

a lot of alcohol), half as likely to have gallstones, and 25 percent less apt to

get colon cancer. Coffee is also protective against cancer of the liver and

kidneys, and although it's long been suspected of increasing risk of breast

cancer, a recent study spanning 22 years and involving nearly 86,000 women found

a weak inverse association between the two in postmenopausal females.

have a sweet day!

deborah!

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:59 PM

 

Deb Heaven Scent is a fragrance that was popular when I was like 13 or so. I

dont think they make it any more....pre Charlie cologne.

I am being taken out of work and put on SSD...just have to figure out the health

ins portion. Without that I am screwed. HUGS SHelley

> >

> > From: Anne <shelleyekg@ . com>

> > Subject: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Saturday, January 16, 2010, 9:33 PM

> >

> >  

> >

> > Group I am so upset and beside mnyself.

> > ANYONE out there with this problem.

> > Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> > NO DRINKING.

> > Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> > Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> > I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> > I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> > dont want to be alone....I cant care for myself....

> >

> >

[Guest guest]

No I haven't started anything yet.  Keep me posted.  Jackie

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:56 PM

 

Oh my goodness Jackie I had no idea it was so expensive I knew it was alot but

not that much. I was in a trial so it was paid for. Jackie when are you starting

treatment? NOT NOW!??? Jackie as we speak FDA is approving an antiviral it will

be available 2011 that is ONE year.

It is given in combo with interferon and Riba//it offers a 70% success rate!!!!

Only 50% for me cuz of cirrhosis. If you can wait OMG wait one year. Talk to

your doctor. In about 7 years there will be pill form. I dong know how old you

are or if you had a biopsy. etc. But I hope you can at least wait for the new

triple drug treatment.

>

>

> From: Anne <shelleyekg@ ...>

> Subject: Hep C diagnosed 97, failed treatment 98,

stage 4 cirrhosis

> Hepatitis Csupportgr oupgroups (DOT) com

> Date: Saturday, January 16, 2010, 9:33 PM

>

>

>  

>

>

>

> Group I am so upset and beside mnyself.

> ANYONE out there with this problem.

> Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> NO DRINKING.

> Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> I am crying. Support in my life....hubby drinks, he is nice but when he drinks

I dont know what I will get....BIG STRESSOR...25 years in feb

> dont want to be alone....I cant care for myself....

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

should have done this in the first place,lol

 

http://ow.ly/10Uzc

 

From: Anne <shelleyekg@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 4:59 PM

 

Deb Heaven Scent is a fragrance that was popular when I was like 13 or so. I

dont think they make it any more....pre Charlie cologne.

I am being taken out of work and put on SSD...just have to figure out the health

ins portion. Without that I am screwed. HUGS SHelley

> >

> > From: Anne <shelleyekg@ . com>

> > Subject: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Saturday, January 16, 2010, 9:33 PM

> >

> >  

> >

> > Group I am so upset and beside mnyself.

> > ANYONE out there with this problem.

> > Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> > NO DRINKING.

> > Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> > Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> > I am afraid. I am really afraid my liver will turn cancerous and then I will

really be in trouble. Any words of wisdom? I am praying.

> > I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> > dont want to be alone....I cant care for myself....

> >

> >

[Guest guest]

Hey,

That was nice info, I make coffee each night now working night shift lol, and

some days (killer on the body) anyway. I might have to start drinking some java.

I never liked it much and it never helped I could probably like tons of speed

and still need a nap lol. Just a joke but seriously seems like now my energy

level getting so low.

I must get back to my walking that helps a lot will walk the halls tonight for

sure lol. Between writing novels in each patients chart lol.

I guess it is ok if it is just black and not all the sugar and cream stuff

added.

Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

> > Hepatitis Csupportgr oupgroups (DOT) com

> > Date: Saturday, January 16, 2010, 9:33 PM

> >

> > ÂÂ

> >

> > Group I am so upset and beside mnyself.

> > ANYONE out there with this problem.

> > Failed treatment Geno 1a. Treatment almost killed me, anorexic, insomnia,

depression, panic attacks..it was a nightmarre. AND it did not work

> > NO DRINKING.

> > Biopsy last week stage 4 cirrhosis. Fatigue OFF THE CHARTS.

> > Takign PROVIGIL to stay away at work, go home and nap for 3 hrs.

> > I am afraid. I am really afraid my liver will turn cancerous and then I

will really be in trouble. Any words of wisdom? I am praying.

> > I am crying. Support in my life....hubby drinks, he is nice but when he

drinks I dont know what I will get....BIG STRESSOR...25 years in feb

> > dont want to be alone....I cant care for myself....

> >

> >

[Guest guest]

Hi ,

 

I used binder and binder also12 years ago  They told me what to bring to the

office.  I had disability within 3 months.  They take a third each month from

your disability check to pay them for their services.  Least that's how they

used to do it.

 

Patti

From: Rick Kipp <rickkipp@...>

Subject: Re: Hep C diagnosed 97, failed treatment

98, stage 4 cirrhosis

Hepatitis C

Date: Tuesday, January 26, 2010, 9:32 PM

 

High, !

SSD/SSI can be difficult to get, as you are seeing. You really need a lawyer to

represent you. I used a local firm that knows SS Law, and was approved on my

first try. If there's no local attorney who can help, call these guys. They have

a good reputation and have represented many of us heppers:

http://www.binderan dbinder.com/

Also, please remember when applying, that it is very important to stress both

the physical problems associated with HCV, as well as all the mental problems. A

great lady with SSI told me that the mental aspect is just as important, if not

more so.