RE: dress shoes

[Guest guest]

In a message dated 12/6/2001 5:45:37 PM Pacific Standard Time,

butterflypower@... writes:

> What makes things hard for me is I have a ten year old sister whom I love

> dearly when she is not being a brat and she wears around the same size

> shoe as me and gets to wear 'cool' and 'nice' and 'dressy' shoes....

> IT SUCKS....THINGS WOULD BE EASIER IF I WASN'T COMPARING MY SHOES TO

> HERS.....ERRR....

> Just thought I'd share

>

> ________________________________________________________________

, I have a sister that is 7 years older then I am. She lived in high

heels even her tennis shoes were high heels. To make it worse she got a job

at a shoe store. UGH I hate to even think about how sad and left out I felt.

jenny

[Guest guest]

RE: Dress Shoes Scrapped (how smart is it to wear

things that hurt your feet)

LOL Judy. . . and Sue two smart lady's

I too have always prided myself on being unique and

" my own trend setter! "

3 to 4 yrs ago; LIFE BEFORE CMT I dressed in

suits(shoes and jewelry for every outfit) and high

heels; nails and hair done and did interviews all day

for AVON Products, Inc. as Assistant Manager for a 450

Representative district;

Needless to say when diagnosed with CMT and told I

" needed " AFO " S. . I said, " no way, no how, not ever;

I've walked for 40 yrs without braces and I can't wear

highheels with those ugly things! And my skirts are

above my knees; No way it cramps my " style "

My hubby had watched my progression for about 6 yrs

and was beside himself trying to get me to slow down

(as I was in denial better than 10 yrs that anything

seriously could be wrong; just had occassional " burn

out " )and begged me to please try the braces, and if I

didn't like them then we wouldn't take them.

I gave in and before I got to the end of the hall, I

turned around with the biggest tears and cried, " I

feel SO Graceful! " Needless to say they helped and

made such a difference I didn't care about shoes at

that point;

Well, after I got back home from Mayo Rochester MN,

reality set in and I remembered that in about three

weeks, my husband was having his 30 yr class reunion!

I began to fret and worry, how would I go wearing

braces, and how would I cover them up;(I didn't want

to make a " pity " impression for my husband's sake!) I

wanted people to know me for me not for my handicap or

disability! And he is joined at the hip to me for 27+

yrs now, and would not think of going without me!

Well, I am a " bit Country " though being raised in

Dallas TX and have a very southern accent; LOL <wink>

ask anyone on the list that has talked to me over the

phone;LOL . . I got a bright Idea; I'm from the

Southwest. . . I have my own style. . . I can wear

nice leather high top boots (for ankle support),

broomstick skirts (to hide the ugly AFO's)and vests

and got a goucho hat (black)to add Style and Flair!

The Love of my life, very empathetic too how

devastated I was about how I had to change my whole

life style in a matter of days, took me on a shopping

spree and bought me five new (southwest outfits; all

interchanging) outfits, and one specially for the

reunion.

The style fits me and my personality and I'm proud of

the way I dress and am very sensible as well as

stylish! My molded inserts and AFO's work beautifully

inside the deep shoe box of the Roper style

boots; I have to get a size larger for all of it to

fit but I can wear these with anything I have!

And Judy, I've thought of the Positive of wearing ANY

shoes I want again when in the chair permanently;( I

do use a manual chair outside my home; a Jazzy power

chair in my home as a " tool " to help me conserve

energy!) I've got some of my favorites still put away

for that very occasion! LOL So, life is full of

change. . . but make them positive changes to FIT

YOU!

~~~~~~~~~~~Sorry for the length of my tale but. . . I

love to share happy endings!

YA " LL COME BACK NOW HEAR ^-*

~

=====

" I THANK GOD FOR MY HANDICAPS, FOR, THROUGH THEM, I HAVE FOUND MYSELF, MY WORK,

AND MY GOD. " - Helen Keller

" A friend is someone who knows the song in your heart and can sing it back to

you when you have forgotten the words. "

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Living w/CMT http://www.geocities.com/charcot_marie_tooth

" Nobody can make you feel inferior without your permission. " -Eleanor Roosevelt-

__________________________________________________

[Guest guest]

I went through this as a kid. My sister used to wear pretty sandels with summer

dresses while I wore orthopaedic boots or shoes. Yuk I have the pictures but

maybe try what Libby suggests and find your own style to accomodate what you

have to wear.

I've done it by opting for 'hippy' type clothing. I don't have a short skirt I

wear trousers or long skirts and dresses and I love my jewellry. Dave paints my

finger nails for me if I can't do it and on bad days even when I'm not going out

I put on the war paint, dress up and feel tonnes better. I call it painting a

smile on my face but I find it really does work.

Living with CMT is a learning process just like everything else in life and

you'll soon get the hang of it - I promise.

Love

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: shannon marzinski

Sent: Friday, December 07, 2001 1:41 AM

Subject: [] Dress Shoes

yeah it gets easier with time, Knowing that you can't wear dress shoes.

You begin to be more accepting.

What makes things hard for me is I have a ten year old sister whom I love

dearly when she is not being a brat and she wears around the same size

shoe as me and gets to wear 'cool' and 'nice' and 'dressy' shoes....

IT SUCKS....THINGS WOULD BE EASIER IF I WASN'T COMPARING MY SHOES TO

HERS.....ERRR....

Just thought I'd share

________________________________________________________________

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[Guest guest]

In a message dated 12/7/2001 4:12:08 AM Central Standard Time,

sue@... writes:

> . I call it painting a smile on my face but I find it really does work.

>

Sue, C here. That reminds me of something my grandmother used to

say---- " A little powder, little paint make a woman what she ain't. " She used

to tell me all the time that if you look the best you can, you'll feel the

best you can. I think she was right.

[Guest guest]

shannon, i feel your pain completely! i sprained my

ankle at my junior prom because i tried to wear shoes

that had a one inch heel. this was before i was

diagnosed. at my graduation in '99, we had to wear

white and i had the ugliest white flat shoes, but at

least i didn't fall. (it sucks having to go through

life worrying about stupid little things like

falling.) but anyway, i have three younger sisters and

all of them are perfectly healthy and athletic. it

does sadden me sometimes seeing them dressed up with

their cute shoes. my 18 year old sister actually

works in a shoe store and she has like 32 pairs of

shoes. i've even started crying a couple times when

shopping in her store. ok i'm rambling, but i just

wanted to share my anxieties about shoes with you.

you are not alone! -kelly--- shannon marzinski

<butterflypower@...> wrote:

> yeah it gets easier with time, Knowing that you

> can't wear dress shoes.

> You begin to be more accepting.

> What makes things hard for me is I have a ten year

> old sister whom I love

> dearly when she is not being a brat and she wears

> around the same size

> shoe as me and gets to wear 'cool' and 'nice' and

> 'dressy' shoes....

> IT SUCKS....THINGS WOULD BE EASIER IF I WASN'T

> COMPARING MY SHOES TO

> HERS.....ERRR....

> Just thought I'd share

>

>

________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

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>

__________________________________________________

[Guest guest]

I also know the feel of wanting to wear dress shoes.the only pair of shoes i can

comfortably wear are sneakers these don't look very good with a dress that's for

sure. now I just try to find and outfit that I can wear loafers with usually I

end up in dress pants. the worst thing about this is when my husband and I got

married I had to wear sneakers not pretty dress shoes with a heel.

stacy

----- Original Message -----

From: athena why

Sent: Friday, December 07, 2001 3:13 PM

Subject: Re: [] Dress Shoes

shannon, i feel your pain completely! i sprained my

ankle at my junior prom because i tried to wear shoes

that had a one inch heel. this was before i was

diagnosed. at my graduation in '99, we had to wear

white and i had the ugliest white flat shoes, but at

least i didn't fall. (it sucks having to go through

life worrying about stupid little things like

falling.) but anyway, i have three younger sisters and

all of them are perfectly healthy and athletic. it

does sadden me sometimes seeing them dressed up with

their cute shoes. my 18 year old sister actually

works in a shoe store and she has like 32 pairs of

shoes. i've even started crying a couple times when

shopping in her store. ok i'm rambling, but i just

wanted to share my anxieties about shoes with you.

you are not alone! -kelly--- shannon marzinski

<butterflypower@...> wrote:

> yeah it gets easier with time, Knowing that you

> can't wear dress shoes.

> You begin to be more accepting.

> What makes things hard for me is I have a ten year

> old sister whom I love

> dearly when she is not being a brat and she wears

> around the same size

> shoe as me and gets to wear 'cool' and 'nice' and

> 'dressy' shoes....

> IT SUCKS....THINGS WOULD BE EASIER IF I WASN'T

> COMPARING MY SHOES TO

> HERS.....ERRR....

> Just thought I'd share

>

>

________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

__________________________________________________

[Guest guest]

Could be worse...you could have been like me and missed out on your

homecomings AND your proms due to the old 'dress shoe issue'. I should

have bit the bullet and went in wrestling shoes. :-) I could have

started a new fad back then. All the guys would have been asking me if

I wrestle...it's a great conversation starter. ;-)

On Sunday, December 9, 2001, at 01:55 PM, shannon marzinski wrote:

> Err....I WENT TO HOMECOMING AND DIDN'T WEAR MY AFO'S BECAUSE THEY ONLY

> FIT WITH TENNIS SHOES....what a mess! I had horrible balance and my

> ankles kept collapsing.....IT'S A choice you have to make-AFO'S or

> falling down?

> I guess AFO'S

>

> ________________________________________________________________

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>

>

>

>

[Guest guest]

Hi ! I can relate! Saturday I went to a really fancy christmas party

for my work and everyone was supposed to dress formal. So I didn't want to

wear my Nike tennis shoes(the only shoes I can wear and not fall) so I

decided to wear dress shoes. Big mistake! I fell in front of everyone and my

knee was bleeding badly. It was so embarrassing! I was so mad at myself for

not wearing my tennis shoes. I would have enjoyed myself so much more if I

had not tried so hard to be 'normal'.

P

-----Original Message-----

From: shannon marzinski [mailto:butterflypower@...]

Sent: Sunday, December 09, 2001 1:55 PM

Subject: [] dress shoes

Err....I WENT TO HOMECOMING AND DIDN'T WEAR MY AFO'S BECAUSE THEY ONLY

FIT WITH TENNIS SHOES....what a mess! I had horrible balance and my

ankles kept collapsing.....IT'S A choice you have to make-AFO'S or

falling down?

I guess AFO'S

________________________________________________________________

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