My Introduction

[Guest guest]

Hello to all of you, my name is Sharon. I am 56 yrs. old, I am blessed with

a wonderful " significant other " in my life, as well as, a healthy 33 year old

son. I work everyday as the secretary to the principal at a small elementary

school in rural, upstate NY. Life is perfect except for one small flaw, I have

CMT.

At 41 I began to drop my right hip and limp. I experienced strange

sensations like what I perceived stroke victims would feel. When my tests, by a

neurologist, were finished, (I found those tests to be very uncomfortable), he

told me I had CMT, there was no cures or medications for it, I might stay the

same or end up in a wheel chair, and there was not any reason for me to come

back. I was horrified! I wasn't given any written information, any suggestions

of contacts, MDA, nothing. I do not know what type I have and needless to say I

have not been back.

Well life goes on.......so this many years later I find all of you. Until

now I have never met or spoken with a single person that has CMT. I am so HAPPY

to share with all of you!!!

My day to day life is not to bad. My mind is always on my steps and when I

am walking in public by myself I use a cane. I sometimes think I am to careful

and I know I am to conscious of what I look like to other people. My movements

have gotten worst over the years, my hands have started showing the effects of

the CMT, but for the most part I get about life OK. I do not have any pain,

etc. and after reading the forums I know I am one of the fortunate ones.

I do understand the frustrations, fears and embarrassments that we all have.

I was a strong, athletic person growing up and remained so right up until I

began feeling the effects of CMT. I have my bad days, but I try real hard to

keep a positive mental attitude.

I am looking forward to hearing from all of you. Regards, Sharon