Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Sue and others: In addition to CMT Type 2, I was born with cataracts and also suffered from a lazy eye (eye muscle problems). I had five eye operations as a child; at least one of which was a muscle operation. I do not have perfect binocular vision now, but the lazy eye is barely visible. At that time, nobody knew about the CMT (no clear history in the family), and they attributed my clumsiness to my poor vision. Fortunately, after the surgeries my vision much improved and this past year I was able to get lens implants so that I don't even have to wear glasses any more except to read. As far as the CMT is concerned, my MDA neurologist told me that he thinks that the congenital cataracts were related to the CMT. There is one type of CMT associated with congenital cataracts but it is also associated with facial dysmorphism and mental retardation (fortunately, I have neither). In terms of hearing, my father is about 90% deaf and was told that it is nerve deafness. He's 73 and has never been told that he has CMT but his ankles and legs are very skinny and he does have high arches - it doesn't seem to have progressed further than that if it is CMT. He has never been tested and doesn't seem that interested in pursueing it, but it does seem that he might be the genetic link to my CMT. Eye muscle problems often CAN be fixed. Good luck. Peace, Marti Quote Link to comment Share on other sites More sharing options...
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