Re: CMT hearing..

[Guest guest]

Thanks Marti,

paticularly for the info on your dad and his hearing problem. I guess I

should go get it taken care of. Just picture trying to get 28 high

school students, who are passionately learning and working on film &

video projects in a classroom and trying to get them to be COMPLETELY

quiet, so I can hear a question. Sometimes I actually have to wheel

right over to the student to hear the question. Ok,Ok, I'll make an

appointment on Monday!

Thanks

Peace & love to All

Judy g.

mmc3737@... wrote:

> Sue and others:

> In addition to CMT Type 2, I was born with cataracts and also

> suffered from a lazy eye (eye muscle problems). I had five eye

> operations as a child; at least one of which was a muscle operation.

> I do not have perfect binocular vision now, but the lazy eye is

> barely visible. At that time, nobody knew about the CMT (no clear

> history in the family), and they attributed my clumsiness to my poor

> vision. Fortunately, after the surgeries my vision much improved

> and this past year I was able to get lens implants so that I don't

> even have to wear glasses any more except to read.

> As far as the CMT is concerned, my MDA neurologist told me that

> he thinks that the congenital cataracts were related to the CMT.

> There is one type of CMT associated with congenital cataracts but it

> is also associated with facial dysmorphism and mental retardation

> (fortunately, I have neither).

> In terms of hearing, my father is about 90% deaf and was told

> that it is nerve deafness. He's 73 and has never been told that he

> has CMT but his ankles and legs are very skinny and he does have high

> arches - it doesn't seem to have progressed further than that if it

> is CMT. He has never been tested and doesn't seem that interested in

> pursueing it, but it does seem that he might be the genetic link to

> my CMT.

> Eye muscle problems often CAN be fixed. Good luck.

> Peace, Marti

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