Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 Hi and welcome to the group! I am on week 9 of tx and so far it has been bearable. The first few weeks were scary in that I kept expecting really bad sides but when nothing happened I worried that the tx woasn't working. Eventually, I did get rashes which itched alot but then dissapeared. I would say what I learned was not to worry too much about the sides until you actually get them. I spent alot of my energy worrying and being paranoid about every little feeling or itch or pain, thinking it was the beginning of something horrible. If and when you get them, then don't keep them to yourself like I did for so long. I only asked my doctor for help with the itching after getting feedback from the group. So all in all, I would say don't make yourself sicker by worrying needlessly but if something happens, kick up a fuss at the doctor's office. Now you should be spending your time making sure you're as strong as you can be healthwise and mentally! <linda68082@...> wrote: Hi everybody, This weekend I'm starting my treatment. Not scared of the treatment, but anxious about how I'll react to it--you know, what side effects I'll have. For those of you who are in treatment or already been through treatment, what one piece of information stands out in your mind as being important to pass on to others? Your advice will be much appreciated. in Ann Arbor --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 I just started treatment a week ago, however I have been in a support group for 1 year previously and heard every story that there is, I guess, so when I got a fever of 102 the first night, it was to be expected. No fevers since then though, so I feel great except in the late afternoon, and evening I get tired sooner, than later. My biggest thing about treatment is to plan my days ahead of time to ensure that I can always rest, and staff COOL during this stupid So Cal. heat wave, anytime I might need too. I really want to spoil my body you might say, at this time and not fight against it. good luck ! Everett <linda68082@...> wrote: Hi everybody, This weekend I'm starting my treatment. Not scared of the treatment, but anxious about how I'll react to it--you know, what side effects I'll have. For those of you who are in treatment or already been through treatment, what one piece of information stands out in your mind as being important to pass on to others? Your advice will be much appreciated. in Ann Arbor --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Thanks so much for the information. I'm trying to keep a positive outlook and not worry too much about the possible side-effects, and hopefully will just take it one day at a time. I hope I follow you in that treatment is bearable. > Hi everybody, > > This weekend I'm starting my treatment. Not scared of the treatment, > but anxious about how I'll react to it--you know, what side effects > I'll have. > > For those of you who are in treatment or already been through > treatment, what one piece of information stands out in your mind as > being important to pass on to others? > > Your advice will be much appreciated. > > in Ann Arbor > > > > > > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Sounds like a good plan and I plan on spoiling my body as well! I've thought about what I need to do to plan my days, and that's the part that will be difficult to do since I'm a rather spontaneous type of person. But we have to do what we have to do. Sounds like it's going not so bad for you, and I hope that I do as well. Getting ready for the injection and kind of queasy thinking about it ... not fond of needles. Thanks for sharing, and take care of yourself ~ Hi everybody, > > This weekend I'm starting my treatment. Not scared of the treatment, > but anxious about how I'll react to it--you know, what side effects > I'll have. > > For those of you who are in treatment or already been through > treatment, what one piece of information stands out in your mind as > being important to pass on to others? > > Your advice will be much appreciated. > > in Ann Arbor > > > > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 HI LINDA.I AM A FEMALE NURSE FROM PAKISTAN .AND HAD WORKED IN GASTROENTROLOGY DEPARTMENT.I CAN UNDERSTAND U BEEN ANXIOUS TO KNOW MORE AND MORE ABOUT THE SIDE EFFECTS OF THERAPY.I THINK THAT SHALL BE THE COMBINATION IF INTERFERON AND RIBAZOLIN.WELL U CAN DEVELOP1 . FEVER... MORE IN THE INITIAL PHASE .SO THAT SHALL BE PRUDENT IF U TAKE PARACETAMOL WITH THE INJECTION.2FATIGUE...MANY PATIENTS C/O MARKED FATIGUE..AND THIS SYMPTOM WAX AND WANE DURING THE COURSE...TRY A LOT FLIUDS AND MILD STRECHING EXERCIZES TO MINIMISE THE SIDE EFFCT.....3..HOT FALSHES.....WELL U MADE A RIGHT DECISION BY STARTING THE REGIMEN IN WINTER....4..SWEATING..YES NIGHT SWEATS CAN SOMETIME MAKE U FEEL SICK ....5...DEPRESSION ANXIETY ANGER OUTBURSTS....PSCYCHAITRIC SYMPTOMS CAN BEE DISTURBING...AND MANY PATIENTS LEAVE THE THERAPY DUE TO THE SYMPTOMS...BUT KNOWING U CAN SUFFER =FROM THSE CAN HELP U TO COMBATE THE SYMPTOMS....REALXING EXERCISES....DEEP INHAHATION ...MEDITATION..AVOIDING THE IRRITANTS....CAN REALLY OFFSEE THE PROBLEM...THINK POSITIVELY...POSITIVE ATTITUDE HELPS A LOT ..IF U STAY CALM AND LET THE WHOLE OF U TOGETHER...I THINK U WILL DEF SUCCEED IN HANDLING THE SYMPTOMS...READ GOOD BOOKS...LONG WALKS..MEETING GOOD FRIENDS...FAMILY SUPPORT...MEDITIATION...CHURCH...MUSIC....ALL WILL HELP.....6.ANY ABNORMAL BLOOD TEST....CHECK OUT AND DISCUSS WITH THE DOCTOR.... GOD BLESS U. BYE. > > Hi everybody, > > This weekend I'm starting my treatment. Not scared of the treatment, > but anxious about how I'll react to it--you know, what side effects > I'll have. > > For those of you who are in treatment or already been through > treatment, what one piece of information stands out in your mind as > being important to pass on to others? > > Your advice will be much appreciated. > > in Ann Arbor > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 HI AGAIN LINDA..SORRY I HAD TO LEAVE ..THERE ARE CERTAIN OTHER SIDE EFFECTS. IT HOUGHT I SHOULD MENTION TOO.....U CAN HAVE WEIGHT LOSS...U CAN DEVEOP SOME KIND OF PUFFINESS OF FACE...AND YOU MAY HAVE HAIR LOSS TOO...GOOD VEGETABLE NUTIRITION IS THE ANSWER TO COUNTER THESE PROBLEMS...PARTIALLY...I WILL NOT ADVISE U TO TAKE ANY NUTRITIONAL FORMULA..EXCEPT THOSE PRESCIBED BY THE DOCTOR...UR LIVER NEEDS REST..AND ALL THE MULTIVITAMINS AND FORMLAS ARE METABOLIZED IN THE LIVER... RED SIGNS........DONT GET DISCOURAGED....KEEP IT UP AND KEEP SMILING.........ITS ONLY FOR 24 WEEKS..AND AFTER THAT U WILL BE FREE FROM THE VIRUS...ROAD TO RECOVERY AND HEALTH......TAKE CARE.....SARA Hi > everybody, > > > > This weekend I'm starting my treatment. Not scared of the > treatment, > > but anxious about how I'll react to it--you know, what side > effects > > I'll have. > > > > For those of you who are in treatment or already been through > > treatment, what one piece of information stands out in your mind > as > > being important to pass on to others? > > > > Your advice will be much appreciated. > > > > in Ann Arbor > > > > > > > > > > > > > > --------------------------------- > > How low will we go? Check out Messenger's low PC-to-Phone > call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 HI, I START INJECTIONS IN 2 WEEKS. I'M WONDERING IF WORKING IS AT ALL POSSIBLE WHILE ON INJECTIONS OR ANY OF THIS MEDICINE. I CAN WORK NOW FOR ABOUT 4 HOURS AND THEN I'M TO EXHAUSTED. THESES SIDE EFFECTS ARE SCAREY!!!!! MY FAMILY TELLS ME TO GO ON DISABILITY. I'VE ALWAYS WORKED SO I KNOW NOTHING ABOUT DISABILITY. sunlandpak <no_reply > wrote: HI AGAIN LINDA..SORRY I HAD TO LEAVE ..THERE ARE CERTAIN OTHER SIDE EFFECTS. IT HOUGHT I SHOULD MENTION TOO.....U CAN HAVE WEIGHT LOSS...U CAN DEVEOP SOME KIND OF PUFFINESS OF FACE...AND YOU MAY HAVE HAIR LOSS TOO...GOOD VEGETABLE NUTIRITION IS THE ANSWER TO COUNTER THESE PROBLEMS...PARTIALLY...I WILL NOT ADVISE U TO TAKE ANY NUTRITIONAL FORMULA..EXCEPT THOSE PRESCIBED BY THE DOCTOR...UR LIVER NEEDS REST..AND ALL THE MULTIVITAMINS AND FORMLAS ARE METABOLIZED IN THE LIVER... RED SIGNS........DONT GET DISCOURAGED....KEEP IT UP AND KEEP SMILING.........ITS ONLY FOR 24 WEEKS..AND AFTER THAT U WILL BE FREE FROM THE VIRUS...ROAD TO RECOVERY AND HEALTH......TAKE CARE.....SARA Hi > everybody, > > > > This weekend I'm starting my treatment. Not scared of the > treatment, > > but anxious about how I'll react to it--you know, what side > effects > > I'll have. > > > > For those of you who are in treatment or already been through > > treatment, what one piece of information stands out in your mind > as > > being important to pass on to others? > > > > Your advice will be much appreciated. > > > > in Ann Arbor > > > > > > > > > > > > > > --------------------------------- > > How low will we go? Check out Messenger's low PC-to-Phone > call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Hi Sara, Thanks for all the good information. I hadn't realized about the night sweats, so definitely this time of year to begin really works. Weight loss would be a bonus .... that I can deal with no problem at all! Unfortunately, since I'm Genotype 1, I'll be on the treatment for 48 weeks instead of 24. I have to keep telling myself to take it one day at a time. Thanks again for your help. Hi > > everybody, > > > > > > This weekend I'm starting my treatment. Not scared of the > > treatment, > > > but anxious about how I'll react to it--you know, what side > > effects > > > I'll have. > > > > > > For those of you who are in treatment or already been through > > > treatment, what one piece of information stands out in your mind > > as > > > being important to pass on to others? > > > > > > Your advice will be much appreciated. > > > > > > in Ann Arbor > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > How low will we go? Check out Messenger's low PC-to- Phone > > call rates. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 I was diagnosed with HVC genotype 3a last year. HCV is in remission after 19 weeks of treatment with 5 more to go! meaning I am a responder of the pegasys treatment. There some days that my energy level is low but able to continue working through the treatment. At the begginning of the treatment the worst was the body ache, nauseas and restless feeling. I use the thights area for the weekly injection. Acetaminophen prior of the injection easy the body ache. I have lost weight and also my hair is thinner. Try to keep the stress level low, which is easy to say than done, always help. Don't give up! Good luck with your treatment. <linda68082@...> wrote: Sounds like a good plan and I plan on spoiling my body as well! I've thought about what I need to do to plan my days, and that's the part that will be difficult to do since I'm a rather spontaneous type of person. But we have to do what we have to do. Sounds like it's going not so bad for you, and I hope that I do as well. Getting ready for the injection and kind of queasy thinking about it ... not fond of needles. Thanks for sharing, and take care of yourself ~ Hi everybody, > > This weekend I'm starting my treatment. Not scared of the treatment, > but anxious about how I'll react to it--you know, what side effects > I'll have. > > For those of you who are in treatment or already been through > treatment, what one piece of information stands out in your mind as > being important to pass on to others? > > Your advice will be much appreciated. > > in Ann Arbor > > > > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
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