(((((Jana))))))): Re New Diagnosis JANA

[Guest guest]

ahhhhh honey, honesty is great? has it gotten you in as much trouble as it has

me???????

seems like we share a lot of same medical problems........ I don't talk

treatment much on

lists ...... I get slammed and am depressed and lonely enough, don't need

that..... I wrote

you personally......... I am here for you always... Where do you live?????

hepperhugz, sally

>

> Hello all again, I just got another computer and was so happy to

> read the responses I got from Bob, Sally, Beck, and April! WOW, I

> never expected those type of responses, NEVER. I want to thank you

> so much for the love and caring that you showed me, not to mention

> the info. I see that yall know what you are talking about and soooo

> cool. Got the personal addresses and will respond,thank you for

> inviting me to do so.

> I am an old hippy and played hard too, I need to say that first off

> so I am being totally honest. As far as contracting Hep C it did say

> in my records that is was prob due to blood transfusion after

> bothched hystorectomy in 1991, it said I had bad response to

> transfusion, then of course the rest was unreadable, but hey who

> knows I may have gotten contracted it before, I too was very crazy,

> still am as matter of fact, just not in same way.

> Had vaginal hysto in 1991, doc cut my ureter during procedure, 2

> weeks later was finally taken to E.R. with 106 temp and xray tech

> asked me when I had my kidney taken out? I said never, and he made

> phone call and I don't remember much after that. I woke up and they

> wanted to take my right kidney out, they said it was frozen. But

> they decided to try Nephersostomy to try to save it. A rod was

> inserted up my ureter to keep it open I guess, doc said if he tryed

> to sew it back up it would fall apart, because my insides were like

> mush from all of the peritonitis, had to let it all heal. So begins

> the scar tissue.... After almost a year of in and out of hosp,

> sepsis, tons of antibiotics, more surgeries, I was 83 lbs and on my

> way back to recovery. In the next 6 years I would have to have 5

> more surgeries to remove adhesions strangling my bowels. Then I

> moved back to home town in IL and knew I had another obstruction of

> my bowel, went to E.R. told them I knew what it was and doc said I

> was drug seeking and sent me home on 8mg morphine, where I proceeded

> to lay in bed, while my upper bowel blew up in 2 places. Again after

> son found me, rushed to E.R. with 106 again, peritonitis, the whole

> bit. The did emergency surgery, which failed and had to go back in

> again 24 hours later, I woke up in ICU with 2 iliostomies on gut.

> Long stay in hosp back came out 70lbs and using a walker, this was

> lil over 5 years ago. They had removed my gallbladder, and

> apendects, long ago with one of my ovaries. App 6 months after

> iliostomies were placed it was time for easy part, the take down. It

> was gonna be a breeze! So they said, ended up in I.C.U. with staff

> in wound, sepsis, peritonitis, and congestive heart failure finally.

> Docs told my sons I would never make it through the night. God must

> of had other plans for me though, cause here I am. They said no

> medical reason in the world why I should be alive. BOY DID I EVER

> AGREE TO THAT!!!!!! LOL I had been on I.V. for almost a year,

> strongest antibiotics they had burnt my viens up, had to have

> central lines, just a big mess. I vowed as soon as I was able to

> pack up and move to FL and 6 months later I was here. Chucked all

> the crap and took off, just like the old gypsy in me. Have lived

> heree now for over 4 years and only went to E.R. last year for first

> time, now they know me personally and don't like me. I am on Perm.

> Disability, chit medicaid insurance, and I have Chronic

> Pancreatitis, which they admitted me for and had me ready for

> surgery until they got my records, and told me " operating on me

> would be like a blind man walking through a land mine field! " OKAY

> thanks for the news. lol So this past year has been nothing but

> downhill and just started on strong pain meds, OxyContonin, which is

> no big deal to me, since I have the tolerance of an elephant for

> opiates. Last visit to E.R. in Nov the found a 3.5 cm tumor on my

> kidney, but doc wants me to go get Hep C taken care of first by

> Gastro guys. Which brings us finally to where I posted first post. I

> have read about that medicine and I don't feel I am a candidate for

> it. Not with the Pacreatitis and marked " inoperable, unless life and

> death " . Plus I just don't want to let them do anything to me. I feel

> bad often but not that bad, not yet anyway. I try to live healthy,

> am very positive, very spiritual and I am ready anytime my GOd wants

> to take me. My sons aren't but that is another story. I just don't

> want to make anything worse, like yall wrote me about. Yes I would

> love to know how bad my liver is, but I don't want it to cause the

> crap to starting running wild and be dead in a year. I don't trust

> docs and just feel like why mess with it? I don't know. I am still

> happy to be alive at 52, but do not want to go in and never come

> back out of hosp. Well to you Sally, April, Bob, and Beck, what

> beautiful souls you are. I am so sorry we had to cross paths this

> way, but also greatful to God you are here for me. Hope to keep this

> thing up and running, kind of like myself. lol Merry Christmas to

> everyone and GOD BLESS YOU ALL. Thank You JANA

>

> JanetPompa@...

>