CHILDREN

[Guest guest]

> To those of us who have children in our lives,

> whether they are our own,

> grandchildren, nieces and nephews, or

> students...here is something to make

> you chuckle.

>

> Whenever your children are out of control, you can

> take comfort from the

> thought that even God's omnipotence did not extend

> to His own children.

>

> After creating heaven and earth, God created Adam

> and Eve. And the first

> thing he said was, " Don't. "

> " Don't what? " Adam replied.

>

> " Don't eat the forbidden fruit. " God said.

>

> " Forbidden fruit? We have forbidden fruit? Hey,

> Eve...we have forbidden

> fruit! "

> " No way! "

>

> " Yes, way! "

>

> " Do NOT eat the fruit! " said God.

>

> " Why? "

> " Because I am your Father and I said so! " God

> replied, (wondering why he

> hadn't stopped creation after making the elephants).

>

> A few minutes later, God saw His children having an

> apple break and was He

> ticked!

> " Didn't I tell you not to eat the fruit? " God, as

> our first parent, asked?

>

> " Uh huh " , Adam replied.

>

> " Then why did you? " said the Father.

>

> " I don't know " , said Eve.

>

> " She started it! " Adam said,

>

> " Did not! " " Did too! " " DID NOT! "

> Having had it with the two of them, God's punishment

> was that Adam and Eve

> should have children of their own. Thus, the

> pattern was set and it has

> never changed! But there is reassurance in this

> story. If you have

> persistently and lovingly tried to give children

> wisdom and they haven't

> taken it, don't be hard on yourself. If God had

> trouble raising children,

> what makes you think it would be a piece of cake for

> you?

>

> Advice for the day: If you have a lot of tension

> and you get a headache, do

> what it says on the aspirin bottle: " Take two

> Aspirin " and " Keep away from

> children " .

>

> CHILDREN: You spend the first 2 years of their life

> teaching them to walk

> and talk. Then you spend the next 16 telling them

> to sit down and be quiet.

>

> Grandchildren are God's reward for not killing your

> children.

>

> Mothers of teens know why some animals eat their

> young.

>

> Children seldom misquote you. In fact, they usually

> repeat word for word

> what you shouldn't have said.

>

> The main purpose of holding children's parties is to

> remind yourself that

> there are children more awful than your own.

>

> We child proofed our home 3 years ago and they're

> still getting in!

>

> Be nice to your kids. They'll choose your nursing

> home.

>

=====

Kelli D Kelmi_4@... Pictures: http://photos./Kelmi_4

__________________________________________________

[Guest guest]

I am curious. Of those of you who have children with

CMT, have you decided to tell your child about their

CMT or how long will it be before you will explain it

to them, if at all?

__________________________________________________

[Guest guest]

Somebody wrote: " I am curious. Of those of you who have children with

CMT, have you decided to tell your child about their

CMT or how long will it be before you will explain it

to them, if at all? "

I have two boys with CMT (14 and 10). When the oldest was 6 he and I got

the dx. Since then it has been natural to talk about the disease and how

it effects us and together find a way to live with it. The youngest got

the dx when he was 4. We didn’t talk so much about it with him by then but

as more effected he has been, for example the more he has noticed he can’t

run so fast as the other kids and so on, I have explained it is because of

CMT. If the kids are noticeable effected by CMT and have difficulties in

for example PT it must be the best to talk to them about it. Often you

also have to talk to the teachers about their difficulties and how do you

do that without telling the kid about it? The CMT will not go away, it is

a reality, and you have to learn to live with it even if you are a kid

(doesn’t mean to sound too though here). That doesn’t mean you have to

have long monologues about it every day. Sometimes my boys ask some

CMT-related question and I begin to talk about every thing I know in that

matter. Then they say irritated: " It’s enough mum, You have already

answered my question in you first sentence, you begin to sound like a

teacher " . I think that is because kids mostly wants short informative

answers.

Well what I finally mean is that if you have kids who have difficulties

because of CMT - it can’t be wrong to talk to them about why. Otherwise I

think they very easy gets confused and gets a bad self confident (like me,

as a kid I blamed myself and got a very low self confident as I was so

slow, weak and so on).

Regards Rose-Marie from Sweden

[Guest guest]

The day I found out that my child has CMT. I sat her down and talked to her. I

am not sure if she understood alot of it because she is only 2. I will not ever

hide the fact that her has this disease from her. That would be like robbing

her of the knowlege that she must come to know and accept. My family did not

talk about this all of our lives and I hated it. I will not put my child

through this. When she can not do what other kids her age can do I simply talk

to her about it and we try harder to accomplish this. If it can not be

accomplised, I tell her that she can do other things. You CAN NOT keep

something like this from your kids. It is not right. It is their lives that we

are dealing with. If we hide it from them and they come to find out later in

life they might resent you for not telling them earlier in life. I would not

wish that on anyone.

----- Original Message -----

From: Joyce S

Sent: Wednesday, December 12, 2001 6:49 AM

Subject: [] CHILDREN

I am curious. Of those of you who have children with

CMT, have you decided to tell your child about their

CMT or how long will it be before you will explain it

to them, if at all?

__________________________________________________

[Guest guest]

Dear Carol and Gail -

I am wondering; since I heard you speak of your

daughter first experiencing RA after getting out of

school, how many of us have children that have

developed and immune system disease.

My son has had problems with pain in his joints since

he was very young. He is 21 now and nothing shows up

on x-rays. My daughter also has problems with her

knee and shoulder and once again nothing shows on

x-rays. This is how osteo and FM started for me but

now there is plenty of evidence. My dr has told me to

watch my daughter for FM.

Please answer me back if you feel like sharing. Iris

__________________________________________________

[Guest guest]

Iris;

When my daughter was about thirteen yrs of age ...She developed TMJ (

Temporomandibular Joint ) At that time I had never heard of it and had no idea

that it was associated with any types of Arthritis. I'm sure that was probably

an early warning of something worse to come in later years.

When her RA really set in ... ( 20 yrs of age ) it was All of a sudden and

aggressive. I knew from her complaints of where she hurt...that was what she

had. Since I had already had RA myself ( at that time ) for about seven years.

We both have always wondered if our RA was brought on by ( this might sound

silly ) Electrical Shocks.

I was walking to my car in a thunderstorm ...I had my umbrella up...Part of my

hand was touching the metal part...It came a streak of lightening and it ran

down the metal handle and Nipped my finger...It stayed numb for a little while.

Not too long from that...My finger that it hit was the one RA started in.

Now years later ( Kristi ) was blow-drying her hair and an electrical storm was

brewing...lightning ran in on the outlet she was using for the dryer...Knocking

it out of her hand....She wasn't hurt ...just a slight charge.

I know this might seem off the wall or crazy...But we both think it did

something to our immune system Have any of you ever heard of this type thing

causing RA?

Hugs,

Gail

RE: [ ] RE: Children

Dear Carol and Gail -

I am wondering; since I heard you speak of your

daughter first experiencing RA after getting out of

school, how many of us have children that have

developed and immune system disease.

My son has had problems with pain in his joints since

he was very young. He is 21 now and nothing shows up

on x-rays. My daughter also has problems with her

knee and shoulder and once again nothing shows on

x-rays. This is how osteo and FM started for me but

now there is plenty of evidence. My dr has told me to

watch my daughter for FM.

Please answer me back if you feel like sharing. Iris

__________________________________________________

[Guest guest]

Gail,

I have never heard of electrical shock causing RA.

Also, I do not know anyone who has ever been hit by

lightening. Perhaps others have some thoughts about

this. I always say never say never because you never

know.

>

My first problem at 15 was the fever and swelling in

my ankle and the second was TMJ for which I had

surgery at 25. My mouth had locked up to were I

couldn't open it more than 1/2 " . There was a great

deal of pain and headaches. I've since had two other

TMJ surgeries. My son has TMJ problems, especially

while he had on his braces.

Have a good afternoon. Iris

__________________________________________________

[Guest guest]

my son suffers from scoliosis and loose joints everywhere. the orthopaedic

surgeon told him to stay in school because physical labor would kill him. he

has had and couple pins put in his knee last year. kathy in il

[Guest guest]

Hi Gail,

I don't think that it is silly for you to think that electrical shock had

something to do with your RA. I developed meningitis as a baby and almost

didn't make it. I often wonder if this had something with messing up my

immune system and causing my RA. I honestly think that a serious trauma to

the body leaves lasting marks and has to have some impact on the way the body

defends itself. Kind of like knocking the wires loose.

Love and Hugs

Stacey in PA

[Guest guest]

My daughter is 21 and has had popping knees for over 6 yrs now..and one of

her hips has a shorter muscle and causes her pain....they have been checking

her off and on for autoimmune problems from my history.Also told her she had

to quit soccer and shouldnt plan on a job that uses physical labor also.Oh

yeah, she has developed an allergy to penicillin about 6 yrs ago .

My son who is 16 now has also got allergy and asthma problems(more

environmental).He also has been told by his Dad and I to finish school...as

there is RA in his Dad's family as well as mine...I have had a history of

medical allergies for yrs and was always sick as a kid...

Too bad I couldnt raise them in foam padded bubbles. Judyin AZ

[Guest guest]

My son had exercise induced asthma, but has grown out of it thank goodness.

Love and Hugs

Stacey in PA

[Guest guest]

To those of us who have children in our lives,

whether they are our own,

grandchildren, nieces,

nephews,

or students...

here is something to make you chuckle.

Whenever your children are out of control,

you can

take comfort from the thought that even God's omnipotence did not

extend to His own children.

After creating heaven and earth, God created Adam

and Eve.

And the first thing he said was " DON'T! "

" Don't what? " Adam replied.

" Don't eat the forbidden fruit. " God said.

" Forbidden fruit?

We have forbidden fruit?

Hey Eve...we haveforbidden fruit!!!!! "

" No Way! "

" Yes way! "

" Do NOT eat the fruit! " said God.

" Why "

" Because I am your Father and I said so! "

God

replied, wondering why He hadn't stopped creation

after making the elephants.

A few minutes later, God saw His children having an apple break and

He was ticked!

" Didn't I tell you not to eat the fruit? " God

asked.

" Uh huh, " Adam replied.

" Then why did you? " said the Father.

" I don't know, " said Eve.

" She started it! " Adam said

" Did not! "

" Did to! "

" DID NOT! "

Having had it with the two of them, God's

punishment was that Adam and Eve should have children

of their own.

Thus the pattern was set and it has never changed.

BUT THERE IS REASSURANCE IN THE STORY!

If you have persistently and lovingly tried to give children

wisdom and they haven't taken it,

don't be hard on yourself.

If God had trouble raising children,

what makes you

think it would be a piece of cake for you?

THINGS TO THINK ABOUT!

1. You spend the first two years of their life

teaching them to walk and talk.

Then you spend

the next sixteen telling them to sit down and shut

up.

2. Grandchildren are God's reward for not killing

your own children.

3. Mothers of teens now know why some animals eat

their young.

4. Children seldom misquote you.

In fact, they

usually repeat word for word what you shouldn't have said.

5. The main purpose of holding children's parties

is to remind yourself that there are children more awful than

your own.

6. We child proofed our homes, but they are still

getting in.

ADVICE FOR THE DAY!

Be nice to your kids.

They will choose your nursing

home.

AND FINALLY:

IF YOU HAVE A LOT OF TENSION

AND YOU GET A HEADACHE,

TAKE THE ADVICE ON THE ASPIRIN BOTTLE:

" TAKE TWO ASPIRIN " AND " KEEP AWAY FROM CHILDREN "

You've gotta admit there's some wisdom here.

Kathi in OK

[Guest guest]

LOL, ! The Three Little Pigs story was especially funny.

Hope you are well.

[ ] Children

> For those with no children- this is totally hysterical! For those who

already have children past this age, this is hilarious. For those who

have children this age, this is not funny. For those who have children

nearing this age, this is a warning. For those who have not yet had

children, there is always birth control.

>

> The following came from an anonymous Mother in Austin, Texas:

>

> Things I've learned from my Children (honest & no kidding):

>

> 1. A king size waterbed holds enough water to fill a 2000 sq. ft.

house 4 inches deep.

>

> 2. If you spray hair spray on dust bunnies and run over them with

roller blades, they can ignite.

>

> 3. A 3-year-olds voice is louder than 200 adults in a crowded

restaurant.

>

> 4. If you hook a dog leash over a ceiling fan, the motor is not strong

enough to rotate a 42-pound boy wearing Batman underwear and a Superman

cape. It is strong enough, however, if tied to a paint can, to spread

paint on all four walls of a 20x20 ft. room.

>

> 5. You should not throw baseballs up when the ceiling fan is on. When

using a ceiling fan as a bat, you have to throw the ball up a few times

before you get a hit. A ceiling fan can hit a baseball a long way.

>

> 6. The glass in windows (even double-pane) doesn't stop a baseball hit

by a ceiling fan.

>

> 7. When you hear the toilet flush and the words " uh oh, " it's already

too late.

>

> 8. Brake fluid mixed with Clorox makes smoke, and lots of it.

>

> 9. A six-year old can start a fire with a flint rock even though a

36-year-old man says they can only do it in the movies.

>

> 10. Certain Lego's will pass through the digestive tract of a 4-year

old.

>

> 11. Play dough and microwave should not be used in the same sentence.

>

> 12. Super glue is forever.

>

> 13. No matter how much Jell-O you put in a swimming pool you still

can't walk on water.

>

> 14. Pool filters do not like Jell-O.

>

> 15. VCR's do not eject PB & J sandwiches even though TV commercials show

they do.

>

> 16. Garbage bags do not make good parachutes.

>

> 17. Marbles in gas tanks make lots of noise when driving.

>

> 18. You probably do not want to know what that odor is.

>

> 19. Always look in the oven before you turn it on plastic toys do not

like ovens.

>

> 20. The fire department in Austin, TX has a 5-minute response time.

>

> 21. The spin cycle on the washing machine does not make earthworms

dizzy.

>

> 22. It will, however, make cats dizzy.

>

> 23. Cats throw up twice their body weight when dizzy.

>

> 24. The mind of a 6-year old is wonderful. First grade...true story:

>

> One day the first grade teacher was reading the story of the Three

Little Pigs to her class. She came to the part of the story where the

first pig was trying to accumulate the building materials for his home.

She read: " And so the pig went up to the man with the wheelbarrow full

of straw and said, 'Pardon me sir, but may I have some of that straw to

build my house?'' " The teacher paused then asked the class, " And what

do you think that man said? " One little boy raised his hand and said,

" I think he said...'Holy crap! A talking pig!' " The teacher was unable

to teach for the next 10 minutes.

>

> 25. 60% of men who read this will try mixing the Clorox and brake

fluid.

[Guest guest]

Welcome to the group .

My kids were 7 and 9 when I was diagnosed. It took me a couple of

days to " collect myself " but as soon as I was able to hold a

conversation without emotion, I did and told them everything in a

very matter of fact way.

I told them that I went to the doctor, had a blood test and found

out that I had leukemia. We talked about what leukemia was the same

way you might discuss how to make a particular recipe. It was

information without emotion. I didn't want them to be scared or

worried and I didn't want it to turn into a dramatic conversation. I

just wanted them to be informed. I couldn't dream of keeping it a

secret from them as I wouldn't want someone close to me, keeping a

secret like that from me.

Their first question was " are you going to die " to which I

responded, " yes, but everyone will at one time or another " . I

explained that there was a great new drug, that I was going to try

to get (at that time Gleevec wasn't front line treatment) and that

this drug was going to help me to stay alive for as long as I could

but no one knows the future.

At that time, I wasn't sure if I would have a BMT so I told them

that and explained that there were alot of things we didn't know

just yet but that as we find them out, we'll all learn together. I

said we could all get hit by a bus crossing the street tomorrow but

we can't dwell on the fear of dying. All we can do is take care of

ourselves as best we can and make sure we look both ways before

crossing the street

They were very cool with the subject and we focused on the science

part of it, not the emotional part of it. A year later my older

daughter did a project in school on blood and how blood functions.

She insisted on doing the entire project without any help from me

and when she was done she proudly displayed her work which made me

realize that she understood blood and the lymphatic system better

than most adults! I was very proud of her and amazed at just how

much she really understood.

Now my kids are 12 and 14 and CML is just a regular part of our

lives as is the weather. They see me take my pills, they know when

I have doctors appointments etc. To them, my doctors appointments

are no different than dentist appointments or any other appointments

for that matter.

Your kids are so young though, that you probably don't even need to

have a formal discussion with them. If they see your husband taking

a pill and they ask why is Daddy taking that pill, you can casually

say " that's for his leukemia, it helps to make his blood healthy "

and leave it at that then answer their questions as they come up. Or

if they see him limping around a bit after having a BMB, you can say

casually that Daddy had a test today that hurt his back a little but

he'll feel better soon.

I also use all the proper terms like " leukemia " and " CBC " or " bone

marrow biopsy " etc, because I don't want them to fear the words.

Some people can't say the word " cancer " , they call it " the C word " .

I believe if you can't say the word, it just reinforces the fear

that this must be a really bad thing. Of course cancer is not a

good thing but it doesn't have to a horrible, deathly fear either.

If you don't make CML an issue, it won't be one. That's my motto at

least

Take care,

Tracey

dx Jan 2002

--- In , " red_s0cks_suck " <red_s0cks_suck@...>

wrote:

>

> Hi my name is and my husband has CML. He was diagnosed in

Dec.

> of 2003 two days after Christmas and one month after our second

son

> was born. We both had a very hard time with this and still do.

Since

> then we have had another baby, a girl (finally-lol) and we are

closer

> than ever before. The biggest problem that we are having right now

is

> the question on how to tell our childern about his illness. He is

> doing pretty good right now that's why we rather tell them now so

it

> doesn't scare them as much if he gets bad again. I have asked

family

> and friends for advice and all they say is just tell them like

it's no

> big deal or something. My oldest son will be 5 in Nov., my other

son

> will be 3 in Nov.,and my daughter just turned one at the end of

June.

> I realize that my oldest son is the only one who would really

> understand at least somewhat but we believe that he has the right

to

> know. Please anyone who has any advice I would be so greatful.

> Thankyou.

>