Re: Re: confused/ new member

[Guest guest]

I agree that there comes a moment when you have to collect yourself...and

decide to go on.

Everyone handles it differently though, and different is not wrong..just

different.

Take the time you feel that you need to cry and be mad.

I was angry and cried off and on for probably four months!

Let yourself experience the emotions of it...and it WILL pass.

I even had some days in the beginning when I really didnt want to live with

it,

and that was primarily after I had been to the doctors at the clinic I was

sent to.

Once the clouds over my head cleared...I made a decision to do the best I

could

with what I had...and figure this out for the sake of those people that love

me.

It isn't all about ME..

I have a responsibility to my son who has it as well...he is only 8...

And unfortunately he has a father who reacted much like every other

uneducated person out there...and has chosen to bury his head even

further..so I know that he will be NO help to my little guy...its up to me.

I know this sounds counterproductive...but it may also be a good idea for

you NOT to spend too much time in groups like this until you are more

comfortable with where you are, and you have settled emotionally a bit.

It can be overwhelming at times. The folks in these groups have much to

offer each other with their experiences don't get me wrong...but you need

to be aware that we all have different circumstances and levels of health,

and some of it may never apply to you...but it's easy in the beginning to

assume the worst if you absorb too much of it.

Do some research on your own...

Don't believe everything you read...there isnt much data out there, this is

a relatively new illness, there isnt a great deal of research yet.

So the stuff that you will read...you will find yourself reading over and

over

its all the same stuff...different doctor, different title but the same stuff.

(so you only have to read one)

The statistical information hasnt changed in the two years Ive been reading

it.

they all still have the same numbers....so, that tells me that no one is

really

keeping track.

Be your own best friend right now....