Re: - the nerve biopsy

[Guest guest]

Again thank you Gretchen. my son is only 4 yrs. old. i

guess that is why i worry so much. and it might just

be the mother in me lol. but i have heard of others

with pain after the biopsy that never goes away. the

doctor said he would just have numbness behind his

ankle. the doctor also said he would be asleep for the

biopsy and a spinal tap scheduled on the same day.

maybe the two could be to much. but with an hour drive

every trip if it can be done the same day without it

being to much i am all for that lol. it's just hard to

see him go through so much. but he is stronger than i

am. although he has gotten to be terribly shy due to

this. he's more of a loner now. and i worry about the

effects of every visit and every test now because of

it.

renee

--- Gretchen Glick <liliwigg@...> wrote:

> Hello ,

>

> I posted that bit about nerve biopsy because I just

> found the site and

> it is very good. Now it is in bookmarks. While I

> don't know your son's

> age, I had a biopsy (nerve and muscle when I was 14.

> Nothing to it. Not

> even given an anesthetic other than a local. Stayed

> in the hospital only

> 2 or 3 days (this was 1966) Just had to wear

> bandages and keep incisions

> clean, etc. I only had a bit of pain as I started to

> walk, well, of

> course, a smidgeon of my nerve/muscle had been cut.

> As the muscles and

> nerves healed, I walked A OK again, never had any

> bad effects to this

> day.

>

> The biopsies are used for different reasons; in my

> case it was used to

> rule out any other neurological disorders, as I was

> being re -

> evalauted. Like I said, I have had NO PAIN in the

> rest of my life as a

> result of that biopsy. Matter of fact with all the

> tests I have had, the

> biopsy seems the easiest one.

>

> Perhaps if your son is young, you might ask about a

> sedative; maybe even

> now parents are allowed in with children, who knows?

> I would also

> suggest you ask your son's Dr. exactly WHY this

> biopsy is SO important

> NOW and what HE/SHE(the Drs) are looking for or hope

> to find.

>

> Like I said, and this was years ago, out of all the

> neurological

> invasive tests, this one was a piece of cake.

> Nothing to worry about

> with pain for the rest of his life. That contradicts

> my experience.

> Matter of fact, my scars have faded I have to look

> real hard to find

> them.

>

> Hope this helps. ~ Gretchen

>

>