Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 I would like to know if any of you have had a Intravenus Lidocaine Infusion. I am scheduled to have one on the 7th of Dec. Don't really know what to expect it is to relieve me of some of the pain in my left leg from either the CMT or the RSD the 2 seem to be just about the same symptoms wise. The pain management Doctor seems to throw alot of big medical theories out at me I don't understand even a 1/4 of them they have poked and proded me so much in the last 15 years that I told Him just tell me when to be here and if I can drive myself then do what ever it is your going to do. Hopefully it will work if not we'll try the next thing. This is the first that I have heard of this treatment I've had epidurals 13 times with absolutely no effect except more pain. They say nothing can be done for the pain in my right leg but this may help the left. So if anyone has had this infusion I would like to know if it worked or not. They don't mention the CMT much probably cause I won't have a muscle or nerve biopsy. I already know that I have RSD and CMT without the tests( have had RSD for 15 Years) they are about the same treatment wise from what I have been told and read here so any info on this infusion would really be helpful. Anyone in my area that wants crochet or quilting help all you have to do is ask and I will do my best to comply have taught a lot of senior citizens both men and women how. So if it will help I'm here 24-7 thanks for any help Stout Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2002 Report Share Posted November 18, 2002 > The only options left open for me are > Remicade or Enbrel, neither one which is in my price range. Remmy is > $1200-1300 per 100 mgms. So will make do with pain medication for now. > > +Dave > who is a bit down in the dumps over it. I'm so sorry you are down Dave.....I know how that feels all too well. HUGS You don't have an optionis of medicaid or other insurance to help with that? You can borrow my infusion.. I wish........... Liz ~~~ " I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel. " ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **ICQ 49746198** MSN & AIM LizKP1952** PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 tte, It is worth a try contacting both of the manufactures of these 2 products. Generally, they have patients in need programs, provided you meet certain income guidelines. Hope this is successful for you and is certainly worth a try! Best of Luck. Dave in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 The sad thing is that it is becoming increasingly true that only the rich will be able to afford healthcare. When an ill person has the hope of getting better through a new treatment, must instead put that hope away because of its cost, it is a sad day in America, as well as the rest of the world. I am so sorry for you, Dave. My fear is that even if my doctor approves this treatment for me in December, that our health insurance provider will deny it. There is absolutely no way I could afford this without health insurance paying. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Only the rich or the very very poor who can get medicaid. The middle classes tend to fall through the cracks. My dr. really went to town to get me remmy. I have no idea how he did. I was surprised that it went through that easily.. I hope both you guys *and others who need it** can get the meds uou need SOON!!!! On Tue, 19 Nov 2002, Ray in Virginia wrote: > The sad thing is that it is becoming increasingly true that only the rich will be able to afford healthcare. When an ill person has the hope of getting better through a new treatment, must instead put that hope away because of its cost, it is a sad day in America, as well as the rest of the world. > > I am so sorry for you, Dave. My fear is that even if my doctor approves this treatment for me in December, that our health insurance provider will deny it. There is absolutely no way I could afford this without health insurance paying. > Liz ~~~ " I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel. " ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **ICQ 49746198** MSN & AIM LizKP1952** PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 Thanks Ray and Liz. We do have Insurance to cover meds but it is a 20 percent co pay so a course of treatment would cost 3600 Dollars out of our pocket. This is if the company covers Remicade for AS, when we checked on the Pamidronate, Remicade was not approved for AS therefor they would not cover it. I really do not want to spend that much money hoping to get relief and find out I am allergic to it or it doesn't work. They can't say no to pain meds because I refuse to take Remicade thank God. I just have to be honest and say I can't afford it. There was a news story just after Remicade was approved in Canada and one guy who had wonderful results, had to discontinue it as the Government would not pay and no insurance company would either. Given the longevity that runs in the male side of my family, I will probably be on opiod medications for another 30 odd years. Or perhaps the government will change their mind and cover it after I am 65, 3.5 years from now. Methinks I may raid the Government pot operation and go out stoned. +Dave --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.419 / Virus Database: 235 - Release Date: 13/11/2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2002 Report Share Posted November 19, 2002 > Methinks I may raid the Government pot operation and go out stoned. > > +Dave Ok folks that was a joke, imagine someone 90- odd years old smoking wacky weed at the old folks home. I did say longevity is in my genes, my dad died at 93 and I still have an uncle in Wales that is around 105 - 7. Cheech and Chong would love this. BTW Tommy Chong still lives in Edmonton. +Dave --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.419 / Virus Database: 235 - Release Date: 13/11/2002 Quote Link to comment Share on other sites More sharing options...
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