Re: weight gain, sprains, walking

November 27, 2001

Hello to all, hope your holiday was great, mine was. I have been south of

the border for the last week catching lots of fish. We had a huge barbecue

on Thanksgiving featuring fresh yellowfin tuna, fresh wahoo and wild pig.

Yes we had a turkey too! We fed half of San delCabo with the fish we

caught during our yearly tournament at the Thanksgiving fiesta. We also

caught and released unharmed over 40 marlin.

I have been reading through many messages this morning and feel compelled to

respond. It seems that I am one of the few people on the site who

takes absolutely no medication for CMT. I have to consider my self very

fortunate for that. I am very physically active so I get my share of aches

and pains but aspirin works just fine for me. I do get occasional shooting

pains in my legs but a dip in the jacuzzi usually works wonders for that. I

do not suffer from extreme fatigue or depression either. I am not writing

this to brag or make any one feel worse, simply to let some of our new

members know that some people with CMT have very mild symptoms. On the other

hand I am a firm believer in natural herbs and supplementation and I truly

believe that this helps to keep me healthy. The AMA does not believe in or

condone many herbal supplements because they can not generate any revenue

from them.

The current topic seems to be revolving around fatigue and depression. It

seems that many of your physicians seem to blame everything that ails you on

your CMT. My advice is to find a new physician. I agree with , if I

overeat I gain weight, while on the other hand if I am angry I do not eat, I

work or exercise until my anger subsides.

Sara, sounds like you have good bones, I have broken too many bones although

only 2 can be attributed to my CMT, mostly my lack of brains.

Walking on grass is hard for me too. Uneven surfaces are hard.

,

In my humble opinion it sounds like your mother has some issues with your

CMT, possible guilt?? Don't know if it came from her side of the family or

your dad's. My folks kind of ignored my CMT simply because I ignored it. If

you can not find common ground with your mom on this then find a friend to

be your sounding board, it will help with the aggression. Good luck.

Last but not least, Judy brings up a very solid point regarding exercise, we

all need some form of exercise, without it our muscles wither and our lungs

don't function well. I am willing to guess that many of you who suffer from

extreme fatigue are getting little or no exercise, talk to your doctor or a

physical therapist and get going, no time like the present. I am not a

doctor and I do not know all of your medical histories so I am generalizing

here. Be positive and take it one day at a time. You can do it.

Regards,

BC

----- Original Message -----

From: SaraJane <sarajane@...>

< >

Sent: Tuesday, November 27, 2001 1:07 PM

Subject: [] weight gain, sprains, walking

> Hello Group

>

> 1) First, any weight gain I ever had was due to a) eating to much anger

issues and c) depression.

> Check you diet your mood, and your medications - all can cause weight

gain. One part of my

> body affects the whole.

>

> 2) Having CMT since childhood, I have never had a sprain or a broken bone,

and that is

> certainly not because I have never done anything! Quite the oppositite! I

am still pretty active.

>

> 3) I walk just fine on hard floors, concrete, sand and carpet, all in

barefeet OR with my

> orthotics - but give me some grass to walk on and it's over! I actually

prefer to walk on

> sand, it is more natural and contours to my feet. I grew up at the beach

so when my Dr.

> said " Walk in sand " for feet and leg muscles I did.

>

> 4) Other health problems come up in my life from time to time. I do not

try to relate them to

> CMT because they aren't. I get everything checked out by my primary

Internist FIRST, only

> if he suggests to return to my neurologist do I go. ---Sara

>

> _____________________________________________________________

> Search The Web and get Free E-Mail at http://www.spinfinder.com !

>

> Foundation: http://www..org

>

November 27, 2001

Bill thank you for your post. I sometimes think that when a newcomer comes on

board we do bombard them with our horror stories but you're post has pointed out

that each case of CMT is so totally different and it is so important the this

fact is realised.

To discover you have CMT is pretty horrible but to realise there are so many

different types is reassuring, so please all newcomers realise that things you

read on this site or not necessarily pertinent to you. We all have different

levels of CMT but the important thins is we know what

it's like to have it.

Love

Sue X

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: Bill , Digitec Security

Sent: Tuesday, November 27, 2001 11:16 PM

Subject: Re: [] weight gain, sprains, walking