Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Dear Gretchen You're probably right. I didn't for one minute consider I had anything wrong other than funny feet and funny shaped legs but I found I had to give a lot of things up before I knew I had CMT. In fact it was a relief in many many ways to have a reason for things going wrong but it didn't really lessen the pain of losing a large part of my life. Swings and roundabouts Love and hugs Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer " I Thank God for my handicaps, for through them, I have found myself, my work, and my God. " - Helen Keller ----- Original Message ----- From: Gretchen Glick ers at groups Sent: Tuesday, December 11, 2001 6:47 PM Subject: [] gaining/or giving how odd, I just don't seem to 'give up' what I love to do, just gain 'more' of what I like to do. Perhaps this comes from having childhood CMT and not mourning but forging ahead. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 In a message dated 12/11/2001 1:00:55 PM Central Standard Time, liliwigg@... writes: > Perhaps this comes from having childhood > CMT and not mourning but forging ahead. > Perhaps it comes from you KNOWING that you had CMT as a child, instead of wondering why you couldn't do what your siblings and cousins were doing. I fell constantly, broke both ankles 3 times, and my parents NEVER bothered to figure out why. I think it makes a huge difference in a person's self-image and feeling of confidence growing up. Sorry if I sound angry with you, I'm not. I think your words just hit a button that I have been trying to disable for years. It is incredible to me, even after all these years, that my parents did not even acknowledge that there might be something physically wrong with their daughter who fell up the stairs on a regular basis! C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2001 Report Share Posted December 12, 2001 my love I know exactly how you feel, my mother prevented me from having AFO's as a child because she felt I could do with out them and I'm in a wheelchair because I didn't get the help I needed. But I can't change it and getting angry and upset about it only causes me more damage no one else. It's the past and it's gone please let it go and move on. Big hug Sue X The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer " I Thank God for my handicaps, for through them, I have found myself, my work, and my God. " - Helen Keller ----- Original Message ----- From: C1520@... Sent: Wednesday, December 12, 2001 9:59 AM Subject: Re: [] gaining/or giving In a message dated 12/11/2001 1:00:55 PM Central Standard Time, liliwigg@... writes: > Perhaps this comes from having childhood > CMT and not mourning but forging ahead. > Perhaps it comes from you KNOWING that you had CMT as a child, instead of wondering why you couldn't do what your siblings and cousins were doing. I fell constantly, broke both ankles 3 times, and my parents NEVER bothered to figure out why. I think it makes a huge difference in a person's self-image and feeling of confidence growing up. Sorry if I sound angry with you, I'm not. I think your words just hit a button that I have been trying to disable for years. It is incredible to me, even after all these years, that my parents did not even acknowledge that there might be something physically wrong with their daughter who fell up the stairs on a regular basis! C Quote Link to comment Share on other sites More sharing options...
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