Re: OPINION

[Guest guest]

Well, I've been quiet for months, but I must answer this. Don't make your

daughter give up piano because of something that may or may not happen in

the future. and if it does, she'll have the knowledge of music to take in

another direction.

-----Original Message-----

From: kellybenzo [mailto:kwilson@...]

Sent: Tuesday, December 11, 2001 11:31 AM

Subject: [] OPINION

My daughter who is 6 was just diagnosed with CMT. She has been

playing the piano for about 6 months and is very good. However, I'm

contemplating now. Do I allow her to continue to play and then be

devastated because in time she may not be able to play? I figure it

would be easy now for her to give it up because she hasn't been doing

it that long. However, her teacher feels she is going to be good, so

do I let her go and hope for the best? I just don't want to see her

devote years to the piano and then lose the ability? Any thoughts?

[Guest guest]

Hi

I read somewhere that for kids with CMT that it's fine to let them do things

they enjoy and that they're good at i.e music but don't encourage her to take it

up as a career. Maybe in time kids being what they are she'll decide for herself

she doesn't want to play any more.

I think also if you were to stop her playing now it might frighten her about her

CMT and could restrict her reaching her full potential in the future.

No if I were you I would continue to let her play and the two of you enjoy her

music.

Just my thoughts

Love

Sue

PS Yes having to give it up was painful but I have some fantastic memories which

no one nor nothing can take away from me.

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: kellybenzo

Sent: Tuesday, December 11, 2001 4:31 PM

Subject: [] OPINION

My daughter who is 6 was just diagnosed with CMT. She has been

playing the piano for about 6 months and is very good. However, I'm

contemplating now. Do I allow her to continue to play and then be

devastated because in time she may not be able to play? I figure it

would be easy now for her to give it up because she hasn't been doing

it that long. However, her teacher feels she is going to be good, so

do I let her go and hope for the best? I just don't want to see her

devote years to the piano and then lose the ability? Any thoughts?

[Guest guest]

Great answer!

----- Original Message -----

From: Insabella, <_Insabella@...>

< >

Sent: Tuesday, December 11, 2001 8:47 AM

Subject: RE: [] OPINION

> Well, I've been quiet for months, but I must answer this. Don't make your

> daughter give up piano because of something that may or may not happen in

> the future. and if it does, she'll have the knowledge of music to take in

> another direction.

>

> -----Original Message-----

> From: kellybenzo [mailto:kwilson@...]

> Sent: Tuesday, December 11, 2001 11:31 AM

>

> Subject: [] OPINION

>

>

> My daughter who is 6 was just diagnosed with CMT. She has been

> playing the piano for about 6 months and is very good. However, I'm

> contemplating now. Do I allow her to continue to play and then be

> devastated because in time she may not be able to play? I figure it

> would be easy now for her to give it up because she hasn't been doing

> it that long. However, her teacher feels she is going to be good, so

> do I let her go and hope for the best? I just don't want to see her

> devote years to the piano and then lose the ability? Any thoughts?

>

>

>

>

[Guest guest]

This post is in response to asking if her 6 yr

old daughter should stop playing piano. Please

encourage her to continue! I wish my parents had

gotten me involved in music when I was young. It

doesn't have to lead to a career in music, but music

can be such a good way to unwind and relax as an

adult. I tried guitar lessons at age 30 only to find

I couldn't even hold the guitar securely, much less

PLAY the thing. But I am not a quitter. I tried for

nearly a year before I realized this hobby that was

supposed to relax me was causing me more stress, not

only from not being able to play, but also from having

the guitar lesson remind me every week that I was not

normal. I have CMT.

Also if your daughter continues to play piano at a

young age, she may develop less hand symptoms over

time than she would if her hands were not as active.

Encourage your daughter to do whatever she wants to

do. And by all means if she is good at something, she

will enjoy it and develop self confidence because of

it. And I think we all could use as much self

confidence as we can get these days!

I was discouraged from a career in medicine by many,

including my father,who thought I would never be able.

To this day I am amazed at all that I went through to

get there, and I had a fantastic 12 year career in

open heart surgery! I have applied for disability

from that career now, and I miss my work. But I did

it. I did it with the support of only my mom, and I

worked harder than most. But I would never give up a

single day of the challenge, nor of the pride I feel

from having overcome all the " naysayers " in my life!

Encourage your children in all they want out of life.

It's only my opinion, but I feel strongly about it!

Joyce

--- wrote:

>

[Guest guest]

Not yo tell you what to do, but my daugter is 2 and has CMT1A and I am not or

will not limit her to anything. If she wants to play soccer or baseball or

gymnastics or whatever, I am going to let her. She will know her limits and

know if she can not do them after she has tried. I would let her do what she

wants to. If she loves the piano by all means let her. You never know with

this crazy disease, she may not be affected very badly. She may be the next

Mozart. Keep smiling. We can not tell our kids that because of the CMT you

can't to this or you can't do that. It will only make them become hermits in my

opion. I hope I have lifted your spirts. Love, Kara

----- Original Message -----

From: kellybenzo

Sent: Tuesday, December 11, 2001 1:24 PM

Subject: [] OPINION

My daughter who is 6 was just diagnosed with CMT. She has been

playing the piano for about 6 months and is very good. However, I'm

contemplating now. Do I allow her to continue to play and then be

devastated because in time she may not be able to play? I figure it

would be easy now for her to give it up because she hasn't been doing

it that long. However, her teacher feels she is going to be good, so

do I let her go and hope for the best? I just don't want to see her

devote years to the piano and then lose the ability? Any thoughts?

[Guest guest]

Some of our greatest composers and musicians have succeded with

disabilities.

Beethoven was deaf.

Ithzak Pearlman has polio.

Ray , Stevie Wonder, Jeff Healy, Diane Schurr are all blind. Music is

a universal language that transcends all other forms of communication.

Regards,

BC

----- Original Message -----

From: Joyce S <imjerce@...>

< >

Sent: Tuesday, December 11, 2001 12:19 PM

Subject: [] Re: OPINION

> This post is in response to asking if her 6 yr

> old daughter should stop playing piano. Please

> encourage her to continue! I wish my parents had

> gotten me involved in music when I was young. It

> doesn't have to lead to a career in music, but music

> can be such a good way to unwind and relax as an

> adult. I tried guitar lessons at age 30 only to find

> I couldn't even hold the guitar securely, much less

> PLAY the thing. But I am not a quitter. I tried for

> nearly a year before I realized this hobby that was

> supposed to relax me was causing me more stress, not

> only from not being able to play, but also from having

> the guitar lesson remind me every week that I was not

> normal. I have CMT.

> Also if your daughter continues to play piano at a

> young age, she may develop less hand symptoms over

> time than she would if her hands were not as active.

> Encourage your daughter to do whatever she wants to

> do. And by all means if she is good at something, she

> will enjoy it and develop self confidence because of

> it. And I think we all could use as much self

> confidence as we can get these days!

> I was discouraged from a career in medicine by many,

> including my father,who thought I would never be able.

> To this day I am amazed at all that I went through to

> get there, and I had a fantastic 12 year career in

> open heart surgery! I have applied for disability

> from that career now, and I miss my work. But I did

> it. I did it with the support of only my mom, and I

> worked harder than most. But I would never give up a

> single day of the challenge, nor of the pride I feel

> from having overcome all the " naysayers " in my life!

> Encourage your children in all they want out of life.

> It's only my opinion, but I feel strongly about it!

> Joyce

>

> --- wrote:

> >

[Guest guest]

Well let's see. I am sixteen, and I play the piano, handbells, sing and

play HAHA the recorder flute. None of these are to an extensive extent.

(what a way to wear out the word extent) Some days are tough, others I do

just fine. I would let your daughter play if she really loves it and is

doing well at it. There may be a day that someday she won't be able to

play the piano but at least she, now, has the opportunity. For me, I

continually look back and wish that before CMT had really started taking

it's toll on me, I would have done many things I don't have the chance

for now. Also, who knows, maybe she will be able to play for a long time

without any problems at all.......We can't hold the key to the future but

if she loves it let her do it, Also like Sue said, it could scare her to

know she may not be able to do that....

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[Guest guest]

In a message dated 12/11/2001 8:34:02 AM Pacific Standard Time,

kwilson@... writes:

> My daughter who is 6 was just diagnosed with CMT. She has been

> playing the piano for about 6 months and is very good. However, I'm

> contemplating now.

Leave her in piano. She will be fine and it will be good for her. I

understand where you are coming from. I took my daughter out of dance class

because I was so heart broken when I heard the CMT news. Trama does crazy

things to us Moms.

jenny

[Guest guest]

hello all,

I think it's interesting to hear what the parents think--I have

CMT1a--so do my dad, cousins, uncles and grandmother...My parents

told me when I was really little, but same as some of you, they let

me decide what my limitations were--I always did as much or as little

as I could--but they always encouraged me to believe that where

there's a will, there's a way...SO I played soccer when I was in 4th

grade (I stunk, but who cares when you're 9), and always had regular

gym up till high school--however, I found that musically I could

compete with the others in a way I never could physically. I started

playing flute in 5th grade and continued all the way through high

school. I even was in our high school's marching band where I played

trumpet. We competed and traveled to a lot of different areas. Was I

the best marcher? Maybe not, but I held my own, and did it for 4

years. I am 25 now, and my knees are kinda bad--I don't think I could

ever march like that now, just like I can't run now or go up and down

stairs easily like when I was younger. But I would never give those

experiences up just because I can't continue them now. I would

encourage your daughter to enjoy playing the piano for as long as she

can...At the risk of sounding cheezy--music is a fabulous gift to be

able to appreciate...if you have her stop just because she might

someday not be able to play, you might be taking away more than you'd

be " saving. " All of us at some time or other " stop " activities due

to either " old age " or other factors, so please, I hope your daughter

will continue to play for as long as she can. =)

best of luck,

tracy

> Not yo tell you what to do, but my daugter is 2 and has CMT1A and I

am not or will not limit her to anything. If she wants to play

soccer or baseball or gymnastics or whatever, I am going to let her.

She will know her limits and know if she can not do them after she

has tried. I would let her do what she wants to. If she loves the

piano by all means let her. You never know with this crazy disease,

she may not be affected very badly. She may be the next Mozart.

Keep smiling. We can not tell our kids that because of the CMT you

can't to this or you can't do that. It will only make them become

hermits in my opion. I hope I have lifted your spirts. Love, Kara

>

> ----- Original Message -----

> From: kellybenzo

> Sent: Tuesday, December 11, 2001 1:24 PM

> @y...

> Subject: [] OPINION

>

> My daughter who is 6 was just diagnosed with CMT. She has been

> playing the piano for about 6 months and is very good. However, I'm

> contemplating now. Do I allow her to continue to play and then be

> devastated because in time she may not be able to play? I figure it

> would be easy now for her to give it up because she hasn't been

doing

> it that long. However, her teacher feels she is going to be good,

so

> do I let her go and hope for the best? I just don't want to see her

> devote years to the piano and then lose the ability? Any thoughts?

>

>

>

>

[Guest guest]

<< She will know her limits and

know if she can not do them after she has tried. I would let her do

what she

wants to. If she loves the piano by all means let her. You never know

with

this crazy disease, she may not be affected very badly. She may be

the next

Mozart. Keep smiling. We can not tell our kids that because of the

CMT you

can't to this or you can't do that.>>>

:

As long as she loves it, she should continue. I started having

trouble about age 13, when I had a teacher who was looking for

perfection (she was nasty - don't let that happen). It was then I

knew my hands could not keep up. My parents put pressure on me but

finally let me quit - I was not crushed. I played for personal

enjoyment for many years after.

If your daughter runs into problems later, the music education will

most certainly not have been wasted and I agree could help her in

other areas she might decide to pursue.

My 13 year old son has played drums for 5 years and I feel it

enhances his learning at school. It is a stress reliever, a place to

be creative, a real positive learning experience. If he got CMT, I

think it would happen so slowly that we would have time to transition

him into something else.

Best wishes,

Melody

[Guest guest]

Please don't make her quit playing piano or any other type of music. I am 39,

CMT and have played piano since I was 4 year's old. I have taught piano for 25

years. There are times in last few months that I can tell that my hands aren't

as strong as they used to be and my fingers tire out quicker. But this past

weekend our family participated in our local " tour of lights " with our draft

horses and during the tour our Lion's club served a soup supper. I entertained

the soup supper attendees with piano and keyboard music for two solid hours

without a break. So please keep encouraging her to practice and make sure your

piano teacher is aware of her situation and compensates for her specific needs.

I have one student right now who has an eye problem and we have to do a lot of

compensating for this situation. If the teacher doesn't cooperate, please find

another one!!

I grew up on a farm and literally lived on the back of my horse in the summers.

Now I can't ride anymore for a very long period of time at all because my legs

go numb. But those memories are some the best memories I have.

Life brings along many experiences and changes no matter who you are or what

your " special " needs may be. You just take one day and sometimes one hour at a

time.

Give your daughter a special hug from this piano teacher and wish her the best!

Have a wonderful Day!

Jane

----- Original Message -----

From: kellybenzo

Sent: Tuesday, December 11, 2001 1:25 PM

Subject: [] OPINION

My daughter who is 6 was just diagnosed with CMT. She has been

playing the piano for about 6 months and is very good. However, I'm

contemplating now. Do I allow her to continue to play and then be

devastated because in time she may not be able to play? I figure it

would be easy now for her to give it up because she hasn't been doing

it that long. However, her teacher feels she is going to be good, so

do I let her go and hope for the best? I just don't want to see her

devote years to the piano and then lose the ability? Any thoughts?

[Guest guest]

I would bet my life that it's mold / mycotoxins.....

~Dana

>

> Scroll down to the post with the utube video and watch.

>

> http://www.immunesupport.com/chat/forums/message.cfm?id=1302192 & B=FM

>

> Do you wonder if these kids have black mold in their house?

>

[Guest guest]

This link only takes you to a sign up page. Nothing more.

> >

> > Scroll down to the post with the utube video and watch.

> >

> > http://www.immunesupport.com/chat/forums/message.cfm?id=1302192 & B=FM

> >

> > Do you wonder if these kids have black mold in their house?

> >

>