Part 2 - my biopsy as normal/Dan

[Guest guest]

Dan, My biopsys were so long ago I don't care anymore. You asked the

question regarding biopsies, I simply responded with My Experience. Are

you trying to redignose me? Or vote me off this island? ~ G

Dan Manor wrote:

> >Gretchen why would I ask my dr. this question? i only heard of your normal

> biopsys today after reading the mail. and from all i have read and that is

> alot since being diagnosed, eveything says the biopsy shows myelin or axon

> damage, nothing says normal biopsy results if you have cmt. i think its

> something you should ask your dr. not me ask my dr. wouldn't make any sense

> for me to ask my dr. i did not have the biopsy.

[Guest guest]

On Tue, 04 Dec 2001 12:06:39 -0800, wrote:

> Dan, My biopsys were so long ago I don't care anymore. You asked the

> question regarding biopsies, I simply responded with My Experience. Are

> you trying to redignose me? Or vote me off this island? ~ G

>

No just trying to understand. i thought this place was for asking questions

and learning about cmt and sharing. You had normal biopsys so i was

wondering why and asked since what i have read says other wise. then you

asked if i asked my dr. as i said why would i when i had just heard you had

normal biopsys that day. but i am going to ask him my next appointment,

unless i can find something on the internet that explains it or someone here

knows the answer. you brought up a good question about results of biopsys

with neuromuscular problems when you said yours was normal. i don't ask many

questions here, but seems like every time i do have a question you get

defensive towards me, i don't see that attitude from you with others on

here. maybe i just ask the wrong questions for you. its not intentional. i

do like reading all the questions and answers here. you learn how others are

doing with cmt and what works what does not work for some. i know maybe you

don't care about your results of the biopsys but its odd they are normal and

i would think anyone with this diease would like to know why yours was

normal when others with this disease are not normal. what makes yours normal

could be important. maybe something in your genes or how your diet is or

something like that. since having a normal biopsy of nerves shows nothing

wrong with the nerves and cmt is a nerve disease i find thats intersting and

just would like to understand why. sorry if my questions are such a bother.

thats how we learn. and i was under the impression that was what this group

was formed for. dan

> Dan Manor wrote:

> > >Gretchen why would I ask my dr. this question? i only heard of your

normal

> > biopsys today after reading the mail. and from all i have read and

that is

> > alot since being diagnosed, eveything says the biopsy shows myelin or

axon

> > damage, nothing says normal biopsy results if you have cmt. i think

its

> > something you should ask your dr. not me ask my dr. wouldn't make any

sense

> > for me to ask my dr. i did not have the biopsy.

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