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Re: Confused Again

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Tell the doctor to run a HCV RNA PCR QUALITATIVE

TEST. This is the most sensitive one and if it comes

back negative you do not have HCV. False Positives are

very rare anymore because of the newer updated testing

available.<br><br>Just because your viral load shows less than 600

doesn't mean you don't have HCV. The only way you would

be able to say you do NOT have it is if the viral

load test went to zero..and the QUALITATIVE test came

back negative too.<br><br>Also have him run a GENOTYPE

test. If no gentoype shows up, you most likely do not

have it. But have him run both tests at the same

time.<br><br>LeighAnn

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Tell the doctor to run a HCV RNA PCR QUALITATIVE

TEST. This is the most sensitive one and if it comes

back negative you do not have HCV. False Positives are

very rare anymore because of the newer updated testing

available.<br><br>Just because your viral load shows less than 600

doesn't mean you don't have HCV. The only way you would

be able to say you do NOT have it is if the viral

load test went to zero..and the QUALITATIVE test came

back negative too.<br><br>Also have him run a GENOTYPE

test. If no gentoype shows up, you most likely do not

have it. But have him run both tests at the same

time.<br><br>LeighAnn

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If the test only measures down to 600,how would

it show up 0?My test came back as showing less than

600,the scale was 600-850,000.The test also said that the

test could only be that the level was less than

600.They could only measure to 600.To me this is a

negative reading for HCV.

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If the test only measures down to 600,how would

it show up 0?My test came back as showing less than

600,the scale was 600-850,000.The test also said that the

test could only be that the level was less than

600.They could only measure to 600.To me this is a

negative reading for HCV.

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This is NOT a negative reading. It only means

that the test used is only able to read 600 or more

copies of the virus in that blood sample. You could have

500 copies of virus in that sample and it won't show

because the test used only shows 600 or more. <br><br>A

newer, more powerful test is out there and available,

but many insurance companies won't use it.

<br><br>Ask your doctor about running your PCR on the newest

test....the AMPLICORE test.

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This is NOT a negative reading. It only means

that the test used is only able to read 600 or more

copies of the virus in that blood sample. You could have

500 copies of virus in that sample and it won't show

because the test used only shows 600 or more. <br><br>A

newer, more powerful test is out there and available,

but many insurance companies won't use it.

<br><br>Ask your doctor about running your PCR on the newest

test....the AMPLICORE test.

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Reliable labs make mistakes.Even the Mayo Clinic

makes mistakes sometimes. Nobody and no lab is perfect.

If you have never before tested positive for

Hepatitis A, and you have not recently been out of the

country, there could very well be a mistake in the test

you had. <br><br>Getting a second opinion and having

tests re-done is a wise choice when you are dealing

with Hepatitis C. Many " real " doctors who are very

good doctors, have no clue about Hepatitis much less

Hepatitis C. My own " real " doctor told me not to worry in

1992, and that I must have just been exposed to HCV. 6

years later I found out he was full of crap and I was

in advanced liver disease. <br><br>Go see a liver

specialist and have him run more tests. <br><br>LeighAnn

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Reliable labs make mistakes.Even the Mayo Clinic

makes mistakes sometimes. Nobody and no lab is perfect.

If you have never before tested positive for

Hepatitis A, and you have not recently been out of the

country, there could very well be a mistake in the test

you had. <br><br>Getting a second opinion and having

tests re-done is a wise choice when you are dealing

with Hepatitis C. Many " real " doctors who are very

good doctors, have no clue about Hepatitis much less

Hepatitis C. My own " real " doctor told me not to worry in

1992, and that I must have just been exposed to HCV. 6

years later I found out he was full of crap and I was

in advanced liver disease. <br><br>Go see a liver

specialist and have him run more tests. <br><br>LeighAnn

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First my son did the quantitative and found

& lt;2000 but that could mean he had 1999. So next time, he

did an ultraquant and found & lt;600 but that could

mean 599. The last time, he did a who knows what that

went down to & lt;50, which could mean 49. That's what

he'll continue to get since that's as low as that lab

goes to. We don't take it as a negative reading for

HCV, but it sure does beat those millions! :-)

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First my son did the quantitative and found

& lt;2000 but that could mean he had 1999. So next time, he

did an ultraquant and found & lt;600 but that could

mean 599. The last time, he did a who knows what that

went down to & lt;50, which could mean 49. That's what

he'll continue to get since that's as low as that lab

goes to. We don't take it as a negative reading for

HCV, but it sure does beat those millions! :-)

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You bet it does!! Has your son ever done treatment or had a liver biopsy?

<br><br>Keeping that viral load as low as his is a great sign of his body

fighting the virus!!<br><br>LeighAnn

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You bet it does!! Has your son ever done treatment or had a liver biopsy?

<br><br>Keeping that viral load as low as his is a great sign of his body

fighting the virus!!<br><br>LeighAnn

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  • 3 years later...

,

We chose a BTE (Behind the Ear) processor for our daughter. It " looks "

like a hearing aid in that it goes behind the ear and has an ear hook to

hold it over the ear. The only wire is from the BTE processor to the

magnet and it is no longer than 3-4 inches. Since we will receive two

processors, we chose two BTE's with one in beige to match her other

hearing aid and one in brown to blend with her brown hair. The " cord "

connecting the BTE to the magnet will be brown to again blend. Later

on, she can get creative with stickers, beads etc. if she wants to.

The " long " cords are for the Body Worn Processor (BWP). The decision on

which one to use is a personal one. When you select the device that you

will use, your audiologist should show you all the models available and

let you try them on. Take your time, do your research and think about

your lifestyle and how each one fits your lifestyle the best. If in

doubt, chose one of each!

The bottom line is that they all work and that is the most important

thing.

Good luck with your decision and know that there isn't a " wrong " choice,

just whatever is the best choice for YOU!

~ in Indiana

________________________________

From: [mailto: ] On Behalf

Of nnjl97

Sent: Tuesday, September 06, 2005 4:47 PM

Subject: Confused Again

Once again I sit here and think I have figured out which CI to get..

Then I get hit with information from a ci wearer to prove that I

may

not be doing the correct thing..

My question is, do all CI wearers have to have the long beige wire

that runs

into

a processor. The ones that I have looked into do not seem to have

that.

They only look like a hearing aide that is hooked on the ear which is

connected to the magnet in the head.

Other than that I tend to think that they may all do the same with

the

exception of the batteries.. rechargeable or not.

I honestly do not want the wire coming from the ear , running down

into

a processor. Why I do not know. But I very much don't. So with that

can

any / all CI implant wearers advise me if they all have the wire that

loops down into the processor..

Much Thanks

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