reinnervation /

[Guest guest]

If you have type 2 the EMG/NCVs will be normal or near normal because it is

the INSIDE of the nerve that is deteriorating, not the myelin sheath on the

outside. The EMG/NCVs pick up the deteriorating myelin sheath, not the

deteriorating core of the nerve.

Kat

[Guest guest]

Hey ,

LOL but I have NO idea why my EMG/NCV results are in the normal range!

Yes, CMT causes muscle atrophy and nerve loss. Guess I don't have much?

OR the reiennervation has taken over quite a bit. The way I understand

it is that nerves rewire themselves to carry on. Paolo's book and Paolo

can explain this better. Why this happens? I have no idea! LOL Like I

said Paolo is better to explain this than I.

In 1961 or 2, my Mom noticed I didn't walk right. I was 9 or 10. Took me

to an orthopedist, and without any tests of anykind, but just by

watching me walk up and down his hallways in a hospital gown, he could

see my anatomy, he diagnosed me with CMT. Had foot surgery on the

tendons then and that put my feeet back in a normal position. But I

still was a toe walker.

I had many OTHER diagnoses over the years, as my parents hauled me to

every Dr. known to man to find a 'cure'. Early EMG/NCVs just hell, very

large needles, electrodes on my head test, spinal tap, bla bla bla. At

one time I had MS, MD, FA, s, Lupus, and others I can't remember.

ALL of which I failed the tests for! LOL So, now Drs. think I am a

spontaneous mutant CMT because of NO family history at all. ~ Gretchen

shannon marzinski wrote:

> How are your EMG results in the normal range? Doesn't CMT cause

> deterioration and nerve loss? How did they know you have CMT? Sorry, so

> many questions...I just am wondering....Also, what is reinnervation?