My Introduction

[Guest guest]

Welcome Ben,

I wear an ankle brace part of the time. Last spring I chipped my ankle bone and

wore a walking boot for 6 weeks then the doctor released me from wearing it and

three weeks later severly sprained the same ankle. Then they put me in a ankle

support brace for 4 weeks, I was released from it and told to wear it when I

have weakness in my ankle or tend to be turning it again quite often. I will

wear it for 3-4 days sometimes a week until my strength is back and then get

along great for a while until I step just " right " and down I go again! One of

the joys of CMT.

I would suggest you check with your doctor to see what they suggest first. If

they prescribe the brace then some of your insurance companies will cover the

expense and if not check around before buying one from a medical supply store

because their prices can vary tremendously.

Jane

----- Original Message -----

From: bmorris@...

Sent: Tuesday, November 20, 2001 9:04 PM

Subject: [] My Introduction

Hello everyone, I just joined this week and have enjoyed

reading the messages, it is good to be able to talk openly about our

lives. I was diagnosed with CMT 8 years ago after complaining of cold

sensation in my legs. I went through the terrible testing andfleed

the room like a scared cat near the end of the tests, I'll never

forget that day.

I a 53 year old male living in San Diego, CA. My recent issues

with CMT are chronic ankle sprains and random falling. This year I

went through a lot of physical therapy and I still have pain and

problems with the ankle. The Dr. felt that I should try

strengthening the leg muscles, and after a couple of weeks with leg

excersizes I now have strained the knee. I do use arch supports but

don't routinely use ankle or knee supports. I think I will have to

start using them more routinely as I seem to sprain easily. Does

anyone have an opinion as to whether you can just use ankle and knee

supports from the store or whetheryou need to see a orthepeadic

surgeon or a orthotics specialist. I glad I found and look

forward to reading my messages. Ben

Foundation: http://www..org

[Guest guest]

My daughter is 2 1/2 years old and was just diagnosed with CMt1A. I have it but

did not know until I found out my daughter has it. My father has it, his two

sisters (my aunts) and my grandfather, his father, brothers and uncles. We have

a long history of it in our family. I took my daughter to the doctor because

she was falling alot and was concerned it has to do with her flat footedness.

Boy, was I wrong. I was devistated when I found out. I am now dealing with

it. There is nothing that can be done but just to deal with it and not dwell on

it. I am trying to learn as much as I can about this disease. Anything that I

can get my hands on I want.

Thank you,

KaraGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com