Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Emo, are you sure you're not the comedian I know about? You are tooooo funny! Marilyn I am flying solo ladies and gentlemen. no anti depressants. so far, other than normal pms symptoms due to the hormone problem.... I am ALL HERE!!!!! If you don't believe me.....look into my barrel and I'll show you! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Marilyn, { Gosh, Princess, you have just opened up a flood of memories for me! I guess I've been tired for a lot longer than I remembered. I went to get my Hep A and Hep B vaccinations today and the nurse assured me that I could have had this for as long as my dr. says, that it was either from a blood transfusion when I was 10 or when I was 12. My father used to call me a lazy bum when I was a teenager, because I just had no energy. I used to do whatever I could to skip PE in high school, because I'd be falling asleep in class for the rest of the day. And I've gotten everything else you said from doctors over the years about my digestive problems. I even went into full-blown anorexia for about 10 years because I never knew what it was that I ate, was going to *kill* my stomach. I decided not to eat at all, unless I absolutely had to. (This is before anorexia was diagnosed as a disease, hmmm, just like Hep C) I got down to 83#, and was wondering if I could break into the 70's - your mind does get nuts once you start on this path. I've heard of a lot of reasons why girls become anorexic, but to me, my weight was the only thing in my life I could control, and the skinnier I got, the nicer people were to me. I was doing the best I could, feeling like crap all the time, always tired, but somehow was made to feel it was my fault. What turned me around were the ladies from Al-Anon, who made me believe I could be in control of my life, not stay married to a drunk, and not believe what anyone else told me over what I believed myself. And that includes doctors! Thank you so much for your input to this list, you add so much. } You are most welcome, Marilyn... I just try to shed some light on issues for everyone else... it took me a bit of time reflecting over the past and understanding that I was a victim to the cruelness of the world --- that nasty comments, such as you have mentioned. And now that the truth is known, yes that is a consolation knowing about all that has been wrong with me and why, but that brings forth yet another issue, which is stigma. Hepatitis C is going to have a bad rap for alot of years and people and society will look down upon those with the disease, much like aids sadly. Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Marilyn, { Gosh, Princess, you have just opened up a flood of memories for me! I guess I've been tired for a lot longer than I remembered. I went to get my Hep A and Hep B vaccinations today and the nurse assured me that I could have had this for as long as my dr. says, that it was either from a blood transfusion when I was 10 or when I was 12. My father used to call me a lazy bum when I was a teenager, because I just had no energy. I used to do whatever I could to skip PE in high school, because I'd be falling asleep in class for the rest of the day. And I've gotten everything else you said from doctors over the years about my digestive problems. I even went into full-blown anorexia for about 10 years because I never knew what it was that I ate, was going to *kill* my stomach. I decided not to eat at all, unless I absolutely had to. (This is before anorexia was diagnosed as a disease, hmmm, just like Hep C) I got down to 83#, and was wondering if I could break into the 70's - your mind does get nuts once you start on this path. I've heard of a lot of reasons why girls become anorexic, but to me, my weight was the only thing in my life I could control, and the skinnier I got, the nicer people were to me. I was doing the best I could, feeling like crap all the time, always tired, but somehow was made to feel it was my fault. What turned me around were the ladies from Al-Anon, who made me believe I could be in control of my life, not stay married to a drunk, and not believe what anyone else told me over what I believed myself. And that includes doctors! Thank you so much for your input to this list, you add so much. } You are most welcome, Marilyn... I just try to shed some light on issues for everyone else... it took me a bit of time reflecting over the past and understanding that I was a victim to the cruelness of the world --- that nasty comments, such as you have mentioned. And now that the truth is known, yes that is a consolation knowing about all that has been wrong with me and why, but that brings forth yet another issue, which is stigma. Hepatitis C is going to have a bad rap for alot of years and people and society will look down upon those with the disease, much like aids sadly. Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Princess..... I've done accupuncture.....and loved it! Was a near nervous breakdown in the USAF when I had to bring my first born home....went back to Okinawa and a lot of harrassment before sexual harassment was a valid compalaint...... 117 needles from my lower shoulder blades to the bottom of my skull and a heat lamp for 30 minutes........1 treatment......totally made me feel SO PERFECT!!!!!!! So whole....so WELL! Emo P.S. I hope and pray you find relief and a great accupuncturist! Hope you enjoy the treatment 1/2 as much as I did.......you'll be all grins if you do!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Princess..... I've done accupuncture.....and loved it! Was a near nervous breakdown in the USAF when I had to bring my first born home....went back to Okinawa and a lot of harrassment before sexual harassment was a valid compalaint...... 117 needles from my lower shoulder blades to the bottom of my skull and a heat lamp for 30 minutes........1 treatment......totally made me feel SO PERFECT!!!!!!! So whole....so WELL! Emo P.S. I hope and pray you find relief and a great accupuncturist! Hope you enjoy the treatment 1/2 as much as I did.......you'll be all grins if you do!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I have a friend where I live who just found out he's a geno 3. I'm starting a support group in my Church basement. Strictly informal right now. Probably have the first meeting the last Friday of this month. Already personally know 6 people who I've met in the last 6 months. Going to give Gastro's and local hospitals the info. Your're more than welcome to come. It's in Mascoutah.....right on route 4 off I-64. right on main street in Mascoutah,,,,,about 6 blocks to 2nd street, on the corner. Right now, I'm thinking we need to form some strong bonds in a gruop so we can eventually organize.......If we can't get famous people to back us.....we're gonna have to be as many as it takes to be heard...... But most of all, we need each other's shoulder's to lean on, and hands to hold. that's my first main goal, shoulders and hands. Love ya all Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I have a friend where I live who just found out he's a geno 3. I'm starting a support group in my Church basement. Strictly informal right now. Probably have the first meeting the last Friday of this month. Already personally know 6 people who I've met in the last 6 months. Going to give Gastro's and local hospitals the info. Your're more than welcome to come. It's in Mascoutah.....right on route 4 off I-64. right on main street in Mascoutah,,,,,about 6 blocks to 2nd street, on the corner. Right now, I'm thinking we need to form some strong bonds in a gruop so we can eventually organize.......If we can't get famous people to back us.....we're gonna have to be as many as it takes to be heard...... But most of all, we need each other's shoulder's to lean on, and hands to hold. that's my first main goal, shoulders and hands. Love ya all Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Quite positive dear. My humor usually only shows up in my writing things down. My brain goes 24-7. I rarely say what I think aloud except in letters. My son on the other hand, is a regular barrel of laughs. You'd never believe he has anxiety problems as much as he cuts up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Quite positive dear. My humor usually only shows up in my writing things down. My brain goes 24-7. I rarely say what I think aloud except in letters. My son on the other hand, is a regular barrel of laughs. You'd never believe he has anxiety problems as much as he cuts up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 I know what you say about the stigma of having Hep C being like having AIDS. I am careful about who I tell, and nobody would know by looking at me. This is why I got honked off and wrote to all the media outlets about a month ago. So *many* of us have this, and the public is not educated about it. I saw my regular doctor today and I asked her why she wanted to test my blood for Hep C when no doctor had suggested it before. She said she never thought of testing anyone until two of her friends tested positive. Now she asks everyone if they want to test for it when they are getting regular CBC's. She said she's surprised at how often it's turning up, she gets at least one new case a month. At least she's one voice in the wilderness! Marilyn Re: Princess-Dana Marilyn, You are most welcome, Marilyn... I just try to shed some light on issues for everyone else... it took me a bit of time reflecting over the past and understanding that I was a victim to the cruelness of the world --- that nasty comments, such as you have mentioned. And now that the truth is known, yes that is a consolation knowing about all that has been wrong with me and why, but that brings forth yet another issue, which is stigma. Hepatitis C is going to have a bad rap for alot of years and people and society will look down upon those with the disease, much like aids sadly. Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 I know what you say about the stigma of having Hep C being like having AIDS. I am careful about who I tell, and nobody would know by looking at me. This is why I got honked off and wrote to all the media outlets about a month ago. So *many* of us have this, and the public is not educated about it. I saw my regular doctor today and I asked her why she wanted to test my blood for Hep C when no doctor had suggested it before. She said she never thought of testing anyone until two of her friends tested positive. Now she asks everyone if they want to test for it when they are getting regular CBC's. She said she's surprised at how often it's turning up, she gets at least one new case a month. At least she's one voice in the wilderness! Marilyn Re: Princess-Dana Marilyn, You are most welcome, Marilyn... I just try to shed some light on issues for everyone else... it took me a bit of time reflecting over the past and understanding that I was a victim to the cruelness of the world --- that nasty comments, such as you have mentioned. And now that the truth is known, yes that is a consolation knowing about all that has been wrong with me and why, but that brings forth yet another issue, which is stigma. Hepatitis C is going to have a bad rap for alot of years and people and society will look down upon those with the disease, much like aids sadly. Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Boy, can I relate to all of this, hee, hee! My son is a riot, and has had anxiety problems since he was a young child, but do you believe he has his own band and is the lead singer? They are local to Chicago, and have played a 2-hour concert on the Fox TV Stage at Chicagofest for 3 years running. His day job? He's in direct sales. He must use the anxiety for motivation. As far as my brain goes anymore, I'm lucky if I can tell you what I had for lunch, or what I'm wearing without looking down, LOL! Marilyn Re: Princess-Dana Quite positive dear. My humor usually only shows up in my writing things down. My brain goes 24-7. I rarely say what I think aloud except in letters. My son on the other hand, is a regular barrel of laughs. You'd never believe he has anxiety problems as much as he cuts up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Boy, can I relate to all of this, hee, hee! My son is a riot, and has had anxiety problems since he was a young child, but do you believe he has his own band and is the lead singer? They are local to Chicago, and have played a 2-hour concert on the Fox TV Stage at Chicagofest for 3 years running. His day job? He's in direct sales. He must use the anxiety for motivation. As far as my brain goes anymore, I'm lucky if I can tell you what I had for lunch, or what I'm wearing without looking down, LOL! Marilyn Re: Princess-Dana Quite positive dear. My humor usually only shows up in my writing things down. My brain goes 24-7. I rarely say what I think aloud except in letters. My son on the other hand, is a regular barrel of laughs. You'd never believe he has anxiety problems as much as he cuts up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Marilyn, { As far as my brain goes anymore, I'm lucky if I can tell you what I had for lunch, or what I'm wearing without looking down, LOL! } I have trouble with memory too... supposedly it's another common symptom of Hepatitis C ... and, it's not just from drug histories either. Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Marilyn, { As far as my brain goes anymore, I'm lucky if I can tell you what I had for lunch, or what I'm wearing without looking down, LOL! } I have trouble with memory too... supposedly it's another common symptom of Hepatitis C ... and, it's not just from drug histories either. Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Marilyn, Other than my ex- and children, I've not hid it from anyone. My kids are too young, and they'd get the third degree from 3 of the most closed minds on earth.....people who go to church because it looks good to go. I told my boss first, and anyone who worked with me. If I'm cut.....they know I'll go spasticaly overboard if they come near me.....I'll handle it. I don't want to share this. So far....I've had no ill responses.....I don't tell unless there is a need to. Dentist, lab techs.....(pregnant one who drew my blood last night, second time, told her she wasn't drawing bllod without gloves this week) Why do lab Tech's not know what Hepatitis C is?????? anyway....need to play in my yard before I go to worrk this am. I figure.......if they don't know what hepatitis c is.......they'll never get tested for it. I want all my friends tested for it!!!!! already have 3 with it in the last 2 months! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Marilyn, Other than my ex- and children, I've not hid it from anyone. My kids are too young, and they'd get the third degree from 3 of the most closed minds on earth.....people who go to church because it looks good to go. I told my boss first, and anyone who worked with me. If I'm cut.....they know I'll go spasticaly overboard if they come near me.....I'll handle it. I don't want to share this. So far....I've had no ill responses.....I don't tell unless there is a need to. Dentist, lab techs.....(pregnant one who drew my blood last night, second time, told her she wasn't drawing bllod without gloves this week) Why do lab Tech's not know what Hepatitis C is?????? anyway....need to play in my yard before I go to worrk this am. I figure.......if they don't know what hepatitis c is.......they'll never get tested for it. I want all my friends tested for it!!!!! already have 3 with it in the last 2 months! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Next time I go to Chicago....I'll need his info so I can find him! My dear friend Jim, who died last January?, well, his 21 year old son is a really great bass player! He is also in a band. cool world...eh? Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Next time I go to Chicago....I'll need his info so I can find him! My dear friend Jim, who died last January?, well, his 21 year old son is a really great bass player! He is also in a band. cool world...eh? Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 I too have no memory left. Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 I too have no memory left. Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Emo, I think that is a wonderful Idea. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Emo, I think that is a wonderful Idea. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Congrats For her. I wish there were more Dr.'s like that. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Congrats For her. I wish there were more Dr.'s like that. Bonnie Quote Link to comment Share on other sites More sharing options...
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