Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Does anyone know why we are placed on a list to get our medication.what is this about?.judy Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Does anyone know why we are placed on a list to get our medication.what is this about?.judy Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Hello myname is Charlie, I have Hep C geno type 1b.I,m on Peg combo at week 23, not cleared but treatment is helping and buying time. The reason for waiting list is in my opinion two fold. One is shortages due to the amount of new RX for the many, many infected like us. When I was on Ribatron..1999 -2000( Interferon + Ribavirin.) The Hepatologist before I started said " wait for the Peg-intron combo to hit the market it is better..about two years away " . So I believe allot of people were ENCOURAGED to wait,, thusly shortages now. The other is clinical trials get priority on such shortages. Any way in stinks, but I was lucky to find a trial locally in San Diego. My heart and positive energy is with you Peg for me is hard but I,m making it with a busy work life. Peace and good will to all!!... : ) .... .. Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Hello myname is Charlie, I have Hep C geno type 1b.I,m on Peg combo at week 23, not cleared but treatment is helping and buying time. The reason for waiting list is in my opinion two fold. One is shortages due to the amount of new RX for the many, many infected like us. When I was on Ribatron..1999 -2000( Interferon + Ribavirin.) The Hepatologist before I started said " wait for the Peg-intron combo to hit the market it is better..about two years away " . So I believe allot of people were ENCOURAGED to wait,, thusly shortages now. The other is clinical trials get priority on such shortages. Any way in stinks, but I was lucky to find a trial locally in San Diego. My heart and positive energy is with you Peg for me is hard but I,m making it with a busy work life. Peace and good will to all!!... : ) .... .. Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 hi charlie, how far has your disease progressed before you were introduced to the peg combo? chopps007 <chopps007@...> wrote: Hello myname is Charlie, I have Hep C geno type 1b.I,m on Peg combo at week 23, not cleared but treatment is helping and buying time. The reason for waiting list is in my opinion two fold. One is shortages due to the amount of new RX for the many, many infected like us. When I was on Ribatron..1999 -2000( Interferon + Ribavirin.) The Hepatologist before I started said " wait for the Peg-intron combo to hit the market it is better..about two years away " . So I believe allot of people were ENCOURAGED to wait,, thusly shortages now. The other is clinical trials get priority on such shortages. Any way in stinks, but I was lucky to find a trial locally in San Diego. My heart and positive energy is with you Peg for me is hard but I,m making it with a busy work life. Peace and good will to all!!... : ) .... .. Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 hi charlie, how far has your disease progressed before you were introduced to the peg combo? chopps007 <chopps007@...> wrote: Hello myname is Charlie, I have Hep C geno type 1b.I,m on Peg combo at week 23, not cleared but treatment is helping and buying time. The reason for waiting list is in my opinion two fold. One is shortages due to the amount of new RX for the many, many infected like us. When I was on Ribatron..1999 -2000( Interferon + Ribavirin.) The Hepatologist before I started said " wait for the Peg-intron combo to hit the market it is better..about two years away " . So I believe allot of people were ENCOURAGED to wait,, thusly shortages now. The other is clinical trials get priority on such shortages. Any way in stinks, but I was lucky to find a trial locally in San Diego. My heart and positive energy is with you Peg for me is hard but I,m making it with a busy work life. Peace and good will to all!!... : ) .... .. Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Hello , I was diagnosed in 1996 (Geno type 1-b Biopsy revealed 1-2 mild fibrosis, ALT 22- AST 32.. viral load of around 1.5 million cpml..) I was offered a blind study,,, was on it for 4 months then exited due to side effects. In 1999 I stopped the Ribatron combo at end of 11 months due to no clearing response. ( turns out the previous study was to FDA approve the Ribatron).. Levels after that was lower 550,000 viral count , still normal Enzymes. 11-28-01 I started the Peg... Biopsy before this study revealed no progression, still 1-2 mild fibrosis, viral load around 650,000 cpml, Enzymes normal again ALT 19 AST 22. I do not like the treatments, and I search hard to find studies to get treatment is not FDA approved, Im also doing everything spiritually to help myself, lots of water and exercise. I have 25 weeks to go, I get a PCR ( viral load count) on the 13th of this month. I hope that helps you and I know Im lucky to keep the Dragon Hep C held back with on going treatments. I send you healing thoughts and positive energy!!!.. : )... I help any way I can for anyone with need , I learned to be sooo strong from my pain, I hope this helps you with your struggle. Have a great day!!! Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Hello , I was diagnosed in 1996 (Geno type 1-b Biopsy revealed 1-2 mild fibrosis, ALT 22- AST 32.. viral load of around 1.5 million cpml..) I was offered a blind study,,, was on it for 4 months then exited due to side effects. In 1999 I stopped the Ribatron combo at end of 11 months due to no clearing response. ( turns out the previous study was to FDA approve the Ribatron).. Levels after that was lower 550,000 viral count , still normal Enzymes. 11-28-01 I started the Peg... Biopsy before this study revealed no progression, still 1-2 mild fibrosis, viral load around 650,000 cpml, Enzymes normal again ALT 19 AST 22. I do not like the treatments, and I search hard to find studies to get treatment is not FDA approved, Im also doing everything spiritually to help myself, lots of water and exercise. I have 25 weeks to go, I get a PCR ( viral load count) on the 13th of this month. I hope that helps you and I know Im lucky to keep the Dragon Hep C held back with on going treatments. I send you healing thoughts and positive energy!!!.. : )... I help any way I can for anyone with need , I learned to be sooo strong from my pain, I hope this helps you with your struggle. Have a great day!!! Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Thank you charlie. My husband has been diagnosed with hepc. He is to get his liver biopsy results back today. Thus far, we have just recieved news that his body has hepc in it. The other test results show up with very low counts of the disease. He hasn't been suffering from any symptoms as of yet. Its as though the disease is just standing by ...waiting to attack. His first two tests came up positive, the he had 2 negative tests and then just recently in the past 2 months came up positive. I've had three tests all negative. Since the diagnosis, however, my husband is taking very good care of his body and liver. There has been local stories of people healing themselves ... or ridding their bodies of hep c altogether. It's not a big number, but we are still early in his diagnosis and I believe every bit helps. Whether it be no drinking, going to God,postive thinking or eating healthy....it all helps. chopps007 <chopps007@...> wrote: Hello , I was diagnosed in 1996 (Geno type 1-b Biopsy revealed 1-2 mild fibrosis, ALT 22- AST 32.. viral load of around 1.5 million cpml..) I was offered a blind study,,, was on it for 4 months then exited due to side effects. In 1999 I stopped the Ribatron combo at end of 11 months due to no clearing response. ( turns out the previous study was to FDA approve the Ribatron).. Levels after that was lower 550,000 viral count , still normal Enzymes. 11-28-01 I started the Peg... Biopsy before this study revealed no progression, still 1-2 mild fibrosis, viral load around 650,000 cpml, Enzymes normal again ALT 19 AST 22. I do not like the treatments, and I search hard to find studies to get treatment is not FDA approved, Im also doing everything spiritually to help myself, lots of water and exercise. I have 25 weeks to go, I get a PCR ( viral load count) on the 13th of this month. I hope that helps you and I know Im lucky to keep the Dragon Hep C held back with on going treatments. I send you healing thoughts and positive energy!!!.. : )... I help any way I can for anyone with need , I learned to be sooo strong from my pain, I hope this helps you with your struggle. Have a great day!!! Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Thank you charlie. My husband has been diagnosed with hepc. He is to get his liver biopsy results back today. Thus far, we have just recieved news that his body has hepc in it. The other test results show up with very low counts of the disease. He hasn't been suffering from any symptoms as of yet. Its as though the disease is just standing by ...waiting to attack. His first two tests came up positive, the he had 2 negative tests and then just recently in the past 2 months came up positive. I've had three tests all negative. Since the diagnosis, however, my husband is taking very good care of his body and liver. There has been local stories of people healing themselves ... or ridding their bodies of hep c altogether. It's not a big number, but we are still early in his diagnosis and I believe every bit helps. Whether it be no drinking, going to God,postive thinking or eating healthy....it all helps. chopps007 <chopps007@...> wrote: Hello , I was diagnosed in 1996 (Geno type 1-b Biopsy revealed 1-2 mild fibrosis, ALT 22- AST 32.. viral load of around 1.5 million cpml..) I was offered a blind study,,, was on it for 4 months then exited due to side effects. In 1999 I stopped the Ribatron combo at end of 11 months due to no clearing response. ( turns out the previous study was to FDA approve the Ribatron).. Levels after that was lower 550,000 viral count , still normal Enzymes. 11-28-01 I started the Peg... Biopsy before this study revealed no progression, still 1-2 mild fibrosis, viral load around 650,000 cpml, Enzymes normal again ALT 19 AST 22. I do not like the treatments, and I search hard to find studies to get treatment is not FDA approved, Im also doing everything spiritually to help myself, lots of water and exercise. I have 25 weeks to go, I get a PCR ( viral load count) on the 13th of this month. I hope that helps you and I know Im lucky to keep the Dragon Hep C held back with on going treatments. I send you healing thoughts and positive energy!!!.. : )... I help any way I can for anyone with need , I learned to be sooo strong from my pain, I hope this helps you with your struggle. Have a great day!!! Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 charlie during the peg combo treatment, what do you do for yourself to help the side effects seem less harsh? You say you are still working? What do you do? Just wondering, cause my husband is still waiting for the results from the biopsy, and if need be, he will be starting treatment right away to conquer and destroy as early as possible. But he is a big dog in construction, and his job can be real physical. This is my reason for asking. There is no waiting for treatment here, so, we need to be prepared now! perhaps. chopps007 <chopps007@...> wrote: Hello myname is Charlie, I have Hep C geno type 1b.I,m on Peg combo at week 23, not cleared but treatment is helping and buying time. The reason for waiting list is in my opinion two fold. One is shortages due to the amount of new RX for the many, many infected like us. When I was on Ribatron..1999 -2000( Interferon + Ribavirin.) The Hepatologist before I started said " wait for the Peg-intron combo to hit the market it is better..about two years away " . So I believe allot of people were ENCOURAGED to wait,, thusly shortages now. The other is clinical trials get priority on such shortages. Any way in stinks, but I was lucky to find a trial locally in San Diego. My heart and positive energy is with you Peg for me is hard but I,m making it with a busy work life. Peace and good will to all!!... : ) .... .. Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 charlie during the peg combo treatment, what do you do for yourself to help the side effects seem less harsh? You say you are still working? What do you do? Just wondering, cause my husband is still waiting for the results from the biopsy, and if need be, he will be starting treatment right away to conquer and destroy as early as possible. But he is a big dog in construction, and his job can be real physical. This is my reason for asking. There is no waiting for treatment here, so, we need to be prepared now! perhaps. chopps007 <chopps007@...> wrote: Hello myname is Charlie, I have Hep C geno type 1b.I,m on Peg combo at week 23, not cleared but treatment is helping and buying time. The reason for waiting list is in my opinion two fold. One is shortages due to the amount of new RX for the many, many infected like us. When I was on Ribatron..1999 -2000( Interferon + Ribavirin.) The Hepatologist before I started said " wait for the Peg-intron combo to hit the market it is better..about two years away " . So I believe allot of people were ENCOURAGED to wait,, thusly shortages now. The other is clinical trials get priority on such shortages. Any way in stinks, but I was lucky to find a trial locally in San Diego. My heart and positive energy is with you Peg for me is hard but I,m making it with a busy work life. Peace and good will to all!!... : ) .... .. Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Hi and all!!.. : ) .. I'm a 3D Artist and I sit most of the day.. I have a 25 min drive to work and that is getting harder . I know of two men on Peg that worked a sheet metal job and they both had problems due to the lack of Energy, headaches...and soreness. Please keep in mind not all get sever side effects, the mental ones are bad for me, I work 40-60 hrs a week and I stress way bad on this Peg at times. So I take in as much water as possible....5 oz per lbs. of body weight. I stretch like crazy, jog three times a week left weights twice a week( all very taxing ) . I wish I could say for sure ur hubby will be able to work and produce the same, I cant. I can say that I push physicly hard and work a high paced, deadline oriented career. I meditate and light candles, I go to the local support group. Im active in the ALF with volunteer work when I can. I can lots of hugs,,, helps not feel alone( Im single and looking ) u have the hug thing covered...lol. I eat allot more fruits and vegetables, I drink a whet and fruit smoothie every morning,, or oatmeal, both easy ion the stomach. Well Im off to work. Lets keep in touch , I have been through three different Interferon treatments and I will help any way I can. Have a great day!!! I send all healing thoughts and positive Energy!!!!!! your friend Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Hi and all!!.. : ) .. I'm a 3D Artist and I sit most of the day.. I have a 25 min drive to work and that is getting harder . I know of two men on Peg that worked a sheet metal job and they both had problems due to the lack of Energy, headaches...and soreness. Please keep in mind not all get sever side effects, the mental ones are bad for me, I work 40-60 hrs a week and I stress way bad on this Peg at times. So I take in as much water as possible....5 oz per lbs. of body weight. I stretch like crazy, jog three times a week left weights twice a week( all very taxing ) . I wish I could say for sure ur hubby will be able to work and produce the same, I cant. I can say that I push physicly hard and work a high paced, deadline oriented career. I meditate and light candles, I go to the local support group. Im active in the ALF with volunteer work when I can. I can lots of hugs,,, helps not feel alone( Im single and looking ) u have the hug thing covered...lol. I eat allot more fruits and vegetables, I drink a whet and fruit smoothie every morning,, or oatmeal, both easy ion the stomach. Well Im off to work. Lets keep in touch , I have been through three different Interferon treatments and I will help any way I can. Have a great day!!! I send all healing thoughts and positive Energy!!!!!! your friend Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Charlie, Way to go. I cannot do as much as you and I am not on treatment now. But have been 3 times. Keep up the good work and High Spirits!!!! Dana --- chopps007 <chopps007@...> wrote: > Hi and all!!.. : ) .. I'm a 3D Artist and I > sit most of the day.. I have a 25 min drive to work > and that is getting harder . I know of two men on > Peg that worked a sheet metal job and they both had > problems due to the lack of Energy, headaches...and > soreness. Please keep in mind not all get sever side > effects, the mental ones are bad for me, I work > 40-60 hrs a week and I stress way bad on this Peg at > times. So I take in as much water as possible....5 > oz per lbs. of body weight. I stretch like crazy, > jog three times a week left weights twice a week( > all very taxing ) . I wish I could say for sure ur > hubby will be able to work and produce the same, I > cant. I can say that I push physicly hard and work a > high paced, deadline oriented career. I meditate and > light candles, I go to the local support group. Im > active in the ALF with volunteer work when I can. I > can lots of hugs,,, helps not feel alone( Im single > and looking ) u have the hug thing covered...lol. I > eat allot more fruits and vegetables, I drink a whet > and fruit smoothie every morning,, or oatmeal, both > easy ion the stomach. Well Im off to work. Lets keep > in touch , I have been through three different > Interferon treatments and I will help any way I can. > > Have a great day!!! I send all healing thoughts and > positive Energy!!!!!! > your friend > Charlie > Re: > Re: > > > Thank you for responding. The tests that are > put out these days are suppose > to be more accurate , they say. Our specialist > said that my husband could > start treatment immediately if need be. We > haven't the results from his > biospy back yet. It seems there has been a > waiting list or some mix arounds > with other people around the country as far as > getting treated. That is an > awful shame. I feel fortunate enough that we > have it readily available at > our fingertips and that the doctors and > specialists that we got in contact > with are on top of things. However, we are > still mystified about the the on > and off diagnosis. Does the disease mask itself > against todays test? Or > can it? Our specialist runs two sorts of tests. > (names have escaped me) > The first test gets sent to another lab which > takes about 7 days. Then the > other test gets sent to milwaukee which takes > about 2 weeks. > Sandy Booton <ibsandy77@...> wrote: > HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION > WITH THE ON AGAIN OFF AGAIN > TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 > AND THEN AGAIN WAS TESTED IN > 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS > CAME BACK NEGATIVE. THE > DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT > I DID. SO I MOVED TO A > DIFFERENT CITY AND TOLD THE DR'S THAT I HAD > TESTED POSITIVE AND THEY RAN THE > TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN > IN HOME TEST FROM THE HEP C > FOUNDATION AND IT CAME BACK POSITIVE AND THEY > TOLD ME TO HAVE THE DR'S RUN A > VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME > BACK WITH A VIRAL LODE OF > OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE > TO ASK ME IF I WAS USING IV > DRUGS. I WAS FURIOUS AND STATED THAT I HAD > TESTED POSITIVE IN 1994 SO THEY > ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY > THEY NEVER APOLOGISED. SINCE > THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I > AM STILL POSITIVE. I HAD A > LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN > STAGE 2/3 FIBROSIS. I AM HOPING > TO START TREATMENTS SOON. MY X HUSBAND STILL > TESTS NEGATIVE. I AQUIRED HEP > C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC > PREGNANCY RUPTURED. NO ONE IN > MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND > YOUR FAMILY. HEP C CAN BE A > SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT > CAN BE WON. > > HANG IN THERE > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Charlie, Way to go. I cannot do as much as you and I am not on treatment now. But have been 3 times. Keep up the good work and High Spirits!!!! Dana --- chopps007 <chopps007@...> wrote: > Hi and all!!.. : ) .. I'm a 3D Artist and I > sit most of the day.. I have a 25 min drive to work > and that is getting harder . I know of two men on > Peg that worked a sheet metal job and they both had > problems due to the lack of Energy, headaches...and > soreness. Please keep in mind not all get sever side > effects, the mental ones are bad for me, I work > 40-60 hrs a week and I stress way bad on this Peg at > times. So I take in as much water as possible....5 > oz per lbs. of body weight. I stretch like crazy, > jog three times a week left weights twice a week( > all very taxing ) . I wish I could say for sure ur > hubby will be able to work and produce the same, I > cant. I can say that I push physicly hard and work a > high paced, deadline oriented career. I meditate and > light candles, I go to the local support group. Im > active in the ALF with volunteer work when I can. I > can lots of hugs,,, helps not feel alone( Im single > and looking ) u have the hug thing covered...lol. I > eat allot more fruits and vegetables, I drink a whet > and fruit smoothie every morning,, or oatmeal, both > easy ion the stomach. Well Im off to work. Lets keep > in touch , I have been through three different > Interferon treatments and I will help any way I can. > > Have a great day!!! I send all healing thoughts and > positive Energy!!!!!! > your friend > Charlie > Re: > Re: > > > Thank you for responding. The tests that are > put out these days are suppose > to be more accurate , they say. Our specialist > said that my husband could > start treatment immediately if need be. We > haven't the results from his > biospy back yet. It seems there has been a > waiting list or some mix arounds > with other people around the country as far as > getting treated. That is an > awful shame. I feel fortunate enough that we > have it readily available at > our fingertips and that the doctors and > specialists that we got in contact > with are on top of things. However, we are > still mystified about the the on > and off diagnosis. Does the disease mask itself > against todays test? Or > can it? Our specialist runs two sorts of tests. > (names have escaped me) > The first test gets sent to another lab which > takes about 7 days. Then the > other test gets sent to milwaukee which takes > about 2 weeks. > Sandy Booton <ibsandy77@...> wrote: > HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION > WITH THE ON AGAIN OFF AGAIN > TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 > AND THEN AGAIN WAS TESTED IN > 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS > CAME BACK NEGATIVE. THE > DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT > I DID. SO I MOVED TO A > DIFFERENT CITY AND TOLD THE DR'S THAT I HAD > TESTED POSITIVE AND THEY RAN THE > TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN > IN HOME TEST FROM THE HEP C > FOUNDATION AND IT CAME BACK POSITIVE AND THEY > TOLD ME TO HAVE THE DR'S RUN A > VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME > BACK WITH A VIRAL LODE OF > OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE > TO ASK ME IF I WAS USING IV > DRUGS. I WAS FURIOUS AND STATED THAT I HAD > TESTED POSITIVE IN 1994 SO THEY > ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY > THEY NEVER APOLOGISED. SINCE > THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I > AM STILL POSITIVE. I HAD A > LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN > STAGE 2/3 FIBROSIS. I AM HOPING > TO START TREATMENTS SOON. MY X HUSBAND STILL > TESTS NEGATIVE. I AQUIRED HEP > C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC > PREGNANCY RUPTURED. NO ONE IN > MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND > YOUR FAMILY. HEP C CAN BE A > SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT > CAN BE WON. > > HANG IN THERE > > LOVE IN HIS LIGHT > > SANDY > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Thank you Charlie for your imput. Sounds like you really work hard at being positive and doing whatever you can to keep your energy up. My hubby is still waiting for results ... to be honest, I think he is procrastinating. I feel fortunate enough that my hubby is going to -what is rated " in the top 100 " medical facilities in the U.S.- So, we are feeling confident about our services thus far. At the moment, he is only suffering from tiredness. He isn't on treatment yet as I have told you. I am expecting next month and after that my energy level will be higher and I can be more supportive and helpful to him. I do what I can momentarily of course, but, I have very little energy. We have a very big family...4 kids one on the way..which in itself is tiring...without the illness!! He is the main source of income. Well, anyway, the specialist said that if cirrosis (did I mess that spelling up or what!!) hasn't set in yet, and/ liver damage hasn't taken effect we can wait on the treatment. He talked a bunch of numbers and things that we don't yet understand. I have a feeling we will understand more when he sees him on Tuesday...sits down with him and shows him the " What' s Up " . Keep in Touch. chopps007 <chopps007@...> wrote: Hi and all!!.. : ) .. I'm a 3D Artist and I sit most of the day.. I have a 25 min drive to work and that is getting harder . I know of two men on Peg that worked a sheet metal job and they both had problems due to the lack of Energy, headaches...and soreness. Please keep in mind not all get sever side effects, the mental ones are bad for me, I work 40-60 hrs a week and I stress way bad on this Peg at times. So I take in as much water as possible....5 oz per lbs. of body weight. I stretch like crazy, jog three times a week left weights twice a week( all very taxing ) . I wish I could say for sure ur hubby will be able to work and produce the same, I cant. I can say that I push physicly hard and work a high paced, deadline oriented career. I meditate and light candles, I go to the local support group. Im active in the ALF with volunteer work when I can. I can lots of hugs,,, helps not feel alone( Im single and looking ) u have the hug thing covered...lol. I eat allot more fruits and vegetables, I drink a whet and fruit smoothie every morning,, or oatmeal, both easy ion the stomach. Well Im off to work. Lets keep in touch , I have been through three different Interferon treatments and I will help any way I can. Have a great day!!! I send all healing thoughts and positive Energy!!!!!! your friend Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Thank you Charlie for your imput. Sounds like you really work hard at being positive and doing whatever you can to keep your energy up. My hubby is still waiting for results ... to be honest, I think he is procrastinating. I feel fortunate enough that my hubby is going to -what is rated " in the top 100 " medical facilities in the U.S.- So, we are feeling confident about our services thus far. At the moment, he is only suffering from tiredness. He isn't on treatment yet as I have told you. I am expecting next month and after that my energy level will be higher and I can be more supportive and helpful to him. I do what I can momentarily of course, but, I have very little energy. We have a very big family...4 kids one on the way..which in itself is tiring...without the illness!! He is the main source of income. Well, anyway, the specialist said that if cirrosis (did I mess that spelling up or what!!) hasn't set in yet, and/ liver damage hasn't taken effect we can wait on the treatment. He talked a bunch of numbers and things that we don't yet understand. I have a feeling we will understand more when he sees him on Tuesday...sits down with him and shows him the " What' s Up " . Keep in Touch. chopps007 <chopps007@...> wrote: Hi and all!!.. : ) .. I'm a 3D Artist and I sit most of the day.. I have a 25 min drive to work and that is getting harder . I know of two men on Peg that worked a sheet metal job and they both had problems due to the lack of Energy, headaches...and soreness. Please keep in mind not all get sever side effects, the mental ones are bad for me, I work 40-60 hrs a week and I stress way bad on this Peg at times. So I take in as much water as possible....5 oz per lbs. of body weight. I stretch like crazy, jog three times a week left weights twice a week( all very taxing ) . I wish I could say for sure ur hubby will be able to work and produce the same, I cant. I can say that I push physicly hard and work a high paced, deadline oriented career. I meditate and light candles, I go to the local support group. Im active in the ALF with volunteer work when I can. I can lots of hugs,,, helps not feel alone( Im single and looking ) u have the hug thing covered...lol. I eat allot more fruits and vegetables, I drink a whet and fruit smoothie every morning,, or oatmeal, both easy ion the stomach. Well Im off to work. Lets keep in touch , I have been through three different Interferon treatments and I will help any way I can. Have a great day!!! I send all healing thoughts and positive Energy!!!!!! your friend Charlie Re: Re: Thank you for responding. The tests that are put out these days are suppose to be more accurate , they say. Our specialist said that my husband could start treatment immediately if need be. We haven't the results from his biospy back yet. It seems there has been a waiting list or some mix arounds with other people around the country as far as getting treated. That is an awful shame. I feel fortunate enough that we have it readily available at our fingertips and that the doctors and specialists that we got in contact with are on top of things. However, we are still mystified about the the on and off diagnosis. Does the disease mask itself against todays test? Or can it? Our specialist runs two sorts of tests. (names have escaped me) The first test gets sent to another lab which takes about 7 days. Then the other test gets sent to milwaukee which takes about 2 weeks. Sandy Booton <ibsandy77@...> wrote: HI SHELLEY: I CAN UNDERSTAND YOUR FRUSTRATION WITH THE ON AGAIN OFF AGAIN TEST RESULTS. I WAS DIAGNOSED POSITIVE IN 1994 AND THEN AGAIN WAS TESTED IN 2000 BECAUSE I BECAME ILL AGAIN AND THE TESTS CAME BACK NEGATIVE. THE DOCTORS SAID I HAD NEVER HAD IT, BUT I FELT THAT I DID. SO I MOVED TO A DIFFERENT CITY AND TOLD THE DR'S THAT I HAD TESTED POSITIVE AND THEY RAN THE TESTS AND IT WAS STILL NEGATIVE. I THEN GOT AN IN HOME TEST FROM THE HEP C FOUNDATION AND IT CAME BACK POSITIVE AND THEY TOLD ME TO HAVE THE DR'S RUN A VIRAL LODE TEST INSTEAD AND SURE ENOUGH IT CAME BACK WITH A VIRAL LODE OF OVER 1,000,000. THEN THE DOCTOR HAD THE NERVE TO ASK ME IF I WAS USING IV DRUGS. I WAS FURIOUS AND STATED THAT I HAD TESTED POSITIVE IN 1994 SO THEY ASKED FOR MY MEDICAL RECORDS. NEEDLESS TO SAY THEY NEVER APOLOGISED. SINCE THEN I HAVE HAD THE TEST RAN SEVERAL TIMES AND I AM STILL POSITIVE. I HAD A LIVER BIOPSY DONE IN SEPT. 2001 AND I AM IN STAGE 2/3 FIBROSIS. I AM HOPING TO START TREATMENTS SOON. MY X HUSBAND STILL TESTS NEGATIVE. I AQUIRED HEP C FROM A TRANSFUSION IN 1974 AFTER AN ECTOPIC PREGNANCY RUPTURED. NO ONE IN MY FAMILY HAS IT. MY PRAYERS ARE WITH YOU AND YOUR FAMILY. HEP C CAN BE A SNEAKY DISEASE, BUT IT CAN ALSO BE A BATTLE THAT CAN BE WON. HANG IN THERE LOVE IN HIS LIGHT SANDY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 I am not sure it is wise to wait until he shows liver damage to start treatment!!! if he takes treatment now from what I have understood, the chances of getting cirrhosis are greatly reduced.once you have cirrhosis it may or may not repair it self!! I could be wrong, but I don't think so. someone else chime in here CAROL Dear Lord, Either Quiet The Waves Or Lift Me Above Them; It's Too Late To Learn To Swim. Crowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 I am not sure it is wise to wait until he shows liver damage to start treatment!!! if he takes treatment now from what I have understood, the chances of getting cirrhosis are greatly reduced.once you have cirrhosis it may or may not repair it self!! I could be wrong, but I don't think so. someone else chime in here CAROL Dear Lord, Either Quiet The Waves Or Lift Me Above Them; It's Too Late To Learn To Swim. Crowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Yes, I agree. I have always heard the earlier the treatment the better the chances of beating it. Dana --- dragonrider <dragonrider@...> wrote: > > I am not sure it is wise to wait until he shows > liver damage to start treatment!!! if he takes > treatment now from what I have understood, the > chances of getting cirrhosis are greatly > reduced.once you have cirrhosis it may or may not > repair it self!! I could be wrong, but I don't think > so. someone else chime in here > CAROL > Dear Lord, Either Quiet The Waves > Or Lift Me Above Them; > It's Too Late To Learn To Swim. > > Crowley > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Yes, I agree. I have always heard the earlier the treatment the better the chances of beating it. Dana --- dragonrider <dragonrider@...> wrote: > > I am not sure it is wise to wait until he shows > liver damage to start treatment!!! if he takes > treatment now from what I have understood, the > chances of getting cirrhosis are greatly > reduced.once you have cirrhosis it may or may not > repair it self!! I could be wrong, but I don't think > so. someone else chime in here > CAROL > Dear Lord, Either Quiet The Waves > Or Lift Me Above Them; > It's Too Late To Learn To Swim. > > Crowley > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Thanks for the imput. We are still waiting to see the specialist. Tomorrow is his appointment (Tuesday). I don't even know that he can start treatment if it hasn't effected his liver yet. However, I was thinking kindof on the same lines that as he has hep c in his system, is starting to feel tired (that is the only symptom thus far) and has no liver damage...shouldn't we try to kill it before it does attack? Why wait right? Oh I hope you are right and we can conquer this early. dragonrider <dragonrider@...> wrote: I am not sure it is wise to wait until he shows liver damage to start treatment!!! if he takes treatment now from what I have understood, the chances of getting cirrhosis are greatly reduced.once you have cirrhosis it may or may not repair it self!! I could be wrong, but I don't think so. someone else chime in here CAROL Dear Lord, Either Quiet The Waves Or Lift Me Above Them; It's Too Late To Learn To Swim. Crowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Thanks for the imput. We are still waiting to see the specialist. Tomorrow is his appointment (Tuesday). I don't even know that he can start treatment if it hasn't effected his liver yet. However, I was thinking kindof on the same lines that as he has hep c in his system, is starting to feel tired (that is the only symptom thus far) and has no liver damage...shouldn't we try to kill it before it does attack? Why wait right? Oh I hope you are right and we can conquer this early. dragonrider <dragonrider@...> wrote: I am not sure it is wise to wait until he shows liver damage to start treatment!!! if he takes treatment now from what I have understood, the chances of getting cirrhosis are greatly reduced.once you have cirrhosis it may or may not repair it self!! I could be wrong, but I don't think so. someone else chime in here CAROL Dear Lord, Either Quiet The Waves Or Lift Me Above Them; It's Too Late To Learn To Swim. Crowley Quote Link to comment Share on other sites More sharing options...
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