Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 According to the NIH and the CDC Hepatitis C has NOT been found in body fluids. They have been saying this for years. <br><br>As for laser biopsies, I do know a few people who have had them done. Nearly all of them had problems afterward. They felt much more pain in the liver area and seemed to take a bit longer to get back to normal. I would think it would be easier to deal with because of the laser, but maybe not! <br><br>I have no printed info on it though. Sorry!<br><br>LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 It is very frustrating for many of us. The lack of information until you are really involved with surviving this disease. Each of us does our best to teaching each other what works, the is so little info out, for someone with absolutely no medical background this is a nightmare for. We do the best we can to help each other out with what works for side effects. And support each other to fight to beat this disease with in our selves. We laugh and play and share jokes too. I am greatful to any thing anyone reads or has heard that helps. Each One Teach one, we will let " them know " that it is time to find a cure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Okay, thanks for letting me know. It doesn't sound like it's the way for my sons to go just yet. I was thinking there wouldn't be the danger of bleeding if it was done that way but the rest of it doesn't sound good! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 I don't know how old you are but I know that going on combo threw me right in to menopause. You might want to have your hormone levels checked. I know that even on hormone replacements I still get night sweats or what is called hot flashes in the night and during the day. I think that it is something caused from the combo..just my opinion. This doesn't necesarly mean that the virus active again. I have been off treatment 15 months and still trying to get the kinks worked out!! don't panic......tricia (hep mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 I don't know how old you are but I know that going on combo threw me right in to menopause. You might want to have your hormone levels checked. I know that even on hormone replacements I still get night sweats or what is called hot flashes in the night and during the day. I think that it is something caused from the combo..just my opinion. This doesn't necesarly mean that the virus active again. I have been off treatment 15 months and still trying to get the kinks worked out!! don't panic......tricia (hep mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 Alot of meds have half-lifes(a small amount stays awhile longer in our bodies)this may cause some withdrawl like symptoms<br>I had to stop treatment after 14 weeks because of insurance bobo,the next two weeks were worse than the " sides " of treatment to me,it did pass<br>back on treatment now,but dread it happening again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 Alot of meds have half-lifes(a small amount stays awhile longer in our bodies)this may cause some withdrawl like symptoms<br>I had to stop treatment after 14 weeks because of insurance bobo,the next two weeks were worse than the " sides " of treatment to me,it did pass<br>back on treatment now,but dread it happening again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Thank you...now I know that I will use the treatments that I have had in my fridge. I havent been able to work up the courage to take that first pill...they scare me more than the shots. God Bless and take care Sandy leighannv wrote:Well I for once have some REALLY good news to share! I am in a study at USC called HALT-C. This is a 4 yr study and I started in Nov. 2000. I did Roche's new Pegasys Interferon + Ribavirin treatment for 24 weeks and did not respond so I was put into the Control Group. This group is just " watched " for the rest of the study to see if we move faster in damage progression than those who stay on the Pegasys treatment. In November 2000 they did a beginning point biopsy. I'll spare you the minute details but the important results were: Histology Activity Index (Ishak score) was 6/18 for necroinflammation and 3/6 for fibrosis. This means Stage 3 Grade 2 bridging fibrosis damage. (Moderate necroinflammation) I just today got the results of my 2 yr biopsy in the study, which I had done this past Thursday, and the results are: Histology Activity Index (Ishak score) 4/18 for necroinflammation and 3/6 for fibrosis. (MILD necroinflammation) This means that the inflammation has lessened (or improved) and the fibrosis has remained the same. The only bad point in the biopsy is that with the weight I have gained since stopping treatment, the fatty liver has gotten a tad worse. Now I have to work on losing some weight again. Fatty liver is NOT a good thing!! What this all comes out to mean is that the 4 treatments of interferon I did from 1998 until 2001 STOPPED the progression of liver damage for me. This is FANTASTIC news, especially for people with my genotype (1a) which is the most difficult one to treat! SO...if you know someone who is debating on treatment,(or you yourself are debating) tell them to DO IT!! I am living proof that even with Genotype 1 you can stop the progression towards cirrhosis!!!!!!! LeighAnn http://www.geocities.com/1Leighann http://www.geocities.com/hepvet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2003 Report Share Posted February 8, 2003 Thanks for the info Jeanie. I'll have to get that put up on my website so others can see what it means as well! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi LeighAnn, They didn't tell me to fast for these tests, so maybe that's why the glucose is up. I hope so, anyway. The doctor said he'd redo the test next month. Thanks for the info. Marie in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi Leighann, Please help me understand a couple of things. I was just dx, 2 months ago, type 1a, grade 1, stage 0-1. Can you explain what grade and stage is? And also, you mentioned on a recent post to a new member that most likely the tx won't get rid of the virus. Why is that? Isn't there a 50-60% chance that it will with type 1? Thanks Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 In the support group I attend, of the 5 people who have completed treatment, Schering's PegIntron, 3 are undetectable at 6 months or longer post treatment. A strong positive attitude and either an online or face-to-face support group really help. The Dragon can be beaten! Glenn > Hi Leighann, > Please help me understand a couple of things. I was just dx, 2 > months ago, type 1a, grade 1, stage 0-1. > Can you explain what grade and stage is? And also, you mentioned on a > recent post to a new member that most likely the tx won't get rid of > the virus. Why is that? Isn't there a 50-60% chance that it will > with type 1? > Thanks > Chris Quote Link to comment Share on other sites More sharing options...
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