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Re: MS/CMT

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Ben

I would think you're friend has had a MRI scan of the brain which clearly (to

the best of my knowledge) shows MS.

The symtoms of CMT and MS are very similiar. I have a very good friend who has

MS and we often get together and compare symptoms but this is because they are

both neuromuscular diseases.

If you have a demylinating (sp) of CMT ie every other type other than CMT 1 than

I would assume your diagnosis was made as a result of significantly reduced

readings on NCV/EMG's.

Also MS is indiscriminate (as far as is known) and there is no family history.

CMT (on the whole except for our lovely Gretchen who is spontaneous) and there

is a history in the family.

Hope this helps but please remember I'm in the UK where they still use rabbits

for pregnancy tests - LOL)

Love

Sue X

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

" I Thank God for my handicaps, for through them, I have found myself, my work,

and my God. " - Helen Keller

----- Original Message -----

From: Ben

Sent: Friday, November 30, 2001 11:56 PM

Subject: [] MS/CMT

I just heard from a friend that he was diagnosed with MS today. He had

complained about a month ago of feeling tingling type feelings in both

hands and had also been off balance. The doctors he saw seemed to

concentrate on MRI's and they told him relatively quickly that they thought

it may be MS. I told him of my CMT diagnosis and what my symptoms were. I

also asked him if CMT had been brought up as a possibility by the doctors,

they had not. I must say I'm very surprised about how similar the symptoms

can be for these two diseases, it makes me wonder if my diagnosis is

correct. Does anyone understand (in lay men terms) how the two are

distinctive from one another? Ben

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Hmm... When you said the doctors looked and focused on the MRI's it made

me wonder. Couldn't CMT be MS (undiagnosed) if you haven't had a MRI to

rule it out? I'm just wondering...

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