Welcome Dan

[Guest guest]

> Hello Dan,

>

> Welcome to . From reading you postings, you have already done

quite a bit of searching and familiarizing yourself with our group.

Very good----educating yourself is very important.

>

> I am 41 years old and was diagnosed when I was 36. Within the last

year, I have had both of my feet operated on because my ankles were

rolling. So far, the soft tissue surgery has been a success. I do

not wear orthotics or AFOs at this time, nor have I ever. But of

course that may occur down the road. My hands are affected. They

are withered looking and I am loosing strength in them. But, life

goes on and I choose to live my live with a positive attitude. That

doesn't mean that I don't have some " down " days, but staying

depressed and dwelling on " what I can't do " will not help me or

change things! For me, stress is a major factor. It causes CMT to

exacerbate and I am still learning how not to let it take over my

life.

>

> Don't worry about your lacking computer skills; we all have to

learn. I learn something new every day! Regarding the " Careers

List " , these occupations were submitted my some of our members. Our

members have numerous occupations! The list will change on a regular

basis. Thanks for your input.

>

> Dan, regarding your statement about Becky and Lamar being

banned....let me assure you our moderator had just cause. It is not

the policy of Gretchen to " air dirty laundry " , but she had VERY VALID

reasons. You will find as with any group of people, there are

personality clashes, ego maniacs and those who want to " waller " in

self pity. Let me assure you, this group is/and will continue to be

a POSITIVE and upbeat educational group of people who have CMT. We

are all here to learn about CMT and help others. Enough said

regarding this situation. We will continue to have a monthly

newsletter.

>

> Again, welcome to the group. Please feel free to ask questions and

give your personal experiences regarding CMT.

>

>

> East Texas

>

> Thanx , but you did not tell me who to mail my questions to

for the news letter for the Doctor. I guess I did not read all the e-

mails because I saw no " wallering " in self pity. And I guess I need

to know those VERY VALID reasons as I don't want to do anything wrong

here. This is a most informative place to be for this disease. I did

read those on elavil? And saw no arguments with it, yet the owner

said it was an argument. And read a reply that some one was leaving

because of it. You said what I can't do wont help or change it. Thats

right, but it can help to change things. If I see what I can't do, I

can then change to what I can do. I must take a break from all my

reading as I am seeing two moniters and three keyboards, ha ha.

will read more later and thanks for the welcome.

>

[Guest guest]

Hello Dan,

Welcome to . From reading you postings, you have already done quite a bit

of searching and familiarizing yourself with our group. Very good----educating

yourself is very important.

I am 41 years old and was diagnosed when I was 36. Within the last year, I have

had both of my feet operated on because my ankles were rolling. So far, the

soft tissue surgery has been a success. I do not wear orthotics or AFOs at this

time, nor have I ever. But of course that may occur down the road. My hands

are affected. They are withered looking and I am loosing strength in them.

But, life goes on and I choose to live my live with a positive attitude. That

doesn't mean that I don't have some " down " days, but staying depressed and

dwelling on " what I can't do " will not help me or change things! For me, stress

is a major factor. It causes CMT to exacerbate and I am still learning how not

to let it take over my life.

Don't worry about your lacking computer skills; we all have to learn. I learn

something new every day! Regarding the " Careers List " , these occupations were

submitted my some of our members. Our members have numerous occupations! The

list will change on a regular basis. Thanks for your input.

Dan, regarding your statement about Becky and Lamar being banned....let me

assure you our moderator had just cause. It is not the policy of Gretchen to

" air dirty laundry " , but she had VERY VALID reasons. You will find as with any

group of people, there are personality clashes, ego maniacs and those who want

to " waller " in self pity. Let me assure you, this group is/and will continue to

be a POSITIVE and upbeat educational group of people who have CMT. We are all

here to learn about CMT and help others. Enough said regarding this situation.

We will continue to have a monthly newsletter.

Again, welcome to the group. Please feel free to ask questions and give your

personal experiences regarding CMT.

East Texas