Re: I need your experience

[Guest guest]

In a message dated 9/29/2001 6:03:46 PM Pacific Daylight Time,

JJSLP122@... writes:

> The rehab doctor told me

> today that the stroke couldn't possibly effect her CMT, but my

> experience is that " we " (people who live with this) know more than

> most doctors. Also, they have been giving her Dilantin since for the

> past two weeks. I know that is on the " don't take " list.

> Has anyone had any experience with either a stroke or dilantin making

> CMT worse?

> Thanks in advance for your help!

>

>

>

>

I am not a doctor but this is what I understand.

The stroke can make the C'MT worse. The pregnancy can make the CMT worse.

From what I understand anything that is on that CMT list of the don't take

meds has made someone worse.

Your family needs to get a neurologist that understands CMT ASAP.