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you certainly have come to the right place. Everyone on this forum has

CMT and everyone has their own stories, their own versions and symptoms of it.

Sometimes you might read something on this site which will frighten you into

thinking that you will end up the same way. But that's not true as I say we all

progress at different rates and started off our lives with varying degrees of

the disease.

You sound just fine and you can and will live a normal life. I'm 40, a mother of

three boys, been married three times (okay so that's not normal). I live in

England, I have my hobbies, my work and I'm in a wheelchair BUT I was born

severely affected by CMT. Yes it's a normal life - normal for me. My family and

friends don't treat me any different and silly things in the course of my work I

meet a lot of people - many I've emailed or phoned beforehand and when they meet

me they often say I didn't realise you were in a wheelchair - I normally say you

didn't ask but it doesn't stop me doing what I have to do. Yes I've had to give

things up as many have on this group but we've adapted because we too are

perfectly normal.

Does this make sense? Go and see a doctor. Go and get help, listen and learn and

you'll find that life with CMT really is great.

Love and hugs

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

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