Re: GOOD PR NEWS-To Gretchen

[Guest guest]

Gretchen,

This is GREAT news! Alot of work has gone into your creation of , and

we thank you! Go Girl!! Public awareness is one of our goals.

----- Original Message -----

From: " Gretchen Glick " <liliwigg@...>

" ers at groups " < >

Sent: Thursday, September 06, 2001 4:18 PM

Subject: [] GOOD PR NEWS!

> Dear all ers,

>

> I just opened my MDFF Summer 2001 newsletter to find our

> discussion group mentioned in quite a nice article (4 paragraphs) and

> also mentions the Foundation. (On Page 5) The Summer 2001 issue

> isn't available for download, but if you would like to get this

> Newsletter,called " The Foundation Flyer " just to to http://www.mdff.org

> then click on 'news' then fill in information on where to send it. The

> Muscular Dystrophy Family Foundation Inc. is NOT the same as the

> Muscular Dystrophy Association. Those of you especially with CMT

> children might find the MDFF helpful.

>

> Anyway, just some good news for you and also another piece of press to

> get CMT known!

>

> ~ Gretchen

>

>

>