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GOOD PR NEWS!

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Dear all ers,

I just opened my MDFF Summer 2001 newsletter to find our

discussion group mentioned in quite a nice article (4 paragraphs) and

also mentions the Foundation. (On Page 5) The Summer 2001 issue

isn't available for download, but if you would like to get this

Newsletter,called " The Foundation Flyer " just to to http://www.mdff.org

then click on 'news' then fill in information on where to send it. The

Muscular Dystrophy Family Foundation Inc. is NOT the same as the

Muscular Dystrophy Association. Those of you especially with CMT

children might find the MDFF helpful.

Anyway, just some good news for you and also another piece of press to

get CMT known!

~ Gretchen

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