Re: AFO'S help and information required.

[Guest guest]

:

I'm not sure if there's a link to the Oregon Orthotic System which is

dispensed thru Hangar Orthotics/Prosthetics (a national company), but

you should check this out also. Glad you spoke up. Same thing

happened to me. An orthopedist prescribed a metal over-the-knee

brace that was horrible. I think the OOS is more rigid than the

lighter-weight styles, but ankle flexion can be adjusted. They

definitely made me feel less disabled and more able. I'll try to

find where you can read about it and post it.

Melody

> Hi,

>

> Today I had a follow up appointment for my AFO'S which I was fitted

for three

> months ago. I decided to speak the truth and tell her what they had

supplied

> me with made me more disabled. She was a bit taken a back by this

but after

> a talk with her she could understand where I was coming from.

>

> The result is she has advised me to search for information on

different types

> of bracing used by other people with CMT, that is where my friends

come in

> on . I have gathered info on the Rothchild bracing for Drop

Foot but in

> the archives I see Virtual Gait Braces mentioned but could not find

a web site

> for them, can you help with info on this many any additional types

of bracing

> you have found to be beneficial.

>

> Thank you

>

> Palombo

[Guest guest]

***Thank you, Kat!!***

: note the 800# you can call.

Melody

>

> In a message dated 11/29/01 4:36:18 PM, mel2mars@m... writes:

>

> << Oregon Orthotic System >>

>

> http://www.oos.com/

[Guest guest]

,

I, like you, have more discomfort with my AFO's than relief.

Mine keeps my ankles from collapsing but still gee o gee

the way it rubs up on me.

They're so uncomfortable. I am not sure what kind of braces you

can use but I just wanted to let you know I have the same problem

with AFO's.

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