New! CMT BOOK REVIEW!

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(Reviewed by Gretchen Glick, Moderator)

Rehabilitation Management of Charcot Marie Tooth Disease - by Dr. Paolo

Vinci

The very title of Dr. Vinci's monumental work speaks of hope. Then this

book clearly presents a host of ideas for a major two-fold

'rehabilitation management' protocol of our shared disease in three

separate sections.

Rehabilitation Management of Charcot-Marie-Tooth Disease by Paolo Vinci,

MD., is dedicated 'to the patients' and takes us on a definitive 120

page tour of greater understanding. Unique to this literary creation is

that Dr. Vinci, himself, has CMT.

Readers will first find an extensive course of anatomy and physiology of

the motor system explained in simple, yet direct terms. Learning from

diagrams and color photographs, the book explicitly teaches us about

neuro-motor movement.

In the second section, pathogenesis, we learn what happens with muscles

and nerves in CMT. Also included are topics on sensation, functional

impairment, reasoned therapy and severity of the disease that include

balance impairment, as well as muscle and joint alterations.

Continuing in this section, Dr. Vinci discusses both demyelinating and

axonal forms and explains exactly how each happens with easy to

understand illustrations. Re-innervation, compensatory mechanisms - such

as collateral sprouting and muscle hypertrophy are highlighted.

This second section concludes with notes on reasoned therapy and the

beginning of hope for CMT symptom management.

The third section of this book is of the greatest value, as we now have

the background on which to manage CMT. Highlights include goals,

improvement of strength, reduction of fatigability, balance improvement,

prevention and treatment of deformities, promotion of mobility,

prevention of falls and methods of evaluation. Both foot and hand

function is covered as well. Again, color photographs are plentiful and

greatly increase understanding of protocols.

Perhaps the most overlooked area of CMT is the solution of psychological

problems and Dr. Vinci's book dares to delve into acceptance, relational

skills, embarrassment, loneliness, depression and procreation issues. He

encourages those with CMT to join Internet email groups and specific

support groups, as these " can improve acceptance of the disease and

encourage socialization " . (pg. 119)

This book concludes with a section on prevention and treatment of knee

pain, low back pain, metatarsal pain, and neuropathic pain.

Two important contributors and extensive references make this book

Rehabilitation Management of Charcot-Marie-Tooth Disease by Dr. Paolo

Vinci, a work of profound integrity and truth, leading ALL with CMT,

their families and friends toward a beauty that is hope.

To order on line http://www.stradeservizi.it/cmt.htm

[Guest guest]

> (Reviewed by Gretchen Glick, Moderator)

>

>

> Rehabilitation Management of Charcot Marie Tooth Disease - by Dr.

>Paolo Vinci

.......

>

> To order on line http://www.stradeservizi.it/cmt.htm

Dear Gretchen,

I had the book, and then went to the (italian) hospital where his team

works:

I am impressed with the results.

I previously met a californian CMT guru and he suggested tendon

stretching and AFOs

Paolo, and his tech Carolina, got me back walking, with a special shoe

he designed and a lot of exercise. I gained back almost one inch of

calf length. In two weeks!

Their passion and hard work helped me a lot. I want to thank them.

The book was of big help for me on understanding what is going on with

my body.

bye