Guest guest Posted March 16, 1999 Report Share Posted March 16, 1999 Hi Happy and all, Of course you are quite right, you can send the blood sample to the labs. I would just not be satisfied that a blood sample would still be sufficently viable after travelling from Northern Ireland to Calfornia to detect mycoplasma. This is partly because I am a perfectionist and If the result came back negative I just couldn't be sure it was right. See the quote below from a transcript of a lecture by Dr Darryl See. This suggests the freshness of the sample is important to the outcome result of the test. " The only viable way of making a diagnosis is by PCR test. And as far as I know, Immuno Sciences is the only one that does it. And they're up here, too. We send our samples from San Diego and from Irvine there. The fresher the samples, the better, so you guys are close, so you have the best chance of having an accurate test. In a few patients that I thought--well, they really act like they have mycoplasma incognitus--I sent them to the lab to have a fresh sample, and negative became positive. " http://home.ici.net/~angrygrl/seetranscript.html Anyway for me it's not possible because I can't just afford it at present (the illness having decimated my finances). Also I have already started on clarithromycin so I would have to stop and wait 2-3 months before getting tested. I decided to go with the try it and see approach as I had to try something to try and get myself back to work. I have however accepted the chances are slim. I agree that it makes a lot of sense, but from what I have read and what others have said here, it may or may not help, if it helps it might not last when treatment is stopped. But then it just might and for some people it is. I think as someone else has said we are all different and we've got to try each treatment for ourselves. You think you've found the answer then the more you research it the less certain things are. Nothing is simple with this illness. Also thanks to you all for the advise and information, Susy the rheumatic site info was interesting, I find all the info helps build up a picture. So far, day 13, which is really too early to judge anything I have not suffered any herxheimmer reaction, nor am I feeling any different. Although I think it is doing something apart from affecting my stomach. I have started supplementing with Multidophilus, live youghart and fructooligosaccharide. Got to go now, best wishes, Ian [CFSFMSexperimental] Mycoplasmas >From: HapsQuilt@... > >Ian >I want to thank you for posting the web addresses for mycoplasma information. >I find this really interesting and will consider getting tested. Doesn't sound >like an easy treatment regime, but nothing else about this is easy either. >Would you truly have to go to Calif to be tested??? Sounds like you can just >send a blood sample.....I encourage everyone who hasn't had the energy to look >up these sites to take the time. Makes a lot of sense to me. >Happy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 These bacteria are found in cases ranging from CFS to tachycardia (heart failure) to rheumatoid arthritis. see link below http://www.icr.org/pubs/imp/imp-340.htm This shows them attaching to host cells in a manner similar to other pathogens. If our theory about altering the outer layers of the microbe so it cannot attach to a host cell are correct, the electricity could work to alter the infectivity of mycoplasmas. CFS cases often report some temporary gains, but relapse with blood electrification. Mycoplasmas can infect any cell, so just treating 5 quarts of blood may not be much good. They cross the blood-brain barrier, and may thus induce CFS by lowering brain function, etc. There's many hypotheses one could frame to explore with DC current. Perhaps the only way to find out is test godzilla on things like rheumatoid arthritis, and fibromyalgia, etc. bG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 rheumatism is also a sign of dehydration which many people suffer from. Readthe book called " The bodies many cries for water " V Re: Mycoplasmas Well, immunity is not aware of which things are dangerous, which are just foreign. It all loads the system, making it less available. In case of rheumatoid, the immunity begins attacking the ends of the bones, dissolving them, and rending the joints deformed. Why? It's been hypothesized that something is changing the appearance of the bone ends to resemble invaders, and immunity is just doing its job. Nothing viral has been identified, nothing bacterial in the usual sense, what then? If it's mycoplasma, and they are so tiny, maybe they are electrically sensitive? It's the utmost urgency to test godzilla on rheumatoid, so get em in here and started. If this works on RA, it's a reprieve from a life of torture. bG > > These bacteria are found in cases ranging from CFS to tachycardia > > (heart failure) to rheumatoid arthritis. > > > According to a Merck spokesman, 97% of us are hosting mycoplasma. > Only a small percentage of us get sick and can point to mycoplasma as > a possible link. > > regards, > > Duncan Crow The group's main page has a menu to the left, with photos of Godzilla devices and other things useful in research. These are free to members. Membership is free, but you agree to be on your own, not take our freedom of speech as medical advice. We are not doctors! Repeat, we are ordinary lay people, not experts, not healthy officials, or geniuses of any kind. The information on this group is not intended as medical advice. Most group members are NOT doctors or health authorities. Please do not request medical advice, lest anyone get into trouble out of human compassion. There are huge fines and issues currently involved with unlicensed medical advice. The group is only here to share experiences according to the theme of the group, namely testing if electrical stimulus might inactivate microbes, as it seems to have done in the Einstein Medical College labs. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 rheumatism is also a sign of dehydration which many people suffer from. Readthe book called " The bodies many cries for water " V Re: Mycoplasmas Well, immunity is not aware of which things are dangerous, which are just foreign. It all loads the system, making it less available. In case of rheumatoid, the immunity begins attacking the ends of the bones, dissolving them, and rending the joints deformed. Why? It's been hypothesized that something is changing the appearance of the bone ends to resemble invaders, and immunity is just doing its job. Nothing viral has been identified, nothing bacterial in the usual sense, what then? If it's mycoplasma, and they are so tiny, maybe they are electrically sensitive? It's the utmost urgency to test godzilla on rheumatoid, so get em in here and started. If this works on RA, it's a reprieve from a life of torture. bG > > These bacteria are found in cases ranging from CFS to tachycardia > > (heart failure) to rheumatoid arthritis. > > > According to a Merck spokesman, 97% of us are hosting mycoplasma. > Only a small percentage of us get sick and can point to mycoplasma as > a possible link. > > regards, > > Duncan Crow The group's main page has a menu to the left, with photos of Godzilla devices and other things useful in research. These are free to members. Membership is free, but you agree to be on your own, not take our freedom of speech as medical advice. We are not doctors! Repeat, we are ordinary lay people, not experts, not healthy officials, or geniuses of any kind. The information on this group is not intended as medical advice. Most group members are NOT doctors or health authorities. Please do not request medical advice, lest anyone get into trouble out of human compassion. There are huge fines and issues currently involved with unlicensed medical advice. The group is only here to share experiences according to the theme of the group, namely testing if electrical stimulus might inactivate microbes, as it seems to have done in the Einstein Medical College labs. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG Quote Link to comment Share on other sites More sharing options...
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