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Crystal,

Would they allow you to come in and administer the lipoic acid? If so and

it's near where you live, it might work without too much inconvenience. If

allowable but not near, perhaps volunteering in the classroom or elsewhere

in the school those days between the doses rather than making multiple

trips...

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  • 8 months later...
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Me Mom,

I wish i could get him another teacher but it seems its a common practice to

slap childrens butts and hands and grabing them in the face to get their

attention. This is all that i have dealt with just with . My other kids

would let the teacher know in a heartbeat that if they touched them then dear

old mom would come and kick their butt. My oldest son told the Princ at the

middle school that he was not gonna use the paddle on him and the princ. said

all i have to do is call your mother and told him, if you call her

then be prepared for her to come down here and use that paddle on you.

anyway, from what i have been told by the princ. last year that the spanking

and slapping is common for teachers here in alabama. that basicly the

teachers have that right. I pulled justin out of school last yr and i will

not do that this year but i will be the worst bitch they have ever run into.

This has been the last straw for me.

thanks for listening,

shelly

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  • 1 month later...
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, my son, who has no speech problems, will also be 6 going into Kindergarten because in our state the cut off is Aug. 31 and his birthday is Sept. 26. So this year as many of his friends start K he will be starting K4 (offered free at the local elementary schools) So anyway, in our state your son is only a month off from the cut off date. As frustrated as I was at first with the fact my son can't start K this year I've decided that an extra year can't hurt anyone. I finally decided that he also wasn't going to be the only one in his situation, there are, I'm sure, plenty of other kids in his class that also are just on the other side of the cut off date. Someone also told me that this should give him a much better advantage in high school should it turn out he in invovled in sports. I've also been told that for boys especially that they benefit from an extra year. He will be going to K4 this year with no pressure but will be getting used to the structure, riding the bus, etc. Hopefully this will give him an advantage once he starts K. Every once in a while it still frustrates me though, thinking his best friend (born in July) will get to start K this year and my son can't. Plus when I read letter like yours and realize that if we lived in a different state with a cut off in Sept or Oct he could go ahead and start K this year. Then I just have to re-remind myself of all the advantages he will have by having an extra year.

As far as my daughter with apraxia her birthday is Sept 14 so she misses the cutoff by only 2 weeks. But for her I'm extremely glad, she gets an extra year with no pressure and no one asking why I kept her back. So with her it really is a good thing she misses the cutoff.

Hannah

I too have been struggling with the issue of when to start my son in school. I believe my son is behind socially because of his language issues, and he too has very low self-esteem around any other children except his brother. will turn 4 in July and I have decided to place him in the 3 year old class this coming fall, then next year he will hopefully progress to the 4 year old class, then he will start kindergarten when he is 6. He actually won't be much older than the other children in his class as his birthdate isn't far from the cut off date (okay, the cut off date is October, but what is 2 months???) is extremely intelligent also and I worried about challenging him in that way if I kept him back. After much soul searching I came to the conclusion that his self-esteem and confidence are more important right now. Instead of making him stay with children that are his "chronological" age I think it will be better for him to go with children who are near his "spirit" age. Once he builds his confidence, he will excell in all other areas, I have no doubt. This will give him an extra year to continue to progress with his speech, and an extra year for him to mature.

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I have a funny story about this. I was at an IEP meeting at

Tanner's " out of district " placement. (that means the town school

system pays for him to go.) Tanner goes to a school for hearing-

impaired children-but Tanner has normal hearing. It's a great school

for apraxic children too.

In a friendly tone the case manager from my town's school for Tanner

asked me, " What are your plans for Tanner for next year-he'll be

turning five this summer right? We really like to start children in

Kindergarten at five. "

I looked at her with one of those holding in a laugh smiles and said-

" _____(her name) You live in our town...they don't even send the

quote-unquote NORMAL kids to Kindergarten at five in our town.

Dakota goes there remember? Dakota and Molly are the only two six

year olds in the entire first grade just about, and if I would have

known that I would have kept Dakota back too. All Dakota's friends

are at least one year older than him. That makes sense though to

start all the special needs kids at five so not only do they have a

challenge against them-but they are the youngest in the class? "

Well needless to say-Tanner is spending another year in his preschool

which goes up to age six. It probably depends on your town-but in

our town-everyone holds their kids back for sports reasons, etc.

You can check the archives for those who can get there-this came up

not long ago.

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Hi , I am brand new to this group so please bear with me. What kind of

programming is offered for Tanner in the hearing impaired program? Curious,

I am so lost right now on which direction to focus my energy on with my

little one. Kayla is four and a half, and the medical mystery child. We

have been all over the place with the medical profession, and needless to

say, not feeling real confident. They have indicated autism-not autism,

apraxic and ataxic. At one point, possible cerebral palsy. Kayla presents

as a child with autistic like behaviors. She is non-verbal and has balance

difficulties. The latest neurologist who I feel most confident with has

indicated apraxia, not necessarily autism. Basically he indicates she

doesn't really fall under anything specific. He's puzzled too due to family

history and the such. Kayla is currently in an autistic impaired program

but I am not sure what we will do in the next year or so for school as she

will be five. If anyone has any suggestions to share, I sure would

appreciate it. Thanks! Tara

>I have a funny story about this. I was at an IEP meeting at

>Tanner's " out of district " placement. (that means the town school

>system pays for him to go.) Tanner goes to a school for hearing-

>impaired children-but Tanner has normal hearing. It's a great school

>for apraxic children too.

>In a friendly tone the case manager from my town's school for Tanner

>asked me, " What are your plans for Tanner for next year-he'll be

>turning five this summer right? We really like to start children in

>Kindergarten at five. "

> I too have been struggling with the issue of when to start my son

in school.

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Hi,

I just wanted to put my .02 in also... I have a son

who is 6 and will turn 7 the day before his last day

of K. My dh and I decided to hold him back in K for

one year because of a move from WA state to CA. The K

school that he attended in WA seemed to be much

further behind than the schools here. Here they

require them to be reading at a certain level, where

in WA there is no reading requirement for 1st grade.

We got here, placed him in 1st, he came home the first

night with homework that was no where near his level.

We spent 3 frustrating hours trying to help him with

his homework. The next day I was at the school asking

for testing to be done on him. (BTW, he has no

developmental delays), but he tested at a K and 1/2 yr

level, meaning for CA standards, he was considered

only being at a half way point in K. So, we put him

back in K after talking to him and explaining why we

made this decision. We did let him give us his

opinion on it, and he also felt he would do much

better by being in K for one more year. He did not

understand about the age difference, I think mainly

due to the fact that he seems a bit immature for his

age compared to his peers. Anyway, it was the best

thing we could have ever done for him. He has gotten

several academic acheivement awards this year, is

reading well above his age level, math is nothing to

him (he's like a human calculator), and his self

esteem has blossomed like we never could have

imagined. We are so glad we made this decision and

wouldn't change it for anything! The friends that he

has made seem so much more at his level and for that I

am grateful. Also, there were about 3 other kids in

his class that are very close to his age. (the only

thing we noticed is that he is taller than most of the

kids in his class, but that has alot to do with mine

and his fathers height). Anyway, I hope this has

helped ease your minds a bit, I know I feel much

better with the outcome. Good luck to you and your

families!!

Kari Belle

Founder: Southern California Apraxia Association

See us at: http://www.SouthernCaliApraxia.homestead.com

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Hi

I also have boys who birthday is Oct.11th and the cut off is Oct.1. BUT our

pre-k program is a full day, I had pull mine out at 12:00 because the only

thing they are missing is lunch and downtime. I really don't want them in

there all day. I am buying computer programs from Earobics and Fastforward

which is language based and guarentees to improve language. I would much

rather them be home learning in the afternoon. They get speech help 2x a

week. But I feel the teacher is de-sensitized and don't care to the

childrens feelings much and some of the aids are questionable and I have a

knot in my stomach. The IEP meeting is the 1st week in June and I know that

is going to be the topic of their conversation to me. Do you think I am wrong

only sending them part-time? My boys are very happy just going parttime and

they do have 2 more years of pre-k before kindergarten??? Any suggestions???

JOYA111@...

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  • 4 months later...

My son Spencer has migraines as some of you may remember. He also has CMT,

ADD, anxiety and a touch of OCD.

He is not on his meds for ADD due to the headaches. The school was not

following his IEP ( Personal education plan). His self esteem was going down.

The school has been calling me over dumb stuff. Like they said he cut in line

at lunch. My reply was he has a front of the line pass that is no taking cuts.

To make a long story short I just took him out of school and put him in a

Home Education program.

I have a good feeling about this.

I don't have to worry if he is getting into trouble at school.

I don't have to worry if he has a headache.

I don' t have to worry if the weather is to cold for his hands.

I don' t have to worry about kids teazing him about his AFOs.

I don't have to worry about P.E.

And I don't have to worry if his back pack is to heavy.

I just have to make him do his work.

Home school may be pretty good for a CMT kid.

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  • 3 years later...
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I heard from a friend about the one in Painesville. She told me that it was geared for high-functioning/Asperger's kids. She has never been to visit but heard that it was good. So, that's kind of third-hand info--sorry! The person that she heard from is a special ed teacher who works with kids with autism. I hope this helps.

Laurie

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I know there a few in Ohio, One is in Painsville and in Parma.JlKowalski2@... wrote:

Is this the one in Painesville?

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Thanks LaurieJlKowalski2@... wrote:

I heard from a friend about the one in Painesville. She told me that it was geared for high-functioning/Asperger's kids. She has never been to visit but heard that it was good. So, that's kind of third-hand info--sorry! The person that she heard from is a special ed teacher who works with kids with autism. I hope this helps.

Laurie

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