Guest guest Posted August 20, 2001 Report Share Posted August 20, 2001 Hi All, I went to my Drs. and she prescribed me Neurontin to help me sleep better. So far it is working well. My sis says it will only last until my body gets used to it. I asked about a dna test to find out what type I have and she was not going for it..she said it doesn't matter. What do you all think? Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2001 Report Share Posted August 20, 2001 " I agree that it doesn't matter to the patient. The result will not be changed and none of the types has a treatment specific to it. Doctors who are studying it tend to want to know types. Some people have a different viewpoint on this. Kat " I, myself decided to get the DNA testing.. but it was to confirm the known fact that I have type 2 and to get a family base line, so that my kids and mom could also get the DNA tests and skip all of the other tests.. NCV's and EMG's for example.. Ernie :~) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2001 Report Share Posted August 20, 2001 Liz, Lamar here, Does knowing the hereditary pattern of your CMT matter? Does adding your DNA information to the large data base of CMT information where the exact anomalies are known to aid in finding treatments matter? Does you and your doctor knowing the maximum about your CMT matter? (Every type is different though they have many similarities). I would ask your doctor why it was not important to find out all that is known about the CMT you have! As to Neurontin, I am not familiar to it having the action your sister described. In fact, you must build up the dose slowly until your body adapts to it for it to work if it does. It is not a " pain pill " that works when you first take it. It helps many. It did not seem to help me, and made me more unsteady. From all I have heard or read the body does not build up a tolerance to it's action. ----- Original Message ----- From: lizdexic@... Sent: Sunday, August 19, 2001 09:10 PM Subject: [] Dr Visit Hi All, I went to my Drs. and she prescribed me Neurontin to help me sleep better. So far it is working well. My sis says it will only last until my body gets used to it. I asked about a dna test to find out what type I have and she was not going for it..she said it doesn't matter. What do you all think? Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 good luck iris. i still say that it is in my head, sometimes. now my dr's are telling me no. so i know how you feel there. i also used to keep a diary of what i ate and what my symptoms were. but i really don't do that anymore. just gets depressing writing the same stuff. over and over. my foot dr recently suggested a friend of his but then never followed through. i already see a counselor to try and help me put all this together. it can be very overwhelming. he has helped me get info on the medicine program. given me a couple atty names. but when he ad me try and sew up my pain. i just told him it'd be nice if it were that easy. strange how we have to prove over and over that our pain is real. kathy in il (relieved because ssa released my sons funds!) Quote Link to comment Share on other sites More sharing options...
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