Re: your not alone!

[Guest guest]

In a message dated 8/9/2001 7:24:18 PM Eastern Daylight Time,

BRUTUSBARE@... writes:

> Reading your post , made me

> remember all my childhood nightmares from being teased. I used to tell my

> gym

> teacher i was always sick and had to see the nurse to get out of gym class.

> I

> also had no idea what was wrong. I got diagnosed about a year and a half

> ago,

> and still strugle, cry A LOT, and wonder how i will take care of myself in

> the future. My ugly, funny looking feet are a big embarassment for me,

> therfor i wont go swimming, or run around in sandles in the summer. I do

> know

> exactly how you feel, so anytime you want to talk,you just holler .

> Donna

>

Donna

You are not alone in your struggle. I too cry alot. It's not that I feel

sorry for myself, I am thankful that I wasn't born with something much worse

than CMT. I guess it scares me not knowing what the future holds. Thankfully

I have a wonderful husband that I hope outlives me and is physically and

mentally able to take care of me if I become unable to care for myself.

The gum situation you mentioned reminded me of my own situation in high

school. I didn't want anyone seeing me, and of course could not do the many

things that we were required to do. My parents would not help at all, begged

them to get me out of gym class, to no avail.

I made sure my daughter did not have to go through what I did in school. She

was excused from doing anything that she felt she could not do.

You are not alone. There are many of us that had problems. Heck, I fell down

the stairs of one of the buildings at least once a day. I fell several times

on level ground. In the 70's, we were not allowed to wear athletic shoes to

school. We had to wear dresses, and of course I was trying to walk around in

those heels that were popular back then.