Saw new rheumy today

[Guest guest]

Hi all. I saw the new rheumy today, and well......He

was nice, and did a very thorough history, but isn't

anywhere near as thorough as my rheumy in Denver. He

didn't say one way or the other what he felt about the

implant issue, but when I told him that overall, things

were better since I'd had them out, he was pleased and

suprised as well.

He was reluctant to draw blood, but I told him that I

was insisting, and that it was my insurance that would

be paying for it, and if they didn't, I would pay out of

pocket. He was only going to do a CBC and ANA profile,

but I insisted that he check a ESR, CRP, chem 20, LFT's

and lipids, TSH, and the mycoplasma IgG AB. He looked

at me like I was crazy when I requested all these tests,

especially the mycoplasma IgG. He had never heard of

it, and told me that anytime we are exposed to

something, we will test + for it. So, he told me that

if I've ever had pneumonia before (which I have), it

could have been mycoplasma, and therefore, I will test

+, and it might be totally unrelated to the implants.

Then he told me that if it came back +, he didn't know

how to treat it (and I wasn't sure either). So I told

him to humor me and order the test. If he didn't, I was

going to add it myself on the lab slip. But he did, and

told me that it would mean absolutely nothing to him if

it came back +.

I also asked about B12 injections. He was absolutely

adamant that they are useless unless you have a true

deficiency and aren't absorbing it. He said that he has

never seen anything in the literature that proves that

B12 helps decrease fatigue or give you more energy. And

then he told me that he didn't even know if any of the

pharmacies carry it, and he didn't have it in his

office. So, basically he was totally against it unless

you're deficient. But he did order a B12 level, which I

know will be normal, because it has been before.

I had to beg for a rx for Imitrex for my migraines.

You'd think I was asking for narcotics or something.

Anyway, I'm glad he ordered the labs.

My question now, is how do you treat a + mycoplasma AB?

Does anyone, Dr. Kolb or anyone else, have any info on

how you treat this? And does Dr. Kolb have any

literature she could email me to print out and give to

this rheumy? God, no offense to anyone who lives in the

South, but y'all are way behind the times as far as

medical technology and cutting edge info go. I'm sure

it's not this bad in larger cities like Atlanta or Miami

or places like that, but compared to Denver, ton

doesn't have any knowledge about anything. And I'm

finding the docs here just don't want to learn, either.

So, someone please help me out and provide me with some

info about mycoplasma and the treatment. Also, this doc

doesn't want to see me again until early August, which I

found unsettling since my rheumy in Denver wanted to see

my every 2-3 wks for lab work, especially since I'm

chronically anemic. Go figure.....

e

[Guest guest]

e,

Boy I can relate to everything your saying here, well cept I am not

in the south, but ya know my Dr in California, affiliated with world

renowned Stanford University med center was the exact same way about

the mycoplasma, he felt that it wasn't worth doing the test, he also

said it was one of those things where testing positive for it

wouldn't mean anything anyhow, blah blah blah. I was so sick of all

the blood work and BS by this time I didn't even insist on it anyhow.

It is like epbstein Barr, I tested + for that, but they said it meant

only that I had been exposed to it and that it wasn't active. Well, I

am doing so much better now that I am not even really worried about

it, I don't think I have mycoplasma and to be honest, from all that I

understand about it, there is allot of hype and misinformation, and I

am just not sure I believe in it. Well, all I know is I am doing tons

better now, and happy to tell everyone that I got the job I applied

for at the Medical Center here and start next week YEAH! I cannot

stand staying at home, not my style.

Love,

In @y..., eRene@a... wrote:

> Hi all. I saw the new rheumy today, and well......He

> was nice, and did a very thorough history, but isn't

> anywhere near as thorough as my rheumy in Denver. He

> didn't say one way or the other what he felt about the

> implant issue, but when I told him that overall, things

> were better since I'd had them out, he was pleased and

> suprised as well.

>

> He was reluctant to draw blood, but I told him that I

> was insisting, and that it was my insurance that would

> be paying for it, and if they didn't, I would pay out of

> pocket. He was only going to do a CBC and ANA profile,

> but I insisted that he check a ESR, CRP, chem 20, LFT's

> and lipids, TSH, and the mycoplasma IgG AB. He looked

> at me like I was crazy when I requested all these tests,

> especially the mycoplasma IgG. He had never heard of

> it, and told me that anytime we are exposed to

> something, we will test + for it. So, he told me that

> if I've ever had pneumonia before (which I have), it

> could have been mycoplasma, and therefore, I will test

> +, and it might be totally unrelated to the implants.

> Then he told me that if it came back +, he didn't know

> how to treat it (and I wasn't sure either). So I told

> him to humor me and order the test. If he didn't, I was

> going to add it myself on the lab slip. But he did, and

> told me that it would mean absolutely nothing to him if

> it came back +.

>

> I also asked about B12 injections. He was absolutely

> adamant that they are useless unless you have a true

> deficiency and aren't absorbing it. He said that he has

> never seen anything in the literature that proves that

> B12 helps decrease fatigue or give you more energy. And

> then he told me that he didn't even know if any of the

> pharmacies carry it, and he didn't have it in his

> office. So, basically he was totally against it unless

> you're deficient. But he did order a B12 level, which I

> know will be normal, because it has been before.

>

> I had to beg for a rx for Imitrex for my migraines.

> You'd think I was asking for narcotics or something.

> Anyway, I'm glad he ordered the labs.

>

> My question now, is how do you treat a + mycoplasma AB?

> Does anyone, Dr. Kolb or anyone else, have any info on

> how you treat this? And does Dr. Kolb have any

> literature she could email me to print out and give to

> this rheumy? God, no offense to anyone who lives in the

> South, but y'all are way behind the times as far as

> medical technology and cutting edge info go. I'm sure

> it's not this bad in larger cities like Atlanta or Miami

> or places like that, but compared to Denver, ton

> doesn't have any knowledge about anything. And I'm

> finding the docs here just don't want to learn, either.

>

> So, someone please help me out and provide me with some

> info about mycoplasma and the treatment. Also, this doc

> doesn't want to see me again until early August, which I

> found unsettling since my rheumy in Denver wanted to see

> my every 2-3 wks for lab work, especially since I'm

> chronically anemic. Go figure.....

>

> e

[Guest guest]

e,

It really fries me when doctors are this obstinant about issues that we feel

may help us. There is absolutely no reason that he should be totally

against B12 supplementation, since it can't harm you! And it can definitely

help!

I know there is literature out there about B12 and how it helps fatigue--he

is just not looking for it. I have posted a number of articles recently on

B12, in the form of methylcobalamin. I also know that there is not a single

pharmacy in this country that can't get it. It is cheap and widely

available.

As for me, I will give testimony that the B12 shots and all the garlic I

have been eating lately have made a total 100% difference in my life. I

have been taking the B12 shots every other day, and today my brain fog is

totally, 100% gone for practically the first time in over 3 years! My

fatigue is gone, and I have been able to stay up way late, getting to bed

after my healthy husband. I was crashing at 8:30 or 9 PM not too long ago.

If I have ever seen something work in the last 3 years of healing from this

silicone illness, for me, it has been the B12 shots and raw garlic.

(And, Martha, yes, the garlic does have to be raw to be effective--cooking

destroys the valuable enzymes!)

Patty

----- Original Message -----

From: <eRene@...>

< >

Cc: <SalineInfo >

Sent: Friday, June 29, 2001 2:40 PM

Subject: Saw new rheumy today

> Hi all. I saw the new rheumy today, and well......He

> was nice, and did a very thorough history, but isn't

> anywhere near as thorough as my rheumy in Denver. He

> didn't say one way or the other what he felt about the

> implant issue, but when I told him that overall, things

> were better since I'd had them out, he was pleased and

> suprised as well.

>

> He was reluctant to draw blood, but I told him that I

> was insisting, and that it was my insurance that would

> be paying for it, and if they didn't, I would pay out of

> pocket. He was only going to do a CBC and ANA profile,

> but I insisted that he check a ESR, CRP, chem 20, LFT's

> and lipids, TSH, and the mycoplasma IgG AB. He looked

> at me like I was crazy when I requested all these tests,

> especially the mycoplasma IgG. He had never heard of

> it, and told me that anytime we are exposed to

> something, we will test + for it. So, he told me that

> if I've ever had pneumonia before (which I have), it

> could have been mycoplasma, and therefore, I will test

> +, and it might be totally unrelated to the implants.

> Then he told me that if it came back +, he didn't know

> how to treat it (and I wasn't sure either). So I told

> him to humor me and order the test. If he didn't, I was

> going to add it myself on the lab slip. But he did, and

> told me that it would mean absolutely nothing to him if

> it came back +.

>

> I also asked about B12 injections. He was absolutely

> adamant that they are useless unless you have a true

> deficiency and aren't absorbing it. He said that he has

> never seen anything in the literature that proves that

> B12 helps decrease fatigue or give you more energy. And

> then he told me that he didn't even know if any of the

> pharmacies carry it, and he didn't have it in his

> office. So, basically he was totally against it unless

> you're deficient. But he did order a B12 level, which I

> know will be normal, because it has been before.

>

> I had to beg for a rx for Imitrex for my migraines.

> You'd think I was asking for narcotics or something.

> Anyway, I'm glad he ordered the labs.

>

> My question now, is how do you treat a + mycoplasma AB?

> Does anyone, Dr. Kolb or anyone else, have any info on

> how you treat this? And does Dr. Kolb have any

> literature she could email me to print out and give to

> this rheumy? God, no offense to anyone who lives in the

> South, but y'all are way behind the times as far as

> medical technology and cutting edge info go. I'm sure

> it's not this bad in larger cities like Atlanta or Miami

> or places like that, but compared to Denver, ton

> doesn't have any knowledge about anything. And I'm

> finding the docs here just don't want to learn, either.

>

> So, someone please help me out and provide me with some

> info about mycoplasma and the treatment. Also, this doc

> doesn't want to see me again until early August, which I

> found unsettling since my rheumy in Denver wanted to see

> my every 2-3 wks for lab work, especially since I'm

> chronically anemic. Go figure.....

>

> e

>

>

[Guest guest]

,

Congratulations!! I knew you'd get the job. You sound

like you have a lot of experience and since you've

worked at a major hospital before, how could they pass

you up??? I'm glad you will get to go back to work.

Are you going to be doing 12 hr shifts?

Well, I may be heading out your way sooner than I

thought. I thought I'd stay on the East coast for a

while, but I hate it out here. So, I'm thinking of

going to Seattle in Sept. If not there, then Portland

or Boise. I need to get back out west. The East coast

sucks!!!! No offense to anyone living out here, it's

just a totally different way of life. Plus, all my

friends are out west. So, maybe one of these days we'll

get to meet!!

Take care,

e

> e,

>

> Boy I can relate to everything your saying here, well cept I am not

> in the south, but ya know my Dr in California, affiliated with world

> renowned Stanford University med center was the exact same way about

> the mycoplasma, he felt that it wasn't worth doing the test, he also

> said it was one of those things where testing positive for it

> wouldn't mean anything anyhow, blah blah blah. I was so sick of all

> the blood work and BS by this time I didn't even insist on it anyhow.

> It is like epbstein Barr, I tested + for that, but they said it meant

> only that I had been exposed to it and that it wasn't active. Well, I

> am doing so much better now that I am not even really worried about

> it, I don't think I have mycoplasma and to be honest, from all that I

> understand about it, there is allot of hype and misinformation, and I

> am just not sure I believe in it. Well, all I know is I am doing tons

> better now, and happy to tell everyone that I got the job I applied

> for at the Medical Center here and start next week YEAH! I cannot

> stand staying at home, not my style.

>

> Love,

>

>

>

>

>

> In @y..., eRene@a... wrote:

> > Hi all. I saw the new rheumy today, and well......He

> > was nice, and did a very thorough history, but isn't

> > anywhere near as thorough as my rheumy in Denver. He

> > didn't say one way or the other what he felt about the

> > implant issue, but when I told him that overall, things

> > were better since I'd had them out, he was pleased and

> > suprised as well.

> >

> > He was reluctant to draw blood, but I told him that I

> > was insisting, and that it was my insurance that would

> > be paying for it, and if they didn't, I would pay out of

> > pocket. He was only going to do a CBC and ANA profile,

> > but I insisted that he check a ESR, CRP, chem 20, LFT's

> > and lipids, TSH, and the mycoplasma IgG AB. He looked

> > at me like I was crazy when I requested all these tests,

> > especially the mycoplasma IgG. He had never heard of

> > it, and told me that anytime we are exposed to

> > something, we will test + for it. So, he told me that

> > if I've ever had pneumonia before (which I have), it

> > could have been mycoplasma, and therefore, I will test

> > +, and it might be totally unrelated to the implants.

> > Then he told me that if it came back +, he didn't know

> > how to treat it (and I wasn't sure either). So I told

> > him to humor me and order the test. If he didn't, I was

> > going to add it myself on the lab slip. But he did, and

> > told me that it would mean absolutely nothing to him if

> > it came back +.

> >

> > I also asked about B12 injections. He was absolutely

> > adamant that they are useless unless you have a true

> > deficiency and aren't absorbing it. He said that he has

> > never seen anything in the literature that proves that

> > B12 helps decrease fatigue or give you more energy. And

> > then he told me that he didn't even know if any of the

> > pharmacies carry it, and he didn't have it in his

> > office. So, basically he was totally against it unless

> > you're deficient. But he did order a B12 level, which I

> > know will be normal, because it has been before.

> >

> > I had to beg for a rx for Imitrex for my migraines.

> > You'd think I was asking for narcotics or something.

> > Anyway, I'm glad he ordered the labs.

> >

> > My question now, is how do you treat a + mycoplasma AB?

> > Does anyone, Dr. Kolb or anyone else, have any info on

> > how you treat this? And does Dr. Kolb have any

> > literature she could email me to print out and give to

> > this rheumy? God, no offense to anyone who lives in the

> > South, but y'all are way behind the times as far as

> > medical technology and cutting edge info go. I'm sure

> > it's not this bad in larger cities like Atlanta or Miami

> > or places like that, but compared to Denver, ton

> > doesn't have any knowledge about anything. And I'm

> > finding the docs here just don't want to learn, either.

> >

> > So, someone please help me out and provide me with some

> > info about mycoplasma and the treatment. Also, this doc

> > doesn't want to see me again until early August, which I

> > found unsettling since my rheumy in Denver wanted to see

> > my every 2-3 wks for lab work, especially since I'm

> > chronically anemic. Go figure.....

> >

> > e

>

>

>

[Guest guest]

Patty,

I told this doc that many women I speak to take B12

injections and are doing so much better, but he was

absolutely adamant that it wasn't necessary unless you

have a true deficiency. He told me that if my labs show

a deficiency, then he will put me on it. And he

insisted that there is no evidence that it does any

good. I am going to call my rheumy in Denver on Mon and

ask him what he thinks.

And the way he was so hesitant to order any labs!! I

was just shocked since his practices involves health

problems that are diagnosed and treated based on labs!!

I am having an active flare of lupus and arthritis and

my knuckles are red, swollen and hot, and he didn't even

address this. He told me that malic acid is not any

good and does absolutely no good. I asked him how many

of his pts were on it, and he said a few. I told him

that maybe it isn't working for them, but that doesn't

mean that it doesn't work for everyone.

And, I've been fighting a bout of bronchitis for 5 wks

now. My rheumy in Denver called in a rx for

amoxicillin, but it didn't work, so I called him to get

a rx for zithromax and some cough medicine. He refused

to call it in since he isn't seeing me and he needs to

protect his license, which I totally understand. But

when I asked this doc here if he could give me a rx, he

said no, he wanted me to get a CXR. Well, I'm not

getting a CXR as I'm not coughing up a lot, and I know I

don't have pneumonia--it's all upper respiratory. So, I

didn't get the CXR because it would have been normal,

and then he still wouldn't have rx'd anything for me.

So, in the meantime I have a nasty cough, and am

coughing up some gray sputum. I was furious.

So, I don't know what I'll do. I'm going to see if any

of the nurses I work with can recommend a doc that won't

send me out to get a CXR.

I'm curious to see what he says if my mycoplasma AB

comes back +. I still haven't heard from anyone how

it's treated. Oh, and the other thing that infuriated

me is that he said based on what my WBC showed he might

rx an antibiotic for me. Well, I've always gone by the

philosophy that you can't treat the #'s, you must treat

the pt. Because the #'s won't always tell you what's

going on. And this is so true because I've had

cellulitis before, and had to be on IV antibiotics, yet

my WBC was normal, yet it was clear I had an infection

going on.

I'm definately finding that the way medicine is

practiced out here is so backwards.

I'm also heading back west instead of staying out here.

I hate the East coast and miss the western US. I'm

currently working with a recruiter to either go to

Minneapolis or Seattle. I can then travel around the

whole western US, maybe even Hawaii and Alaska. I'm

considering breaking my contract because I'm miserable

here---totally depressed and suicidal. But if I stay, I

will head back west in Sept. I just need to think

whether I can hang in there until the end of August.

So, maybe we'll meet yet.

Take care and write soon, Patty.

e

> e,

> It really fries me when doctors are this obstinant about issues that we feel

> may help us. There is absolutely no reason that he should be totally

> against B12 supplementation, since it can't harm you! And it can definitely

> help!

>

> I know there is literature out there about B12 and how it helps fatigue--he

> is just not looking for it. I have posted a number of articles recently on

> B12, in the form of methylcobalamin. I also know that there is not a single

> pharmacy in this country that can't get it. It is cheap and widely

> available.

>

> As for me, I will give testimony that the B12 shots and all the garlic I

> have been eating lately have made a total 100% difference in my life. I

> have been taking the B12 shots every other day, and today my brain fog is

> totally, 100% gone for practically the first time in over 3 years! My

> fatigue is gone, and I have been able to stay up way late, getting to bed

> after my healthy husband. I was crashing at 8:30 or 9 PM not too long ago.

> If I have ever seen something work in the last 3 years of healing from this

> silicone illness, for me, it has been the B12 shots and raw garlic.

>

> (And, Martha, yes, the garlic does have to be raw to be effective--cooking

> destroys the valuable enzymes!)

> Patty

> ----- Original Message -----

> From: <eRene@...>

> < >

> Cc: <SalineInfo >

> Sent: Friday, June 29, 2001 2:40 PM

> Subject: Saw new rheumy today

>

>

> > Hi all. I saw the new rheumy today, and well......He

> > was nice, and did a very thorough history, but isn't

> > anywhere near as thorough as my rheumy in Denver. He

> > didn't say one way or the other what he felt about the

> > implant issue, but when I told him that overall, things

> > were better since I'd had them out, he was pleased and

> > suprised as well.

> >

> > He was reluctant to draw blood, but I told him that I

> > was insisting, and that it was my insurance that would

> > be paying for it, and if they didn't, I would pay out of

> > pocket. He was only going to do a CBC and ANA profile,

> > but I insisted that he check a ESR, CRP, chem 20, LFT's

> > and lipids, TSH, and the mycoplasma IgG AB. He looked

> > at me like I was crazy when I requested all these tests,

> > especially the mycoplasma IgG. He had never heard of

> > it, and told me that anytime we are exposed to

> > something, we will test + for it. So, he told me that

> > if I've ever had pneumonia before (which I have), it

> > could have been mycoplasma, and therefore, I will test

> > +, and it might be totally unrelated to the implants.

> > Then he told me that if it came back +, he didn't know

> > how to treat it (and I wasn't sure either). So I told

> > him to humor me and order the test. If he didn't, I was

> > going to add it myself on the lab slip. But he did, and

> > told me that it would mean absolutely nothing to him if

> > it came back +.

> >

> > I also asked about B12 injections. He was absolutely

> > adamant that they are useless unless you have a true

> > deficiency and aren't absorbing it. He said that he has

> > never seen anything in the literature that proves that

> > B12 helps decrease fatigue or give you more energy. And

> > then he told me that he didn't even know if any of the

> > pharmacies carry it, and he didn't have it in his

> > office. So, basically he was totally against it unless

> > you're deficient. But he did order a B12 level, which I

> > know will be normal, because it has been before.

> >

> > I had to beg for a rx for Imitrex for my migraines.

> > You'd think I was asking for narcotics or something.

> > Anyway, I'm glad he ordered the labs.

> >

> > My question now, is how do you treat a + mycoplasma AB?

> > Does anyone, Dr. Kolb or anyone else, have any info on

> > how you treat this? And does Dr. Kolb have any

> > literature she could email me to print out and give to

> > this rheumy? God, no offense to anyone who lives in the

> > South, but y'all are way behind the times as far as

> > medical technology and cutting edge info go. I'm sure

> > it's not this bad in larger cities like Atlanta or Miami

> > or places like that, but compared to Denver, ton

> > doesn't have any knowledge about anything. And I'm

> > finding the docs here just don't want to learn, either.

> >

> > So, someone please help me out and provide me with some

> > info about mycoplasma and the treatment. Also, this doc

> > doesn't want to see me again until early August, which I

> > found unsettling since my rheumy in Denver wanted to see

> > my every 2-3 wks for lab work, especially since I'm

> > chronically anemic. Go figure.....

> >

> > e

> >

> >

[Guest guest]

Hi ,

Congratulations on your new job! You are, indeed, a young lady whose has a lot to tenacity, which is great for any of us who have been through all the traumas associated with breast implants. Not to mention, you will be working in an atmosphere where you will have many opportunities to 'witness' for "our side of the story"! God does work in mysterious ways, many times.

BTW, the message I sent to you was intended for Caren ----- I think!?!?!

Blessings,

Martha M/ NSIF

----- Original Message -----

From: carrie_martinez64@...

Sent: Friday, June 29, 2001 5:07 PM

Subject: Re: Saw new rheumy today

e,Boy I can relate to everything your saying here, well cept I am not in the south, but ya know my Dr in California, affiliated with world renowned Stanford University med center was the exact same way about the mycoplasma, he felt that it wasn't worth doing the test, he also said it was one of those things where testing positive for it wouldn't mean anything anyhow, blah blah blah. I was so sick of all the blood work and BS by this time I didn't even insist on it anyhow. It is like epbstein Barr, I tested + for that, but they said it meant only that I had been exposed to it and that it wasn't active. Well, I am doing so much better now that I am not even really worried about it, I don't think I have mycoplasma and to be honest, from all that I understand about it, there is allot of hype and misinformation, and I am just not sure I believe in it. Well, all I know is I am doing tons better now, and happy to tell everyone that I got the job I applied for at the Medical Center here and start next week YEAH! I cannot stand staying at home, not my style.Love, In @y..., eRene@a... wrote:> Hi all. I saw the new rheumy today, and well......He > was nice, and did a very thorough history, but isn't > anywhere near as thorough as my rheumy in Denver. He > didn't say one way or the other what he felt about the > implant issue, but when I told him that overall, things > were better since I'd had them out, he was pleased and > suprised as well. > > He was reluctant to draw blood, but I told him that I > was insisting, and that it was my insurance that would > be paying for it, and if they didn't, I would pay out of > pocket. He was only going to do a CBC and ANA profile, > but I insisted that he check a ESR, CRP, chem 20, LFT's > and lipids, TSH, and the mycoplasma IgG AB. He looked > at me like I was crazy when I requested all these tests, > especially the mycoplasma IgG. He had never heard of > it, and told me that anytime we are exposed to > something, we will test + for it. So, he told me that > if I've ever had pneumonia before (which I have), it > could have been mycoplasma, and therefore, I will test > +, and it might be totally unrelated to the implants. > Then he told me that if it came back +, he didn't know > how to treat it (and I wasn't sure either). So I told > him to humor me and order the test. If he didn't, I was > going to add it myself on the lab slip. But he did, and > told me that it would mean absolutely nothing to him if > it came back +. > > I also asked about B12 injections. He was absolutely > adamant that they are useless unless you have a true > deficiency and aren't absorbing it. He said that he has > never seen anything in the literature that proves that > B12 helps decrease fatigue or give you more energy. And > then he told me that he didn't even know if any of the > pharmacies carry it, and he didn't have it in his > office. So, basically he was totally against it unless > you're deficient. But he did order a B12 level, which I > know will be normal, because it has been before.> > I had to beg for a rx for Imitrex for my migraines. > You'd think I was asking for narcotics or something. > Anyway, I'm glad he ordered the labs.> > My question now, is how do you treat a + mycoplasma AB? > Does anyone, Dr. Kolb or anyone else, have any info on > how you treat this? And does Dr. Kolb have any > literature she could email me to print out and give to > this rheumy? God, no offense to anyone who lives in the > South, but y'all are way behind the times as far as > medical technology and cutting edge info go. I'm sure > it's not this bad in larger cities like Atlanta or Miami > or places like that, but compared to Denver, ton > doesn't have any knowledge about anything. And I'm > finding the docs here just don't want to learn, either.> > So, someone please help me out and provide me with some > info about mycoplasma and the treatment. Also, this doc > doesn't want to see me again until early August, which I > found unsettling since my rheumy in Denver wanted to see > my every 2-3 wks for lab work, especially since I'm > chronically anemic. Go figure.....> > e

[Guest guest]

> So, someone please help me out and provide me with some

> info about mycoplasma and the treatment.

e,

I think I posted some info that you can check abou t in the archives. You

just do a search on the word mycoplasma.

Otherwise, I would suggest you check out the website of Dr. Garth Nicolson,

who is on the leading edge of mycoplasma research. His website is

www.immed.org

You can correspond with him, and I am sure he can point you in the right

direction with this.

I thought it was very telling when I got a letter in my e-mail box several

years ago from a person who would not identify themselves, but I later found

out to be employed by one of the major implant manufacturer's. This person

was suggesting that mycoplasma was the cause of our illnesses. I think this

person had a reason to know this, and suggest it to me specifically.

Mycoplasma may play a bigger role than we understand.

And what it scarier, is that mycoplasma is transmissible to our loved ones.

My husband is now complaining of a foggy head and joint pain. I am going to

make the effort to get tested, not only for myself, but also for my husband.

Patty

[Guest guest]

Patty,

I will check out his website. God, I wish docs would

just listen to us and order the damn tests. I can't

wait to see what mine comes back as, although this

rheumy said that just because it's + doesn't mean that

it's from my implants, which is very true. But in my

professional opinion, if I'm testing + for it, I should

be treated for it, as I guess it's in my blood.

Thank god I'm going to be able to see my Denver rheumy.

He will probably give me a hard time, but will do

whatever I say. I've already made an appt with him for

mid July. But I will for sure check out this website

you gave me.

You should definately get tested esp if your husband is

feeling the brain fog. Insurance should pay for it.

e

> > So, someone please help me out and provide me with some

> > info about mycoplasma and the treatment.

>

> e,

> I think I posted some info that you can check abou t in the archives. You

> just do a search on the word mycoplasma.

>

> Otherwise, I would suggest you check out the website of Dr. Garth Nicolson,

> who is on the leading edge of mycoplasma research. His website is

> www.immed.org

>

> You can correspond with him, and I am sure he can point you in the right

> direction with this.

>

> I thought it was very telling when I got a letter in my e-mail box several

> years ago from a person who would not identify themselves, but I later found

> out to be employed by one of the major implant manufacturer's. This person

> was suggesting that mycoplasma was the cause of our illnesses. I think this

> person had a reason to know this, and suggest it to me specifically.

> Mycoplasma may play a bigger role than we understand.

>

> And what it scarier, is that mycoplasma is transmissible to our loved ones.

> My husband is now complaining of a foggy head and joint pain. I am going to

> make the effort to get tested, not only for myself, but also for my husband.

>

> Patty

>

>

>