RE: What does everyone think about this??

[Guest guest]

In a message dated 7/3/2006 9:57:56 AM Eastern Daylight Time,

darkstarzz1019@... writes:

Anyway I wanted to see what everyone thought

of the idea. So please post a note or send me an email of what you

think. I think it would be real helpful to all the newer people who

join the group and are just getting into this long road most of us

have been on awhile. Thanks Sharon Group owner

I think it's a wonderful idea, I've tried this in other groups though and

honestly it didn't work well. But if you decide to try it here, count me in to

help as needed.

I believe if I had been able to find other people that had gone through the

same things in the beginning,and perhaps had found some answer, my journey may

have been easier; at least a lot less lonely and frightening.

LunaRose

[Guest guest]

hi sharon i am new here but that is a good idea!!!!!!cindy

>

> Hi everyone I had an idea for everyone in the group. Hopefully a

lot

> of people will participate if we do this. But I'd like to see what

> everyone thinks first before I set it up. We get many new people

into

> the group and its sometimes hard to try and explain several times

over

> what we each have gone thru with out pain and treatments, what

worked

> and what didn't. I have seen several websites where people posted

> their stories about their pain and how it had changed their lives,

> affected their families, what treatments they had gone thru.And

what

> kinds of dr't they had seen, what kind had helped and what kind

were

> worthless. Anyway I thought it would be a good idea to do something

> like that for the group. Not sure if it would be easier to post a

> folder so everyone could add their story into it or make another

site

> just to have our stories. Anyway I wanted to see what everyone

thought

> of the idea. So please post a note or send me an email of what you

> think. I think it would be real helpful to all the newer people who

> join the group and are just getting into this long road most of us

> have been on awhile. Thanks Sharon Group owner

>

[Guest guest]

Sharon, In one group we put a database each person. you can put several fields

up for example: first field would have name then second add the list of your

health issues. then people can refer back to the data base to re fresh their

minds. may have to use two fields for health issues.

Hugs and Prayers, Babs

Chronic illness Chronic Pain You are not alone

[Guest guest]

At 09:53 AM 7/3/06, you wrote:

>Hi everyone I had an idea for everyone in the group. Hopefully a lot

>of people will participate if we do this.

I think it's a great idea. I love to help and participate, but some days I

just don't have it in me to type my health history again. So a Files or

FAQ question would be great. If we do it by members, if I can scan my

MRI's and X-rays, I'd be willing to post it also. I have my old Pedical

Screw Hardware, when I show it to people they get an Idea of the level of

Trauma my spine has seen. Dave

[Guest guest]

At 09:53 AM 7/3/06, you wrote:

>Hi everyone I had an idea for everyone in the group. Hopefully a lot

>of people will participate if we do this.

I think it's a great idea. I love to help and participate, but some days I

just don't have it in me to type my health history again. So a Files or

FAQ question would be great. If we do it by members, if I can scan my

MRI's and X-rays, I'd be willing to post it also. I have my old Pedical

Screw Hardware, when I show it to people they get an Idea of the level of

Trauma my spine has seen. Dave

[Guest guest]

Hi

I'd participate in whatever is set up, I have so much free time at nite, it

would help fill up the time till my body decides it will fall asleep without the

aid of pills!

Jeannie

darkstarzz1019 <darkstarzz1019@...> wrote:

Hi everyone I had an idea for everyone in the group. Hopefully a lot

of people will participate if we do this. But I'd like to see what

everyone thinks first before I set it up. We get many new people into

the group and its sometimes hard to try and explain several times over

what we each have gone thru with out pain and treatments, what worked

and what didn't. I have seen several websites where people posted

their stories about their pain and how it had changed their lives,

affected their families, what treatments they had gone thru.And what

kinds of dr't they had seen, what kind had helped and what kind were

worthless. Anyway I thought it would be a good idea to do something

like that for the group. Not sure if it would be easier to post a

folder so everyone could add their story into it or make another site

just to have our stories. Anyway I wanted to see what everyone thought

of the idea. So please post a note or send me an email of what you

think. I think it would be real helpful to all the newer people who

join the group and are just getting into this long road most of us

have been on awhile. Thanks Sharon Group owner

Jeannie

---------------------------------

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[Guest guest]

Hi

I'd participate in whatever is set up, I have so much free time at nite, it

would help fill up the time till my body decides it will fall asleep without the

aid of pills!

Jeannie

darkstarzz1019 <darkstarzz1019@...> wrote:

Hi everyone I had an idea for everyone in the group. Hopefully a lot

of people will participate if we do this. But I'd like to see what

everyone thinks first before I set it up. We get many new people into

the group and its sometimes hard to try and explain several times over

what we each have gone thru with out pain and treatments, what worked

and what didn't. I have seen several websites where people posted

their stories about their pain and how it had changed their lives,

affected their families, what treatments they had gone thru.And what

kinds of dr't they had seen, what kind had helped and what kind were

worthless. Anyway I thought it would be a good idea to do something

like that for the group. Not sure if it would be easier to post a

folder so everyone could add their story into it or make another site

just to have our stories. Anyway I wanted to see what everyone thought

of the idea. So please post a note or send me an email of what you

think. I think it would be real helpful to all the newer people who

join the group and are just getting into this long road most of us

have been on awhile. Thanks Sharon Group owner

Jeannie

---------------------------------

Music Unlimited - Access over 1 million songs.Try it free.

[Guest guest]

This is a great idea! So many times, we don't know what to do or what

type of doctor to go to for help. Experience is a valuable teacher.

Personally, I think a folder here on the site would be better for new

members. Easier to access.

in NC

>

> Hi everyone I had an idea for everyone in the group. Hopefully a lot

> of people will participate if we do this. But I'd like to see what

> everyone thinks first before I set it up. We get many new people into

> the group and its sometimes hard to try and explain several times over

> what we each have gone thru with out pain and treatments, what worked

> and what didn't. I have seen several websites where people posted

> their stories about their pain and how it had changed their lives,

> affected their families, what treatments they had gone thru.And what

> kinds of dr't they had seen, what kind had helped and what kind were

> worthless. Anyway I thought it would be a good idea to do something

> like that for the group. Not sure if it would be easier to post a

> folder so everyone could add their story into it or make another site

> just to have our stories. Anyway I wanted to see what everyone thought

> of the idea. So please post a note or send me an email of what you

> think. I think it would be real helpful to all the newer people who

> join the group and are just getting into this long road most of us

> have been on awhile. Thanks Sharon Group owner

>

[Guest guest]

Hi everyone I think I figured out a way to do this in the group. So if

anyone wants to write a story about their pain and the dr's they have

seen, which ones helped, which didn't. What kind of treatments they

have been thru, what helped, what was worthless. And how it has

affected their lives and those around them. And I am sure there are

other things you could write about your journey with pain in your

life.If you write your story all or part of it and email it to me I

can post it into a folder where anyone who wants too can read it. Just

please remember be careful writing your story remember anyone in the

group can read it so keep this in mind when you write it. If I think

there are any problems with it I will email you before I post it. Be

sure and label it " My story " or something like that so I will know

what it is in my email acct. SO for those of you who thought it was a

good idea start writing I hope others especially new members can

benefit from reading these stories and get ideas that may help them

find relief from their pain. Sharon Group Owner

[Guest guest]

maybe somehow set up different categories; back pain, neck pain, fusions

etc. and people could be listed under the different categories for things

that they have had done or tried? i think your idea is a good one, but

would try and keep it to the same site somehow if possible.

rob

<html><div>No greater burden can be borne by an individual than to know no

one cares or understands. </div></html>

>From: " darkstarzz1019 " <darkstarzz1019@...>

>Reply-neck pain

>neck pain

>Subject: What does everyone think about this??

>Date: Mon, 03 Jul 2006 13:53:10 -0000

>

>Hi everyone I had an idea for everyone in the group. Hopefully a lot

>of people will participate if we do this. But I'd like to see what

>everyone thinks first before I set it up. We get many new people into

>the group and its sometimes hard to try and explain several times over

>what we each have gone thru with out pain and treatments, what worked

>and what didn't. I have seen several websites where people posted

>their stories about their pain and how it had changed their lives,

>affected their families, what treatments they had gone thru.And what

>kinds of dr't they had seen, what kind had helped and what kind were

>worthless. Anyway I thought it would be a good idea to do something

>like that for the group. Not sure if it would be easier to post a

>folder so everyone could add their story into it or make another site

>just to have our stories. Anyway I wanted to see what everyone thought

>of the idea. So please post a note or send me an email of what you

>think. I think it would be real helpful to all the newer people who

>join the group and are just getting into this long road most of us

>have been on awhile. Thanks Sharon Group owner

>

>

>

>

>

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[Guest guest]

i also think adding personal info (not too personal) but stuff like how

people treat you or how supportive your spouse or partner is/isnt things

like that because everyone knows about the pain but the " background " stuff

that goes on kids etc... also i think will help people identify with what

might be going on in THEIR lives and maybe help in some way. does that make

sense?

<html><div>No greater burden can be borne by an individual than to know no

one cares or understands. </div></html>

>From: " darkstarzz1019 " <darkstarzz1019@...>

>Reply-neck pain

>neck pain

>Subject: Re: What does everyone think about this??

>Date: Sat, 08 Jul 2006 18:29:57 -0000

>

>Hi everyone I think I figured out a way to do this in the group. So if

>anyone wants to write a story about their pain and the dr's they have

>seen, which ones helped, which didn't. What kind of treatments they

>have been thru, what helped, what was worthless. And how it has

>affected their lives and those around them. And I am sure there are

>other things you could write about your journey with pain in your

>life.If you write your story all or part of it and email it to me I

>can post it into a folder where anyone who wants too can read it. Just

>please remember be careful writing your story remember anyone in the

>group can read it so keep this in mind when you write it. If I think

>there are any problems with it I will email you before I post it. Be

>sure and label it " My story " or something like that so I will know

>what it is in my email acct. SO for those of you who thought it was a

>good idea start writing I hope others especially new members can

>benefit from reading these stories and get ideas that may help them

>find relief from their pain. Sharon Group Owner

>

>

>

_________________________________________________________________

On the road to retirement? Check out MSN Life Events for advice on how to

get there! http://lifeevents.msn.com/category.aspx?cid=Retirement

[Guest guest]

i also think adding personal info (not too personal) but stuff like how

people treat you or how supportive your spouse or partner is/isnt things

like that because everyone knows about the pain but the " background " stuff

that goes on kids etc... also i think will help people identify with what

might be going on in THEIR lives and maybe help in some way. does that make

sense?

<html><div>No greater burden can be borne by an individual than to know no

one cares or understands. </div></html>

>From: " darkstarzz1019 " <darkstarzz1019@...>

>Reply-neck pain

>neck pain

>Subject: Re: What does everyone think about this??

>Date: Sat, 08 Jul 2006 18:29:57 -0000

>

>Hi everyone I think I figured out a way to do this in the group. So if

>anyone wants to write a story about their pain and the dr's they have

>seen, which ones helped, which didn't. What kind of treatments they

>have been thru, what helped, what was worthless. And how it has

>affected their lives and those around them. And I am sure there are

>other things you could write about your journey with pain in your

>life.If you write your story all or part of it and email it to me I

>can post it into a folder where anyone who wants too can read it. Just

>please remember be careful writing your story remember anyone in the

>group can read it so keep this in mind when you write it. If I think

>there are any problems with it I will email you before I post it. Be

>sure and label it " My story " or something like that so I will know

>what it is in my email acct. SO for those of you who thought it was a

>good idea start writing I hope others especially new members can

>benefit from reading these stories and get ideas that may help them

>find relief from their pain. Sharon Group Owner

>

>

>

_________________________________________________________________

On the road to retirement? Check out MSN Life Events for advice on how to

get there! http://lifeevents.msn.com/category.aspx?cid=Retirement

[Guest guest]

-HI Rob yes that makes sense. Living with chronic pain not only

changes your life but the lives of those around you. And how you are

treated by others is a big part of living with it too. You loose

friends because you can no longer do the fun things you used too

with them. The support or not of your family and those around you is

a big thing that willl affect your life with pain.Your whole life

changes and that is something a person

new to chronic pain will have to deal with so it makes sense to

educate them as to what the will see happen to them because. Its not

an easy thing to deal with for any of us. Sharon Group Owner'

-- In neck pain , " Gehle "

<robgehle@...> wrote:

>

> i also think adding personal info (not too personal) but stuff

like how

> people treat you or how supportive your spouse or partner is/isnt

things

> like that because everyone knows about the pain but

the " background " stuff

> that goes on kids etc... also i think will help people identify

with what

> might be going on in THEIR lives and maybe help in some way. does

that make

> sense?

>

> <html><div>No greater burden can be borne by an individual than to

know no

> one cares or understands. </div></html>

>

>

>

>

[Guest guest]

-HI Rob yes that makes sense. Living with chronic pain not only

changes your life but the lives of those around you. And how you are

treated by others is a big part of living with it too. You loose

friends because you can no longer do the fun things you used too

with them. The support or not of your family and those around you is

a big thing that willl affect your life with pain.Your whole life

changes and that is something a person

new to chronic pain will have to deal with so it makes sense to

educate them as to what the will see happen to them because. Its not

an easy thing to deal with for any of us. Sharon Group Owner'

-- In neck pain , " Gehle "

<robgehle@...> wrote:

>

> i also think adding personal info (not too personal) but stuff

like how

> people treat you or how supportive your spouse or partner is/isnt

things

> like that because everyone knows about the pain but

the " background " stuff

> that goes on kids etc... also i think will help people identify

with what

> might be going on in THEIR lives and maybe help in some way. does

that make

> sense?

>

> <html><div>No greater burden can be borne by an individual than to

know no

> one cares or understands. </div></html>

>

>

>

>