Re: Welcome Ernie! - to Gretchen

[Guest guest]

Gretchen:

isn't it interesting? I got the definite CMT diagnosis in '63 by a

neurologist who did a muscle biopsy. Just got my original medical

records and lordy, it says " on right calf " - IT WAS ON MY LEFT!! You

are right, it's a good idea to ask for copies of the records and then

correct them!

Melody

> Welcome Ernie!

>

> I was diagnosed by a plain old orthopedist who watched me walk down

his

> office hallways in 1962 or so...he knew more than any of the neuros

my

> Mom dragged me to looking for ways to help me. I had tons of

> 'interesting treatments' - i.e., experiemntal Ritalin, Potassium,

PT,

> physiotigmine trials, those 'early NCV/EMG tests' yadda yadda

yadda. I

> just think neurology was too new at the time... lol or I am way

ahead of

> MY time!

>

> There are many doctors who cannot, in this modern day, seem to

diagnose

> CMT. Our list members no doubt will share their stories.

>

> Again welcome!

> ~ Gretchen