Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 This is a new article on ankle and foot surgery, but not necessarily strictly for CMT. However, it is a good update on what's new. It is rather technical in medical terms, some of you may possibly want to save this to read later. ~ G http://www.ejbjs.org/cgi/content/full/83/5/791?maxtoshow= & hits=10 & RESULTFORMAT= & \ \ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 Who is Hilder? Who is hilter? Aren't Kiss A** responses Freedom of Speech? Shouldn't you GET A LIFE!!!!!!! BC ----- Original Message ----- From: <clutzeme@...> < > Sent: Monday, September 10, 2001 7:22 PM Subject: [] Re: Ankle + Foot Surgery > > > This is a new article on ankle and foot surgery, but not necessarily > > strictly for CMT. However, it is a good update on what's new. It is > > rather technical in medical terms, some of you may possibly want to save > > this to read later. ~ G > > > > >>>>Hello, I'm new here, but not new to CMT. This is a very good > article, I read it already early today at > http://www./group/CMT-Support a new support group I > joined last week by invitation from Becky Maxwell who is the one who > posted this article at CMT-SUPPORT. She posted many there today. I am > married and 55 years old have type 2 CMT mildly affected. I am retired > and teach sunday school. I have never let my CMT keep me from doing > anything. I found this group by doing a search on a search engine. > After joining CMT-SUPPORT. I have belonged to groups before, not for > CMT. But for RA and fibromyalgia. And none ran like this one. I have > spent the last couple of days going through the archives of messages. > Freedom of speech regarding problems with CMT is limited here I see. > I also see a lot of pettiness and arguements over nothing. This is > the e-mail I got from the list owner when I was waiting to be > " approved " to this list, > > > Date: Sun, 09 Sep 2001 09:33:05 PDT [show full headers] > From: liliwigg@... [Add to Address Book] > clutzeme@... > Subject: joining > > Please tell us how you found our group and a little about > your CMT. i.e., when were you diagnosed/etc. Please make sure > you read our mission statement about sharing resources, > helping others and most importantly sharing positive ways > you have learned to live with your CMT and How can you assure us you > will share your > positive experiences with our group? > > Please make sure you understand the rules: keep things positive, > do not discuss religion or polictics, or the stem cell issue, > share from your personal life...and do not disagree with others. > There is no room for disagreement or argument here. We are a private > group. " what you can > bring to our group. " > > More importantly to list owner, what can your group bring to those > with CMT? > > > >>>>So no one can disagree with another even when its known the > information in wrong? I'm so sorry to inform the list owner but > Hitler is dead dear. And there is a law against surpressing freedom > of speech. The new list at CMT-SUPPORT has a list owner (Lamar > son) that is supportive of all CMT issues good and bad. And > does not surpress freedom of speech. And learned a long time ago > Hilter is long dead.I do believe the list owner here is on the new > list, under an assumed name, as the information I read early today was > copied and put here this evening. Isn't that poaching? If she cannot > find her OWN information, she should not steal it from others without > permission first. I do believe, I want an honest list, not one where > Hilder wanna be's rule, and freedom of speech regarding CMT issues are > surpressed by banning members. And where the owner does not sneak > around on other lists seeing what is being said and what is being > posted. Why not join as yourself? Lamar has said there is no > competiton among other lists, we are all here for one reason, to learn > and share and inform the public about CMT. Is this what this list is > for? Or is it for the sryupy sweet life is wonderful with CMT that it > is now turned into? With many Hitler followers? Like the Kiss A** > responses from R to any of Gretchens posts. No, think I want a > honest group, not this surpressed hilter run type list, Good bye! > > > > Stay Positive! Stay healthy! > Foundation: http://www..org > > > Quote Link to comment Share on other sites More sharing options...
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