Re: Nerves twitching and jumping

[Guest guest]

Hi Babs I get this all the time now. Used to be it didn't happen

very

often but it seems the worse my nerves are damaged the worse it

gets.

Sometimes it will just be my leg twitch and jump but others it will

be

my whole body. And then sometimes my whole body will freeze up like

I

am stiff as a board for a min. I think this one is related to my

implant. I asked my dr about them long ago and he told me it was the

nerves firing mostly from damaged and they get totally mixed up from

being squished and smashed as some of them are. I really hate the

full

body one that always stops me in my tracks. But it usually happens

when I have left my implant on for days and never turned it off. It

constantly sends signals to the nerve root to try and stop the pain

in

my leg. But if its killing me I am not about to turn it off. IT was

even weirder when I first got it, if I went to lay down too fast and

I

had it turned wayyyyyyy up I'd get like an electric shock. The first

time at the hospital it happened I couldn't even talk or move. They

were putting my bed down and that triggered it. I had no way to tell

them STOP your driving me crazy here. After that I figured out how

to

warn someone if it happened because it did every once in awhile for

the first year. I wonder if I ever get fixed if the nerves will stop

this stuff ?? I know it may take years for them to heal IF they do

and I am pretty sure my foot has permanant damage by now after 6 yrs

of this. will I ever be able to wear regular shoes again and not

have

to worry about IF it will kill my foot ?? I wonder I've never talked

to anyone who had surgery and got fixed that had what I do. sorry to

babble Sharon Group Owner

>

> I was just sitting here thinking about your wife having the

seizures. And the fact that the doctors say that they can not find a

reason for them. When my daughter had them she went limp and her

eyes

rolled back. But I wanted to share with you something that I go

through. At when I lay down. I have spasms that cause my whole body

to

jerk and jump. This only happens when I am laying down to rest. They

are very disturbing at times. I still do not know why I have them

but

I assume it is something to do with my back. Maybe she needs to see

a

spinal doctor to see if it could be related to something in her

spine.

> Hugs and Prayers, Babs

>

[Guest guest]

Hi Babs sorry its me Sharon that has an implant. I have a dorsal

spinal stimulator. I had it put in almost a 1 1/2-ago. Hopefully if

they ever do decide to do my surgery it will be removed. Its a 3 in.

Metal disc in your back hip. Took alot of getting used too but it did

help me for a long time. With my worsening Spinal stenosis though it

is making it worse and I rarely use it much anymore. Plus the dr told

me it won't last more than 4-5 yrs as much as I used it then the

battery inside it will have to be changed in a hospital. And the newer

ones are much smaller than what I have. It will be strange though not

to feel that tingling feeling I get from it sometimes lol, I have

gotten so used to it now. They did a trial at first for a week to see

if it would help me. Put the wires in taped up my entire back.( I told

the dr later when he took it all off ) Don't you think it was a little

much But they don't want water or germs to get into your back of

course so they have too. Then they gave me an external one I could

put on my waist and remove to take a shower. That part was easy but

the pain relief was instant so I said after two days WHEN can we do

this I want it NOW!!!! and I got it about 2 weeks later. Anyway if you

are interested there is a link about it. Its mainly to help with

sciatic pain, from the back down the leg it blocks the signal from

getting there with small electrical like impluses. Kinda cool though

when I have to tell people they look at me weird though. But hey if

it works I'd do almost anything to get less pain. Sharon Group Owner

-- In neck pain , " Babs " <barbnal@...> wrote:

>

> Katrina What kind of implant do you have? Sorry that you get the

spasms all the time. Mine are so strong at times my whole body jerks

bad. That had to be awful not to be able to tell anyone they are

hurting you. As for electric shocks I get them all the time. They are

just awful. And sweep through my entire body.

> Hugs and Prayers, Babs

>