Guest guest Posted July 25, 2006 Report Share Posted July 25, 2006 Good evening, I have been on hold for 3 months waiting for my surgery.....here is my situation in a nut shell. I had the horrific pain in the neck, shoulder blade and arm. The first MRI reflected a ruptured disc however the detail was skewed because of the spasms I was having. The moving muscles would not allow a good and clean MRI. So the doc orded yet another MRI, a sit down MRI. He also gave me a BIG TIME MUSCLE RELAXER, ZANAFLEX to relieve the spasms....this did not work. The second MRI however did refelect 2 ruptured discs. But again the MRI was a bad quality because of the spasms. So the doctor ordered a discogram. I do not know how many of you guys have had the honor of having this test. But please take my advice, if you are scheduled to have one...MAKE SURE THE DOCTOR PUTS YOU UNDER WHILE HE IS inserting the tubes and wires to perform the test. The test is used to " recreate " the pain of the injury. You are wide awake while they inject a dye solution into the disc to create the pain and make the tear visible. It is uncomfortable, but they do give you meds once the exam is complete. Sorry, I got off topic...anyhow the discogram was very CLEAR...I HAVE 3 BLOWN DISCS IN MY NECK! I am 33...and to correct the issue in a traditional way would be to fuse. However, my doctor happens to be a lead investagator for a cervical disc replacement study...please see http://www.spinalmotion.com/for_patients.htm if you are intrested in more information. MY QUESTION IS...has anyone had this procedure done? If so, I am curious as to the pain, recovery time, etc....Please give me any information....I have done the research, but the curiosity is " killing the cat " . Surgery is set for August 1...so I am hoping the surgery will actually happen next week. However it has been put off 3 times already....so we will see?? GOOD LUCK TO ALL AND HANG IN THERE!!!! Thank you in advance, Glenna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Wow, this one looks much different than mine! Hi Glenna, I have an Artificial Disc at my L5-S1. I got the Charite. At my last appoitment with my surgeon(whom I will be seeing every 6 months for the rest of my life) he said that he would no longer be doing the Charite replacement surgery. And that he would no longer be doing ANY replacement surgerys on people with shattered discs. I don't think that was the intention with mine, we just didn't know that mine was so far gone. I am my Docs only patient with these complications but other docs have seen the same problem. My placement is as it should be , but his other patients are not. My thought would be to research completely and know all parts as much as possible. I don't think anything would have stopped me from having the nerve damage I now do. I think that may have still happened had I had a fusion. And when the replacement fails they can always go in and fuse, but that is alot of tiem and money wasted for that to happen. HTH Take care, Katrina > > Good evening, > I have been on hold for 3 months waiting for my surgery.....here is > my situation in a nut shell. I had the horrific pain in the neck, > shoulder blade and arm. The first MRI reflected a ruptured disc > however the detail was skewed because of the spasms I was having. The > moving muscles would not allow a good and clean MRI. So the doc orded > yet another MRI, a sit down MRI. He also gave me a BIG TIME MUSCLE > RELAXER, ZANAFLEX to relieve the spasms....this did not work. The > second MRI however did refelect 2 ruptured discs. But again the MRI > was a bad quality because of the spasms. So the doctor ordered a > discogram. I do not know how many of you guys have had the honor of > having this test. But please take my advice, if you are scheduled to > have one...MAKE SURE THE DOCTOR PUTS YOU UNDER WHILE HE IS inserting > the tubes and wires to perform the test. The test is used > to " recreate " the pain of the injury. You are wide awake while they > inject a dye solution into the disc to create the pain and make the > tear visible. It is uncomfortable, but they do give you meds once the > exam is complete. Sorry, I got off topic...anyhow the discogram was > very CLEAR...I HAVE 3 BLOWN DISCS IN MY NECK! I am 33...and to > correct the issue in a traditional way would be to fuse. However, my > doctor happens to be a lead investagator for a cervical disc > replacement study...please see > http://www.spinalmotion.com/for_patients.htm if you are intrested in > more information. MY QUESTION IS...has anyone had this procedure > done? If so, I am curious as to the pain, recovery time, > etc....Please give me any information....I have done the research, > but the curiosity is " killing the cat " . Surgery is set for August > 1...so I am hoping the surgery will actually happen next week. > However it has been put off 3 times already....so we will see?? > GOOD LUCK TO ALL AND HANG IN THERE!!!! > > Thank you in advance, > Glenna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 Wow, this one looks much different than mine! Hi Glenna, I have an Artificial Disc at my L5-S1. I got the Charite. At my last appoitment with my surgeon(whom I will be seeing every 6 months for the rest of my life) he said that he would no longer be doing the Charite replacement surgery. And that he would no longer be doing ANY replacement surgerys on people with shattered discs. I don't think that was the intention with mine, we just didn't know that mine was so far gone. I am my Docs only patient with these complications but other docs have seen the same problem. My placement is as it should be , but his other patients are not. My thought would be to research completely and know all parts as much as possible. I don't think anything would have stopped me from having the nerve damage I now do. I think that may have still happened had I had a fusion. And when the replacement fails they can always go in and fuse, but that is alot of tiem and money wasted for that to happen. HTH Take care, Katrina > > Good evening, > I have been on hold for 3 months waiting for my surgery.....here is > my situation in a nut shell. I had the horrific pain in the neck, > shoulder blade and arm. The first MRI reflected a ruptured disc > however the detail was skewed because of the spasms I was having. The > moving muscles would not allow a good and clean MRI. So the doc orded > yet another MRI, a sit down MRI. He also gave me a BIG TIME MUSCLE > RELAXER, ZANAFLEX to relieve the spasms....this did not work. The > second MRI however did refelect 2 ruptured discs. But again the MRI > was a bad quality because of the spasms. So the doctor ordered a > discogram. I do not know how many of you guys have had the honor of > having this test. But please take my advice, if you are scheduled to > have one...MAKE SURE THE DOCTOR PUTS YOU UNDER WHILE HE IS inserting > the tubes and wires to perform the test. The test is used > to " recreate " the pain of the injury. You are wide awake while they > inject a dye solution into the disc to create the pain and make the > tear visible. It is uncomfortable, but they do give you meds once the > exam is complete. Sorry, I got off topic...anyhow the discogram was > very CLEAR...I HAVE 3 BLOWN DISCS IN MY NECK! I am 33...and to > correct the issue in a traditional way would be to fuse. However, my > doctor happens to be a lead investagator for a cervical disc > replacement study...please see > http://www.spinalmotion.com/for_patients.htm if you are intrested in > more information. MY QUESTION IS...has anyone had this procedure > done? If so, I am curious as to the pain, recovery time, > etc....Please give me any information....I have done the research, > but the curiosity is " killing the cat " . Surgery is set for August > 1...so I am hoping the surgery will actually happen next week. > However it has been put off 3 times already....so we will see?? > GOOD LUCK TO ALL AND HANG IN THERE!!!! > > Thank you in advance, > Glenna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Thanks so much for the info!! I appreciate your input. Since my post things have changed for me. I went to my surgeon last week and he ran me around the block. It appears I have a much serious issue than he expected. I need a 3 level fusion and because of my age, 33, he does not want to do it. SO HE PUSHED ME AND MY HUSBAND OUT THE DOOR WITH MY CHART and told me to go find another doctor. This is fine, except for the fact he gave me the impression for the past two months I would have this surgery. And then he re-read my discogram, and he did not read it correctly the first time...can you believe this?!?!?! So my parents are have called in favors and I am setting up appointments for other neurospinal surgeons. My orginal doc was an orthopedic. My first doctor has had me out of work for 2 months...just waiting to have surgery. And then to have him review my final last week and FIGURE OUT I have a worse condition just floors me. But again, I thank you for the input. AND TRUST ME I AM RESEARCH LADY! I hope you are feeling well, and I am sorry to hear about your nerve damge. That is my fear. My weakness and lack of feeling in my left arm gets worse day by day. I am terrified this 2 month delay has harmed me in many ways. Thanks, Glenna Katrina <sweettoobeme@...> wrote: Wow, this one looks much different than mine! Hi Glenna, I have an Artificial Disc at my L5-S1. I got the Charite. At my last appoitment with my surgeon(whom I will be seeing every 6 months for the rest of my life) he said that he would no longer be doing the Charite replacement surgery. And that he would no longer be doing ANY replacement surgerys on people with shattered discs. I don't think that was the intention with mine, we just didn't know that mine was so far gone. I am my Docs only patient with these complications but other docs have seen the same problem. My placement is as it should be , but his other patients are not. My thought would be to research completely and know all parts as much as possible. I don't think anything would have stopped me from having the nerve damage I now do. I think that may have still happened had I had a fusion. And when the replacement fails they can always go in and fuse, but that is alot of tiem and money wasted for that to happen. HTH Take care, Katrina > > Good evening, > I have been on hold for 3 months waiting for my surgery.....here is > my situation in a nut shell. I had the horrific pain in the neck, > shoulder blade and arm. The first MRI reflected a ruptured disc > however the detail was skewed because of the spasms I was having. The > moving muscles would not allow a good and clean MRI. So the doc orded > yet another MRI, a sit down MRI. He also gave me a BIG TIME MUSCLE > RELAXER, ZANAFLEX to relieve the spasms....this did not work. The > second MRI however did refelect 2 ruptured discs. But again the MRI > was a bad quality because of the spasms. So the doctor ordered a > discogram. I do not know how many of you guys have had the honor of > having this test. But please take my advice, if you are scheduled to > have one...MAKE SURE THE DOCTOR PUTS YOU UNDER WHILE HE IS inserting > the tubes and wires to perform the test. The test is used > to " recreate " the pain of the injury. You are wide awake while they > inject a dye solution into the disc to create the pain and make the > tear visible. It is uncomfortable, but they do give you meds once the > exam is complete. Sorry, I got off topic...anyhow the discogram was > very CLEAR...I HAVE 3 BLOWN DISCS IN MY NECK! I am 33...and to > correct the issue in a traditional way would be to fuse. However, my > doctor happens to be a lead investagator for a cervical disc > replacement study...please see > http://www.spinalmotion.com/for_patients.htm if you are intrested in > more information. MY QUESTION IS...has anyone had this procedure > done? If so, I am curious as to the pain, recovery time, > etc....Please give me any information....I have done the research, > but the curiosity is " killing the cat " . Surgery is set for August > 1...so I am hoping the surgery will actually happen next week. > However it has been put off 3 times already....so we will see?? > GOOD LUCK TO ALL AND HANG IN THERE!!!! > > Thank you in advance, > Glenna > --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 It makes no sense to me why they have the discogram around still. It was the WORST thing that they put me through. And it was used the least of all my tests. I still find myself very frustrated about even thogh so much time has passed. I will never forget that TERRIBLE experience. I don't get some of these Doctors. I went through a few before I found the right one. Thank heavens we have that option. I hope that the docs you are getting hooked up with now do a far better job for you. I am only 36 and they did my surgery. I was dieing a slow death and thank heavens I was able to get the surgery. Even if it didn't end up as I had hoped. I still have pain that i shouldn't but I can function better. I am driving again WOOHOOO! It took me a year to get that back. Please keep me posted on how things go for you. A better Doctor has to be there somewhere. Take care, Katrina :-) > > Thanks so much for the info!! I appreciate your input. Since my post things have changed for me. I went to my surgeon last week and he ran me around the block. It appears I have a much serious issue than he expected. I need a 3 level fusion and because of my age, 33, he does not want to do it. SO HE PUSHED ME AND MY HUSBAND OUT THE DOOR WITH MY CHART and told me to go find another doctor. This is fine, except for the fact he gave me the impression for the past two months I would have this surgery. And then he re-read my discogram, and he did not read it correctly the first time...can you believe this?!?!?! So my parents are have called in favors and I am setting up appointments for other neurospinal surgeons. My orginal doc was an orthopedic. My first doctor has had me out of work for 2 months...just waiting to have surgery. And then to have him review my final last week and FIGURE OUT I have a worse condition just floors me. > But again, I thank you for the input. AND TRUST ME I AM RESEARCH LADY! I hope you are feeling well, and I am sorry to hear about your nerve damge. That is my fear. My weakness and lack of feeling in my left arm gets worse day by day. I am terrified this 2 month delay has harmed me in many ways. > > Thanks, > Glenna > > Katrina <sweettoobeme@...> wrote: > Wow, this one looks much different than mine! > Hi Glenna, I have an Artificial Disc at my L5-S1. I got the Charite. > At my last appoitment with my surgeon(whom I will be seeing every 6 > months for the rest of my life) he said that he would no longer be > doing the Charite replacement surgery. And that he would no longer be > doing ANY replacement surgerys on people with shattered discs. I > don't think that was the intention with mine, we just didn't know > that mine was so far gone. I am my Docs only patient with these > complications but other docs have seen the same problem. My placement > is as it should be , but his other patients are not. > My thought would be to research completely and know all parts as much > as possible. > I don't think anything would have stopped me from having the nerve > damage I now do. I think that may have still happened had I had a > fusion. And when the replacement fails they can always go in and > fuse, but that is alot of tiem and money wasted for that to happen. > HTH Take care, > Katrina > > > > > Good evening, > > I have been on hold for 3 months waiting for my surgery.....here is > > my situation in a nut shell. I had the horrific pain in the neck, > > shoulder blade and arm. The first MRI reflected a ruptured disc > > however the detail was skewed because of the spasms I was having. > The > > moving muscles would not allow a good and clean MRI. So the doc > orded > > yet another MRI, a sit down MRI. He also gave me a BIG TIME MUSCLE > > RELAXER, ZANAFLEX to relieve the spasms....this did not work. The > > second MRI however did refelect 2 ruptured discs. But again the MRI > > was a bad quality because of the spasms. So the doctor ordered a > > discogram. I do not know how many of you guys have had the honor of > > having this test. But please take my advice, if you are scheduled > to > > have one...MAKE SURE THE DOCTOR PUTS YOU UNDER WHILE HE IS > inserting > > the tubes and wires to perform the test. The test is used > > to " recreate " the pain of the injury. You are wide awake while they > > inject a dye solution into the disc to create the pain and make the > > tear visible. It is uncomfortable, but they do give you meds once > the > > exam is complete. Sorry, I got off topic...anyhow the discogram was > > very CLEAR...I HAVE 3 BLOWN DISCS IN MY NECK! I am 33...and to > > correct the issue in a traditional way would be to fuse. However, > my > > doctor happens to be a lead investagator for a cervical disc > > replacement study...please see > > http://www.spinalmotion.com/for_patients.htm if you are intrested > in > > more information. MY QUESTION IS...has anyone had this procedure > > done? If so, I am curious as to the pain, recovery time, > > etc....Please give me any information....I have done the research, > > but the curiosity is " killing the cat " . Surgery is set for August > > 1...so I am hoping the surgery will actually happen next week. > > However it has been put off 3 times already....so we will see?? > > GOOD LUCK TO ALL AND HANG IN THERE!!!! > > > > Thank you in advance, > > Glenna > > > > > > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 I was lucky with my cervical fusions. they only used the mri and mylogram (it was uncomfortable.) I have heard the discogram is just awful so I am glad I didn't have to go through that awful experience. Hugs and Prayers, Babs Chronic illness Chronic Pain You are not alone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 I was lucky with my cervical fusions. they only used the mri and mylogram (it was uncomfortable.) I have heard the discogram is just awful so I am glad I didn't have to go through that awful experience. Hugs and Prayers, Babs Chronic illness Chronic Pain You are not alone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Hi all. I read about how many of y " all that have had painfrul discograms, have a friend who also had a painful one- mine was absolutely painless. However. my friend said the reason that happens is that my discs weren't blown, in essence, y'all that have blown discs have the painful discograms. Has anyone heard that before-or is my friend wrong? She said I had no pain with the test because mine were only bulging, not blown. I feel so badly for you that have had the painful ones, having our back and neck pain is bad enough without having to add painful tests to the list. I guess it's a necessary evil in our search to find an end to our pain- Babs <barbnal@...> wrote: I was lucky with my cervical fusions. they only used the mri and mylogram (it was uncomfortable.) I have heard the discogram is just awful so I am glad I didn't have to go through that awful experience. Hugs and Prayers, Babs Chronic illness Chronic Pain You are not alone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 It makes sense to me. I had a blown disc and when they injected the dye it showed on the films that it leaked out every where. But what gets me is that the doc that did my Myleogram told me that he thought it was archaic. Not needed and should no longer be used. My Surgeon glanced at it , but the current MRI was what he needed. Same when I went to SLC. It was not needed. This test should not be done if the Docs are not going to use it. It was the first surgeon that I saw that ordered it. He got the results and pretty much said that yah my disc was bad and that surgery would help. But we already new that from the MRI. He was just wanting to confirm it with that dreadful test. To me it seems unjustified. Anyways that is my rant about it all. I could probably go on about this. Katrina :-) > > Hi all. > I read about how many of y " all that have had painfrul discograms, have a friend who also had a painful one- mine was absolutely painless. However. my friend said the reason that happens is that my discs weren't blown, in essence, y'all that have blown discs have the painful discograms. Has anyone heard that before-or is my friend wrong? She said I had no pain with the test because mine were only bulging, not blown. I feel so badly for you that have had the painful ones, having our back and neck pain is bad enough without having to add painful tests to the list. I guess it's a necessary evil in our search to find an end to our pain- > > > Babs <barbnal@...> wrote: > I was lucky with my cervical fusions. they only used the mri and mylogram (it was uncomfortable.) I have heard the discogram is just awful so I am glad I didn't have to go through that awful experience. > Hugs and Prayers, Babs > > Chronic illness Chronic Pain You are not alone > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 It makes sense to me. I had a blown disc and when they injected the dye it showed on the films that it leaked out every where. But what gets me is that the doc that did my Myleogram told me that he thought it was archaic. Not needed and should no longer be used. My Surgeon glanced at it , but the current MRI was what he needed. Same when I went to SLC. It was not needed. This test should not be done if the Docs are not going to use it. It was the first surgeon that I saw that ordered it. He got the results and pretty much said that yah my disc was bad and that surgery would help. But we already new that from the MRI. He was just wanting to confirm it with that dreadful test. To me it seems unjustified. Anyways that is my rant about it all. I could probably go on about this. Katrina :-) > > Hi all. > I read about how many of y " all that have had painfrul discograms, have a friend who also had a painful one- mine was absolutely painless. However. my friend said the reason that happens is that my discs weren't blown, in essence, y'all that have blown discs have the painful discograms. Has anyone heard that before-or is my friend wrong? She said I had no pain with the test because mine were only bulging, not blown. I feel so badly for you that have had the painful ones, having our back and neck pain is bad enough without having to add painful tests to the list. I guess it's a necessary evil in our search to find an end to our pain- > > > Babs <barbnal@...> wrote: > I was lucky with my cervical fusions. they only used the mri and mylogram (it was uncomfortable.) I have heard the discogram is just awful so I am glad I didn't have to go through that awful experience. > Hugs and Prayers, Babs > > Chronic illness Chronic Pain You are not alone > > Quote Link to comment Share on other sites More sharing options...
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