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Help for Diane

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OK Diane, you are on the right track. I would recommend a pediatric

neurologist. Also, perhaps both you and your husband could have the DNA

blood tests - since he was adopted, it will save your daughter alot of

pain rather than having an EMG/NCV test. The DNA tests are a simple

blood test done in your docs office and sent to the lab. Here's the lab

site, give to your doc if he/she doesn't know.

http://www.athenadiagnostics.com There is no cure for CMT, but there

are many ways to live a happy purposefilled life and many items to help

should your daughter need them. I myself was a CMT kid, am 49 now and

haven't missed much in life nor will I ever in the future!!

~ Gretchen

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-----Original Message-----

From: Gretchen Glick <liliwigg@...>

< >

Date: Tuesday, August 21, 2001 7:58 PM

Subject: [] Help for Diane

OK Diane, you are on the right track. I would recommend a pediatric

neurologist. Also, perhaps both you and your husband could have the DNA

blood tests - since he was adopted, it will save your daughter alot of

pain rather than having an EMG/NCV test.~ Gretchen

>>>But if the CMT is one of the unknown types then theres money

down the drain twice if both have the test, also, probably only one parent has

CMT. Or none, it could be spontainous. ~>Becky M.

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